1,853 research outputs found

    How do you exercise with epilepsy? Insights into the barriers and adaptations to successfully exercise with epilepsy.

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    Exercise has been shown to be a physiological and psychological benefit for people with epilepsy (PWE). However, barriers prevent many PWE from exercising safely and confidently. This research explored current perceived barriers to exercise and adaptation techniques used by PWE in order to maintain physical activity levels. Three focus groups (2-3 participants per group) and three semi-structured interviews were conducted (11 participants total). Constructive grounded theory was used to frame the study and analyse the findings, presenting new insight into the motivation, perceived barriers, and adaptation techniques used to exercise. The main motivator to maintain physical activity levels was the benefit of exercise on physical and mental health. This was shown in an increase in mood, higher social interaction, and perceived improvement in overall physical health as a result of exercise. Current barriers to exercise included a fear of injury, lack of social support, and exercise-induced seizures (e.g., through overheating and/or high exercise intensity level). Adaptation techniques used were self-monitoring through the use of technology, reducing exercise frequency and intensity level, and exercising at certain times of the day. The importance of social support was shown to provide increased confidence and positive encouragement to exercise, contrasting with family and friends worrying for his/her safety and medical professionals requesting termination of some physical activities. These findings provide new insight into current adaptation techniques that are used and developed by PWE to overcome common barriers to exercise. These new additions to the literature can lead to further development of such techniques as well as examine current medical professionals' knowledge of the benefits of exercise for PWE

    Search with the CMS detector for heavy resonances decaying into an electron pair

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    This note presents the CMS experiment potential to discover heavy resonances decaying into an electron-positron pair, such as Kaluza-Klein excitations of a Z or graviton boson predicted in extra dimension models (the TeV^-1 model and the Randall-Sundrum model), or as neutral heavy Z' boson predicted by Grand Unified Theories. Full and fast simulation and reconstruction are used to investigate these productions, with the pileup condition corresponding to a luminosity equal to 2 times 10^ 33; mathrm cm ^ -2 mathrm s ^ -1 . For an integrated luminosity of 60 fbinv, a 5 sigma discovery limit has been obtained for a mass of 5.9 tevct in the case of Kaluza-Klein excitation Z boson production. For the Randall-Sundrum graviton production, the limit is found for graviton masses of 1.8 tevct with a coupling parameter constant c=0.01 and 4.1 tevct for c=0.1 . For the six Z' models considered here, the 5 sigma discovery limit ranges for masses from 3.6 tevct (rm Z_psi) to 4.6 tevct (rm Z_ALRM)

    ‘I’d rather you didn’t come’: The impact of stigma on exercising with epilepsy

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    Epilepsy is a common but hidden disorder, leading to stigma in everyday life. Despite stigma being widely researched, little is known about the impact of stigma for people with epilepsy within a sports and exercise setting. Using constructionist grounded theory, we explored the barriers and adaptations to exercise for people with epilepsy. Three focus groups (2-3 participants per group) and three semi-structured interviews were conducted (11 participants total). Stigma negatively impacted joining team sports, running groups, and disclosure to others. The effect of stigma was reduced by educating others about epilepsy, thus creating more awareness and understanding

    ‘Withness’: Creative spectating for residents living with advanced dementia in care homes

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    Aiming to illustrate the potential for puppetry as a useful resource in dementia care, the authors argue unusually that play with puppets derives not particularly from drama or theatre, but fundamentally from the performative relationship people have with objects. The puppeteers of the study achieved remarkable emotional connection with care-home residents through an experience of puppetry, which dissolved the unitary autonomy of the puppet, recontextualizing it relationally as the puppeteer-with-puppet-with-spectator. It is this ‘withness’ that ignited the creative spark of presence of the residents. For a moment of trust and child-like joy kinaesthetic memories stirred in them, appearing to break down emotional barriers between the person and the world around them and indicating comparatively longer-term therapeutic benefits.N/

    The psychosocial impact of exercising with epilepsy: a narrative analysis

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    © 2016 Elsevier Inc.Research has presented the benefits of and barriers to exercise for people with epilepsy through quantitative means. However, individual experiences through qualitative investigations have been absent. This research will present the narratives of people with epilepsy exercising over time and, as a result, develop further understanding of the psychosocial impact of exercising with epilepsy. Four interviews were conducted over the course of one year (one every three to four months) with four participants (aged 23–38 years) who varied in seizure type and control (16 interviews in total). A narrative analysis was used to analyze their exercise experiences. Results showed that exercise creates a positive effect on psychological and physical well-being. However, prevention from exercise as a result of medical advice or recurrent seizures can create negative effects such as social isolation, anxiety, lack of confidence, frustration, and anger. Adaptations of decreasing exercise intensity level and partaking in different physical activities are techniques used to lessen the negative impact and maintain an exercise routine. Time was shown to be an important factor in this adaptation as well as portrayed the cyclical responses of negative and positive emotions in regard to their exercise life. These findings provide valuable insight into the psychosocial benefits of and barriers to exercising with epilepsy and draw attention to the individual differences in how a person with epilepsy copes with uncontrolled seizures and their impact on his/her exercise routine. This knowledge can lead to future research in exploring how a person with epilepsy can overcome these barriers to exercise and encourage more people with epilepsy to enjoy the benefits of exercise

    Management strategy after diagnosis of Abernethy malformation: a case report

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    <p>Abstract</p> <p>Introduction</p> <p>The Abernethy malformation is a rare anomaly with a widely variable clinical presentation. Many diagnostic dilemmas have been reported. Nowadays, with the evolution of medical imaging, diagnosis can be made more easily, but management of patients with an Abernethy malformation is still open for discussion.</p> <p>Case presentation</p> <p>In this case study, we describe a 34-year-old Caucasian man who presented with a large hepatocellular carcinoma in the presence of an Abernethy malformation, which was complicated by the development of pulmonary arterial hypertension.</p> <p>Conclusion</p> <p>This case underlines the importance of regular examination of patients with an Abernethy malformation, even in older patients, to prevent complications and to detect liver lesions at an early stage.</p

    “It's such a vicious cycle”: Narrative accounts of the sportsperson with epilepsy

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    Objectives: There is an abundance of quantitative and medical research promoting the benefits of exercise for people with epilepsy. However, the psychosocial barriers and benefits of exercising for the sportsperson/people with epilepsy (SWE) are absent. This research aims to present the narratives of SWE over time and as a result, develop further understanding of the psychosocial impact of exercising with epilepsy. Method: A holistic-content and structural narrative analysis were used to explore the exercise experiences of three SWE over the course of one year. A creative non-fictional technique was used to present first person narratives, therefore providing the SWE's voice for the reader. Results: Narratives of ‘vicious cycle’ and ‘roller coaster’ presented complex and multi-thematic storied forms, with time and the hidden nature of epilepsy having a strong impact on narrative formation. Vicious cycle presented the cycle of desiring to exercise, but prevented from exercising because of uncontrolled seizures. This resulted in frustration and feelings of a lack of control, which subsequently increased the desire to exercise and created a cycle with no clear end. Roller coaster presented the constant psychosocial and physical undulations that epilepsy can create for a SWE over time. Conclusion: These narratives reveal that exercising with epilepsy has a constant and on-going positive and negative impact on the life of SWE. However, these narratives also show that it may be through the process of acceptance of their body's limitations that a healthier mental and physical state may result for the SWE

    Pharyngeal carriage of Neisseria species in the African meningitis belt.

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    OBJECTIVES: Neisseria meningitidis, together with the non-pathogenic Neisseria species (NPNs), are members of the complex microbiota of the human pharynx. This paper investigates the influence of NPNs on the epidemiology of meningococcal infection. METHODS: Neisseria isolates were collected during 18 surveys conducted in six countries in the African meningitis belt between 2010 and 2012 and characterized at the rplF locus to determine species and at the variable region of the fetA antigen gene. Prevalence and risk factors for carriage were analyzed. RESULTS: A total of 4694 isolates of Neisseria were obtained from 46,034 pharyngeal swabs, a carriage prevalence of 10.2% (95% CI, 9.8-10.5). Five Neisseria species were identified, the most prevalent NPN being Neisseria lactamica. Six hundred and thirty-six combinations of rplF/fetA_VR alleles were identified, each defined as a Neisseria strain type. There was an inverse relationship between carriage of N. meningitidis and of NPNs by age group, gender and season, whereas carriage of both N. meningitidis and NPNs was negatively associated with a recent history of meningococcal vaccination. CONCLUSION: Variations in the prevalence of NPNs by time, place and genetic type may contribute to the particular epidemiology of meningococcal disease in the African meningitis belt