Simplifying Qualitative Data Analysis Using General Purpose Software Tools

This article shows how clever but simple use of word-processing functions can provide many features of special-purpose software designed for analyzing text. For many qualitative research projects, and for students who are learning computerassisted analysis of text, the Microsoft Word functions outlined here may be all that are required. Examples are given showing how Microsoft Word can be used for coding and retrieving, semiautomated coding and inspection, creating hierarchies of code categories via indexing, global editing of theme codes, coding of face-sheet data, exploring relationships between face-sheet codes and conceptual codes, quantifying the frequency of code instances, and annotating text. The techniques outlined can be used for analyzing and managing many kinds of data, including key informant interviews, focus groups, document and literature reviews, and open-ended survey questions

Improving Access to Public Health Information: A Study of Information Needs in a State Health Department

Background: Public health challenges can be better addressed if credible information about health risks and effective public health practices is readily available. The need for improved access to evidence-based public health information has been recognized by public health practitioners, researchers, policy makers, and librarians. Objective: To understand the information needs of the public health workforce and to improve access to credible and relevant information for public health practice. Methods: A qualitative study identified how public health professionals currently access information, what barriers they face, and what improvements they need. Nineteen individual interviews were conducted in two state health bureaus – communicable disease control and community health promotion. Follow-on focus groups were conducted to gather additional data on preferences for accessing information. Results: Public health professionals interviewed have a wide variety of needs and use different information sources depending on the areas of public health they work in and the diverse nature of their work. The types of information they use can be arranged in an information needs continuum ranging from early reports of disease outbreaks needed by those dealing with emerging diseases, to published reports, journal articles, systematic reviews, and evidence-based guidelines needed by those working on the prevention and control of well-known diseases and health threats. Information sources used by the participants include news resources, listservs, alert services, journal articles, conference proceedings, and email. The study revealed that public health practitioners face several barriers and limitations to accessing quality information for public health practice. These include lack to time and knowledge to find quality information; feeling bombarded with unfiltered and often duplicative information from listservs; and limited access to grey literature, systematic reviews, and full-text journal articles. Conclusion: Both groups expressed the need for access to information targeted towards their specific public health areas of interest and desired a way to filter information for more efficient access to relevant information. The research team developed a hypothetical model for the delivery and organization of credible and relevant public health information. Some of the participants were not aware of evidence-based public health resources currently available. An outcome of the project that is particularly beneficial to the public health workforce and information professionals is the project’s website, http://library.umassmed.edu/ebpph, which provides free online access to public health journals, databases, and evidence-based public health resources identified by the research team. Presentation at the 2006 Medical Library Association Annual Meeting, Phoenix, AZ

Improving Access to Credible and Relevant Information for Public Health Professionals: A Qualitative Study of Information Needs in Communicable Disease Control

In order to understand the information needs and the current and ideal approaches to information access in one major area of public health, semi-structured key informant interviews were conducted with 12 communicable disease control public health professionals in Massachusetts at their worksite. Examples of the types of information they commonly accessed and how it was accessed were solicited and/or observed where feasible. The interviews were transcribed and analyzed thematically. Information needs ranged from breaking news (e.g. epidemiology of emerging disease outbreaks) and untested programmatic ideas (e.g. how to handle prevention and treatment of West Nile Virus and SARS) to the need for published evidence-based information about better known diseases (e.g. tuberculosis and HIV/AIDS). Current preferences for information delivery mechanisms varied according to the type of information sought. Information about emerging diseases and programmatic interventions to address these were more often obtained from email alert systems and from informal local and national networks of colleagues via telephone, teleconference or special interest listservs. Information about more well-known diseases was often obtained via websites, general or specific journal search engines, or from listservs providing citations to new or updated sources of information about these diseases. Informants identified improvements to the existing information access and delivery systems that could meet their needs more effectively. This session will review areas for improvements identified by informants and suggest models that can be implemented to help public health professionals access credible and relevant information. Oral presentation at the 2004 American Public Health Association Annual Meeting, Washington, DC

Implementing a Case-Based Research Data Management Curriculum

OBJECTIVE: The Lamar Soutter Library of the University of Massachusetts Medical School is working with partner librarians at MBL-WHOI, Northeastern, Tufts and UMass Amherst on a NN/LM NER grant to author online modules and develop additional Research Data Management (RDM) Teaching Cases based on the UMMS/WPI Data Management Frameworks. The goal is to create an online curriculum to support these institution’s researchers’ data management (RDM) practices. METHODS: The criteria for module content were developed by an evaluation expert using the NSF data management plan requirements. To develop additional RDM Teaching Cases librarians conducted semi-structured data interviews with researchers. The librarians transcribed and coded these interviews using a validated RDM planning instrument to categorize the projects’ RDM challenges. The librarians then authored case narratives based on the data interview, highlighting these authentic challenges along with a set of discussion and comprehension questions to support learner outcomes. RESULTS: Currently there are seven modules in addition to the RDM Teaching Cases being authored by the project partners. The first drafts of the Module content and Teaching Cases are due for completion in spring 2013. CONCLUSIONS: A Data Management Curriculum and RDM Teaching Cases will provide libraries with an educational resource for teaching best practices and supporting their student and faculty research. These educational materials will help to provide researchers and future-researchers with valuable lessons to improve the management of their data throughout the stages of their projects, and will encourage them to see the relationships between managing their data and sharing their data in the future

Focused Outreach Final Report: Hartford, Connecticut and North Central Massachsuetts (May 1, 2012 - April 30, 2013)

The National Network of Libraries of Medicine, New England Region (NN/LM NER) at the University of Massachusetts Medical seeks to further the mission of the NN/LM, while raising awareness, use and knowledge of National Library of Medicine (http://nlm.nih.gov) resources and services; and increasing collaboration with libraries through a Focused Health Information Outreach model. Focused Health Information Outreach targets specific geographic areas in New England facing high rates of health disparities, socioeconomic challenges, and health care shortages. NER reaches out to libraries, public health agencies, schools, and other stakeholders in the provision of health information to connect them with the NLM. This project summary highlights accomplishments of the NER\u27s third cycle (Year 2) of Focused Outreach. Geographic areas for year 2 included Hartford, Connecticut and North Central Massachusetts

The Outreach Continuum: Expanding the Medical Librarian’s Role

Objective: With the closing of the reference desk and implementation of a single service point, librarians have more time to engage in outreach. However, questions remain. What does management mean by outreach? What skills are needed to conduct outreach? The objectives of this study are to: (1) reach a common definition of outreach; (2) identify skills needed to perform outreach. Methods: Focus groups were conducted with librarians from three departments (clinical services, research, and technology initiatives) to gain an understanding of initial perceptions of the outreach function and work currently perceived as outreach. Findings from a cross-group analysis were validated with participants and used to inform a definition of outreach and a continuum of outreach activities requiring increasing skill levels. The skills and tools needed to perform outreach activities at each stage of the continuum were identified and cross-group collaboration will be used to develop tools and acquire needed skills. Results: Using a working definition of outreach detailed in the continuum (basic, relationship building, and partnering), librarians tracked outreach activities and mapped them to the continuum for three months. Through discussion, it became clear to librarians where current activities fell, where they needed to concentrate future efforts, and what strategies to use to move from basic interactions to relationship building and then to partnering. The continuum and tracking logs served as a data source for strategic planning and to assist staff with individual goal setting. Librarians found the tracking log to be cumbersome, but the benefits to management were evident. Conclusion: Tracking and categorizing the defined outreach activities is useful to raise awareness of the different types of outreach activity and identify areas for skill development. In the future tracking logs will be streamlined and automated. Presented at the Medical Library Association Annual Meeting on May 23, 2010, in Washington, DC

Enhancing evidence-based information access to inform public health practice

It is clear from the trend towards evidence-based practices in many fields that public health (PH) practice can be better informed if credible information about effective practices is accessible. Comparing sources of evidence-based information in clinical medicine to what is available for PH, we found fewer examples of readily accessible sources in PH. This project was conceived to identify enhancements to evidence-based information accessing needs of PH professionals. A qualitative study identified how PH professionals currently access information and what enhancements they need. Nineteen individual interviews were conducted across two state health department bureaus – communicable disease control and community health promotion. Follow-up focus groups were conducted to gather additional data on preferences for information accessing models and features. An information maturity continuum emerged ranging from fast-breaking news about emerging health threats to evidence-based practice guidelines. Needs within this continuum varied somewhat across bureaus, but both groups expressed needs for improved information access such as better organizing/filtering of information, access to systematic reviews and/or summaries as well as full text of articles, one portal access with a good search engine, and broader access to best practice information. Both groups identified a need for PH-specific filters to create more efficient access to relevant information either delivered to their desktops via listservs or sought via search engines. Informants stated a preference for making enhancements to systems with which they were already familiar such as PubMed. Oral presentation at the 133rd Annual Meeting of the American Public Health Association; Abstract 108127, Session 5134. Philadelphia, PA

Teaching Research Data Management: An Undergraduate/Graduate Curriculum

With funding from the Institute of Museum and Library Services, the Libraries of the University of Massachusetts Medical School and Worcester Polytechnic Institute collaborated on a plan to expand the scope of science library practices and promote among medical, graduate, and undergraduate science students the preservation of scientific data in relevant repositories and archives. This paper outlines curriculum frameworks and learning needs for research data management instruction that can be delivered through a variety of methods. Individual modules are based on faculty and student interviews, as well as a comprehensive literature review

Identifying strategies to improve access to credible and relevant information for public health professionals: a qualitative study

BACKGROUND: Movement towards evidence-based practices in many fields suggests that public health (PH) challenges may be better addressed if credible information about health risks and effective PH practices is readily available. However, research has shown that many PH information needs are unmet. In addition to reviewing relevant literature, this study performed a comprehensive review of existing information resources and collected data from two representative PH groups, focusing on identifying current practices, expressed information needs, and ideal systems for information access. METHODS: Nineteen individual interviews were conducted among employees of two domains in a state health department – communicable disease control and community health promotion. Subsequent focus groups gathered additional data on preferences for methods of information access and delivery as well as information format and content. Qualitative methods were used to identify themes in the interview and focus group transcripts. RESULTS: Informants expressed similar needs for improved information access including single portal access with a good search engine; automatic notification regarding newly available information; access to best practice information in many areas of interest that extend beyond biomedical subject matter; improved access to grey literature as well as to more systematic reviews, summaries, and full-text articles; better methods for indexing, filtering, and searching for information; and effective ways to archive information accessed. Informants expressed a preference for improving systems with which they were already familiar such as PubMed and listservs rather than introducing new systems of information organization and delivery. A hypothetical ideal model for information organization and delivery was developed based on informants' stated information needs and preferred means of delivery. Features of the model were endorsed by the subjects who reviewed it. CONCLUSION: Many critical information needs of PH practitioners are not being met efficiently or at all. We propose a dual strategy of: 1) promoting incremental improvements in existing information delivery systems based on the expressed preferences of the PH users of the systems and 2) the concurrent development and rigorous evaluation of new models of information organization and delivery that draw on successful resources already operating to deliver information to clinical medical practitioners

Patient and Public Involvement and Engagement in the Development of a Platform Clinical Trial for Parkinson's Disease: An Evaluation Protocol

BACKGROUND: Patient and public involvement and engagement (PPIE) in the design of trials is important, as participant experience critically impacts delivery. The Edmond J Safra Accelerating Clinical Trials in PD (EJS ACT-PD) initiative is a UK consortium designing a platform trial for disease modifying therapies in PD. OBJECTIVE: The integration of PPIE in all aspects of trial design and its evaluation throughout the project. METHODS: PwP and care partners were recruited to a PPIE working group (WG) via UK Parkinson's charities, investigator patient groups and participants of a Delphi study on trial design. They are supported by charity representatives, trial delivery experts, researchers and core project team members. PPIE is fully embedded within the consortium's five other WGs and steering group. The group's terms of reference, processes for effective working and PPIE evaluation were co-developed with PPIE contributors. RESULTS: 11 PwP and 4 care partners have supported the PPIE WG and contributed to the development of processes for effective working. A mixed methods research-in-action study is ongoing to evaluate PPIE within the consortium. This includes the Patient Engagement in Research Scale -a quantitative PPIE quality measure; semi-structured interviews -identifying areas for improvement and overall impressions of involvement; process fidelity- recording adherence; project documentation review - identifying impact of PPIE on project outputs. CONCLUSIONS: We provide a practical example of PPIE in complex projects. Evaluating feasibility, experiences and impact of PPIE involvement in EJS ACT-PD will inform similar programs on effective strategies. This will help enable future patient-centered research