34 research outputs found
Developing Leadership in Managers to Facilitate the Implementation of National Guideline Recommendations: A Process Evaluation of Feasibility and Usefulness
Background: Previous research supports the claim that managers are vital players in the implementation of clinical
practice guidelines (CPGs), yet little is known about interventions aiming to develop managers’ leadership in facilitating
implementation. In this pilot study, process evaluation was employed to study the feasibility and usefulness of a
leadership intervention by exploring the intervention’s potential to support managers in the implementation of national
guideline recommendations for stroke care in outpatient rehabilitation.
Methods: Eleven senior and frontline managers from five outpatient stroke rehabilitation centers participated in a fourmonth leadership intervention that included workshops, seminars, and teleconferences. The focus was on developing
knowledge and skills to enhance the implementation of CPG recommendations, with a particular focus on leadership
behaviors. Each dyad of managers was assigned to develop a leadership plan with specific goals and leadership behaviors
for implementing three rehabilitation recommendations. Feasibility and usefulness were explored through observations
and interviews with the managers and staff members prior to the intervention, and then one month and one year after
the intervention.
Results: Managers considered the intervention beneficial, particularly the participation of both senior and frontline
managers and the focus on leadership knowledge and skills for implementing CPG recommendations. All the managers
developed a leadership plan, but only two units identified goals specific to implementing the three stroke rehabilitation
recommendations. Of these, only one identified leadership behaviors that support implementation.
Conclusion: Managers found that the intervention was delivered in a feasible way and appreciated the focus on
leadership to facilitate implementation. However, the intervention appeared to have limited impact on managers’
behaviors or clinical practice at the units. Future interventions directed towards managers should have a stronger focus
on developing leadership skills and behaviors to tailor implementation plans and support implementation of CPG
recommendations
Perceived needs and satisfaction with care in people with multiple sclerosis: A two-year prospective study
<p>Abstract</p> <p>Background</p> <p>Considering the costs of multiple sclerosis (MS), it is crucial that the health-related services supplied are in accordance with needs as they are perceived by people with MS (PwMS). Satisfaction with care is related to quality of care and can provide health care providers with the means for improvement. The aim was to explore the perceived needs and satisfaction with care amongst PwMS over a two-year period, also taking sex and disease severity into consideration.</p> <p>Methods</p> <p>The sample consisted of 219 outpatients at a MS specialist clinic. Data on perceived needs and satisfaction with care were collected every six months using a questionnaire which included various dimensions of care. The data was analysed for the whole sample and on an individual level, as well as in subgroups with regard to sex and disease severity.</p> <p>Results</p> <p>There were no statistically significant variations in the proportion of PwMS with perceived needs concerning different health-related services during the study period. However, individual variations were found with regard to both perceived needs and satisfaction with care. Few PwMS perceived a continuous need for a specific service. However, the majority perceived a need for rehabilitation, assistive devices, transportation service for the disabled, psychosocial support/counselling and information on social insurance/vocational rehabilitation at least sometimes. Severe MS was associated with a greater perceived need for almost all the services studied and women experienced a need for psychosocial support/counselling to a greater extent than men. In relation to the different categories of health care staff, PwMS were most satisfied with nurses with regard to all dimensions of care. They were least satisfied with the availability of psychosocial support/counselling; and information about social insurance/vocational rehabilitation.</p> <p>Conclusion</p> <p>Despite the large proportion of individuals with mild disease severity in our sample, a considerable number of needs were identified of which many, on an individual level, varied over time. Key services demanded by PwMS were identified. Also the level of satisfaction with care varied and areas with a potential for improvement were identified such as the availability of rehabilitation services including an increase in the supply of psychosocial support and counselling.</p
Speech and language therapy for aphasia following stroke
Background Aphasia is an acquired language impairment following brain damage that affects some or all language modalities: expression and understanding of speech, reading, and writing. Approximately one third of people who have a stroke experience aphasia. Objectives To assess the effects of speech and language therapy (SLT) for aphasia following stroke. Search methods We searched the Cochrane Stroke Group Trials Register (last searched 9 September 2015), CENTRAL (2015, Issue 5) and other Cochrane Library Databases (CDSR, DARE, HTA, to 22 September 2015), MEDLINE (1946 to September 2015), EMBASE (1980 to September 2015), CINAHL (1982 to September 2015), AMED (1985 to September 2015), LLBA (1973 to September 2015), and SpeechBITE (2008 to September 2015). We also searched major trials registers for ongoing trials including ClinicalTrials.gov (to 21 September 2015), the Stroke Trials Registry (to 21 September 2015), Current Controlled Trials (to 22 September 2015), and WHO ICTRP (to 22 September 2015). In an effort to identify further published, unpublished, and ongoing trials we also handsearched theInternational Journal of Language and Communication Disorders(1969 to 2005) and reference lists of relevant articles, and we contacted academic institutions and other researchers. There were no language restrictions. Selection criteria Randomised controlled trials (RCTs) comparing SLT (a formal intervention that aims to improve language and communication abilities, activity and participation) versus no SLT; social support or stimulation (an intervention that provides social support and communication stimulation but does not include targeted therapeutic interventions); or another SLT intervention (differing in duration, intensity, frequency, intervention methodology or theoretical approach). Data collection and analysis We independently extracted the data and assessed the quality of included trials. We sought missing data from investigators. Main results We included 57 RCTs (74 randomised comparisons) involving 3002 participants in this review (some appearing in more than one comparison). Twenty-seven randomised comparisons (1620 participants) assessed SLT versus no SLT; SLT resulted in clinically and statistically significant benefits to patients' functional communication (standardised mean difference (SMD) 0.28, 95% confidence interval (CI) 0.06 to 0.49, P = 0.01), reading, writing, and expressive language, but (based on smaller numbers) benefits were not evident at follow-up. Nine randomised comparisons (447 participants) assessed SLT with social support and stimulation; meta-analyses found no evidence of a difference in functional communication, but more participants withdrew from social support interventions than SLT. Thirty-eight randomised comparisons (1242 participants) assessed two approaches to SLT. Functional communication was significantly better in people with aphasia that received therapy at a high intensity, high dose, or over a long duration compared to those that received therapy at a lower intensity, lower dose, or over a shorter period of time. The benefits of a high intensity or a high dose of SLT were confounded by a significantly higher dropout rate in these intervention groups. Generally, trials randomised small numbers of participants across a range of characteristics (age, time since stroke, and severity profiles), interventions, and outcomes. Authors' conclusions Our review provides evidence of the effectiveness of SLT for people with aphasia following stroke in terms of improved functional communication, reading, writing, and expressive language compared with no therapy. There is some indication that therapy at high intensity, high dose or over a longer period may be beneficial. HIgh-intensity and high dose interventions may not be acceptable to all
A protective personal factor against disability and dependence in the elderly: an ordinal regression analysis with nine geographically-defined samples from Spain
Background
Sense of Coherence (SOC) is defined as a tendency to perceive life experiences as comprehensible, manageable and meaningful. The construct is split in three major domains: Comprehensibility, Manageability, and Meaningfulness. SOC has been associated with successful coping strategies in the face of illness and traumatic events and is a predictor of self-reported and objective health in a variety of contexts. In the present study we aim to evaluate the association of SOC with disability and dependence in Spanish elders.
Methods
A total of 377 participants aged 75 years or over from nine locations across Spain participated in the study (Mean age: 80.9 years; 65.3% women). SOC levels were considered independent variables in two ordinal logistic models on disability and dependence, respectively. Disability was established with the World health Organization-Disability Assessment Schedule 2.0 (36-item version), while dependence was measured with the Extended Katz Index on personal and instrumental activities of daily living. The models included personal (sex, age, social contacts, availability of an intimate confidant), environmental (municipality size, access to social resources) and health-related covariates (morbidity).
Results
High Meaningfulness was a strong protective factor against both disability (Odds Ratio [OR] = 0.50; 95% Confidence Interval [CI] = 0.29–0.87) and dependence (OR = 0.33; 95% CI = 0.19–0.58) while moderate and high Comprehensibility was protective for disability (OR = 0.40; 95% CI = 0.22–0.70 and OR = 0.39; 95%CI = 0.21–0.74), but not for dependence. Easy access to social and health resources was also highly protective against both disability and dependence.
Conclusions
Our results are consistent with the view that high levels of SOC are protective against disability and dependence in the elderly. Elderly individuals with limited access to social and health resources and with low SOC may be a group at risk for dependence and disability in Spain.This project was partially funded by a research contract in support of the project “Epidemiological Study of Dementia in Spain” signed by the Pfizer Foundation and Carlos III Institute of HealthS
Early discharge hospital at home.
BACKGROUND: Early discharge hospital at home is a service that provides active treatment by healthcare professionals in the patient's home for a condition that otherwise would require acute hospital inpatient care. This is an update of a Cochrane review. OBJECTIVES: To determine the effectiveness and cost of managing patients with early discharge hospital at home compared with inpatient hospital care. SEARCH METHODS: We searched the following databases to 9 January 2017: the Cochrane Effective Practice and Organisation of Care Group (EPOC) register, Cochrane Central Register of Controlled Trials (CENTRAL), MEDLINE, Embase, CINAHL, and EconLit. We searched clinical trials registries. SELECTION CRITERIA: Randomised trials comparing early discharge hospital at home with acute hospital inpatient care for adults. We excluded obstetric, paediatric and mental health hospital at home schemes. DATA COLLECTION AND ANALYSIS: We followed the standard methodological procedures expected by Cochrane and EPOC. We used the GRADE approach to assess the certainty of the body of evidence for the most important outcomes. MAIN RESULTS: We included 32 trials (N = 4746), six of them new for this update, mainly conducted in high-income countries. We judged most of the studies to have a low or unclear risk of bias. The intervention was delivered by hospital outreach services (17 trials), community-based services (11 trials), and was co-ordinated by a hospital-based stroke team or physician in conjunction with community-based services in four trials.Studies recruiting people recovering from strokeEarly discharge hospital at home probably makes little or no difference to mortality at three to six months (risk ratio (RR) 0.92, 95% confidence interval (CI) 0.57 to 1.48, N = 1114, 11 trials, moderate-certainty evidence) and may make little or no difference to the risk of hospital readmission (RR 1.09, 95% CI 0.71 to 1.66, N = 345, 5 trials, low-certainty evidence). Hospital at home may lower the risk of living in institutional setting at six months (RR 0.63, 96% CI 0.40 to 0.98; N = 574, 4 trials, low-certainty evidence) and might slightly improve patient satisfaction (N = 795, low-certainty evidence). Hospital at home probably reduces hospital length of stay, as moderate-certainty evidence found that people assigned to hospital at home are discharged from the intervention about seven days earlier than people receiving inpatient care (95% CI 10.19 to 3.17 days earlier, N = 528, 4 trials). It is uncertain whether hospital at home has an effect on cost (very low-certainty evidence).Studies recruiting people with a mix of medical conditionsEarly discharge hospital at home probably makes little or no difference to mortality (RR 1.07, 95% CI 0.76 to 1.49; N = 1247, 8 trials, moderate-certainty evidence). In people with chronic obstructive pulmonary disease (COPD) there was insufficient information to determine the effect of these two approaches on mortality (RR 0.53, 95% CI 0.25 to 1.12, N = 496, 5 trials, low-certainty evidence). The intervention probably increases the risk of hospital readmission in a mix of medical conditions, although the results are also compatible with no difference and a relatively large increase in the risk of readmission (RR 1.25, 95% CI 0.98 to 1.58, N = 1276, 9 trials, moderate-certainty evidence). Early discharge hospital at home may decrease the risk of readmission for people with COPD (RR 0.86, 95% CI 0.66 to 1.13, N = 496, 5 trials low-certainty evidence). Hospital at home may lower the risk of living in an institutional setting (RR 0.69, 0.48 to 0.99; N = 484, 3 trials, low-certainty evidence). The intervention might slightly improve patient satisfaction (N = 900, low-certainty evidence). The effect of early discharge hospital at home on hospital length of stay for older patients with a mix of conditions ranged from a reduction of 20 days to a reduction of less than half a day (moderate-certainty evidence, N = 767). It is uncertain whether hospital at home has an effect on cost (very low-certainty evidence).Studies recruiting people undergoing elective surgeryThree studies did not report higher rates of mortality with hospital at home compared with inpatient care (data not pooled, N = 856, low-certainty evidence; mainly orthopaedic surgery). Hospital at home may lead to little or no difference in readmission to hospital for people who were mainly recovering from orthopaedic surgery (N = 1229, low-certainty evidence). We could not establish the effects of hospital at home on the risk of living in institutional care, due to a lack of data. The intervention might slightly improve patient satisfaction (N = 1229, low-certainty evidence). People recovering from orthopaedic surgery allocated to early discharge hospital at home were discharged from the intervention on average four days earlier than people allocated to usual inpatient care (4.44 days earlier, 95% CI 6.37 to 2.51 days earlier, , N = 411, 4 trials, moderate-certainty evidence). It is uncertain whether hospital at home has an effect on cost (very low-certainty evidence). AUTHORS' CONCLUSIONS: Despite increasing interest in the potential of early discharge hospital at home services as a less expensive alternative to inpatient care, this review provides insufficient evidence of economic benefit (through a reduction in hospital length of stay) or improved health outcomes
Physical fitness training for stroke patients
Fitness training is considered beneficial for stroke patients. Physical fitness is important for the performance of everyday activities. The physical fitness of stroke patients is impaired after their stroke and this may reduce their ability to perform everyday activities and also exacerbate any stroke-related disability. This review of 32 trials involving 1414 participants found that cardiorespiratory fitness training after stroke can improve walking performance. There are too few data for other reliable conclusions to be drawn
Development and evaluation of rehabilitation at home after stroke in south-west Stockholm
In Sweden (population 8.8 million) the great majority of patients with
acute stroke are
admitted to hospital. Each year 10 000-12 000 patients develop persistent
disability.
This thesis consists of a set of consecutive studies on: 1) the estimated
need for late
stroke rehabilitation and the basis for such an intervention among
non-institutionalized
individuals in south-west Stockholm (SWS); 2) the feasibility and
health-economic
implications of rehabilitation at home after acute stroke; 3) an
experimental evaluation of
rehabilitation at home for moderately disabled stroke patients.
On the basis of telephone interviews, we estimated the prevalent need for
late stroke
rehabilitation as being at least one per 1000 in SWS. The average
duration of hospital stay
for such patients was 95 days. Social and leisure activities were
identified as the most
promising goals for late rehabilitation programmes. We concluded that
early rehabilitation
in the community, linked to post-acute stroke care with reduction of
hospital stay, would be
functionally and socially advantageous and cost-effective for more than
25% of the incident
stroke cases.
A pilot study of rehabilitation at home after stroke at the Department of
Neurology
at Huddinge Hospital in SWS showed that the target group embraced
patients who were
independent in feeding and continent, had mental function within normal
limits, and
residual motor and/or speech dysfunction one week after acute stroke. The
most important
components of the rehabilitation programme were: I) training at home,
consisting of task-
specific activities, based on the patients' personal interests; 2) one
therapist being selected
as case-manager; 3) education and individual counselling being offered to
all spouses; and
4) emphasis on adherence to structured training between therapy sessions.
Home
rehabilitation patients had a mean duration of hospital stay of 14 days
and on average
received 11 home visits. During the first year after stroke, the average
per capita cost of
health care for these patients was 127 730 SEK, broken down as follows:
hospital care, 50%;
family caregivers, 18%; rehabilitation at home, 10%; out-patient visits
to physicians and
nurses, 9%; home-help service, 7%; auxiliary equipment, 2%; medication,
2%; home
adaptation, 1%; and transportation service, under 1%.
Based on the results of the pilot study, we proposed and conducted a
randomized
controlled trial (on-going and currently at the 3-month follow-up stage)
of rehabilitation at
home for moderately disabled stroke patients. A total of 81 patients were
followed-up at 3
months. Overall, there were no statistically significant differences in
patient outcome.
Multivariate logistic regression suggested a positive effect for the home
rehabilitation group
(HRG) in social activity, activities of daily living, motor capacity,
manual dexterity and
walking. A 52% reduction in bed-days was observed, from 29 days in the
routine
rehabilitation group to 14 days in the HRG, associated with a small
increase (3 visits/patient)
in total number of out-patient visits to physicians and nurses. After
discharge, the mean
number of home visits in the HRG was 10. No major differences in use of
home help, impact
on family caregivers in the form of time devoted to helping the patient
or subjective well-
being of spouses were found. Patient satisfaction favoured the HRG, with
a significant
difference in active participation in rehabilitation programme planning.
The above led us
to conclude that early supported discharge with continuity of
rehabilitation at home could
be the rehabilitation service of choice for the majority of moderately
disabled stroke
patients, provided that follow-up at 6 and 12 months confirm the
suggested enhanced
effectiveness, the considerable reduction in use of health care and low
impact on family
caregivers. Rehabilitation at home after stroke could become an important
component of
stroke units. This research strategy may be useful for developing stroke
rehabilitation in
Scandinavian and other populations.
ISBN 91b28-2328-
Balancing everyday life two years after falling ill with Guillain-Barré syndrome: a qualitative study.
The aim was to describe experiences of disability in everyday life and managing the recovery process two years after falling ill with Guillain-Barré syndrome