The power of feeling seen: perspectives of individuals with eating disorders on receiving validation

Background A common complaint of individuals suffering from mental health conditions is feeling invalidated or misunderstood by care providers. This is notable, given that non-collaborative care has been linked to poor engagement, low motivation and treatment non-adherence. This study examined how receiving validation from care providers is experienced by individuals who have an eating disorder (ED) and the impact of receiving validation on the recovery journey. Methods Eighteen individuals who had an eating disorder for an average duration of 19.1 years (two identifying as male, 16 identifying as female), participated in semi-structured interviews on barriers and facilitators to self-compassion. Seven were fully recovered, and 11 were currently participating in recovery-focused residential treatment. Thematic analysis focused on the meaning and impact of receiving validation to participants. Results Five care provider actions were identified: (i) making time and space for me, (ii) offering a compassionate perspective, (iii) understanding and recognizing my treatment needs, (iv) showing me I can do this, and (v) walking the runway. These were associated with four key experiences (feeling trust, cared for, empowered, and inspired), that participants described as supportive of their recovery. Conclusions This research provides insight into patient perspectives of validation and strategies care providers can use, such as compassionate reframing of difficult life experiences, matching interventions to patient readiness, and modeling vulnerability.Plain English Summary Feeling validated (or feeling understood and accepted) is an important aspect of a patient’s experience with health care providers. The purpose of this research was to learn about the role of validation in eating disorders treatment from patients’ perspectives, and to learn how the experience of validation supports recovery from an eating disorder. In this research, interviews were conducted with eighteen individuals who were either currently seeking intensive treatment for an eating disorder or had recently recovered. Five care provider actions were identified as engendering feelings of validation: (i) making time and space for me, (ii) offering a compassionate perspective, (iii) understanding and recognizing my treatment needs, (iv) showing me I can do this, and (v) walking the runway. These actions were associated with four key patient experiences: feeling trust, cared for, empowered, and inspired. Recommendations for care providers to practice validation are made based on study findings.Medicine, Faculty ofPsychiatry, Department ofReviewedFacult

Self-compassion and its barriers: predicting outcomes from inpatient and residential eating disorders treatment

Background: Individuals with eating disorders (EDs) experience barriers to self-compassion, with two recently identified in this population: Meeting Standards, or concerns that self-compassion would result in showing flaws or lead to loss of achievements or relationships, and Emotional Vulnerability, or concerns that self-compassion would elicit difficult emotions such as grief or anger. This exploratory study examined the utility of self-compassion and two barriers to self-compassion in predicting clinical outcomes in intensive ED treatments. Method: Individuals in inpatient (n = 87) and residential (n = 68) treatment completed measures of self-compassion and fears of self-compassion, and ten clinical outcome variables at pre- and post-treatment. Results: Pre-treatment self-compassion was generally not associated with outcomes, whereas pre-treatment selfcompassion barriers generally were. In both treatment settings, fewer Emotional Vulnerability barriers were associated with improved interpersonal/affective functioning and quality of life, and fewer Meeting Standards barriers were associated with improved readiness and motivation. Interestingly, whereas Meeting Standards barriers were associated with less ED symptom improvement in inpatient treatment, Emotional Vulnerability barriers were associated with less ED symptom improvement in residential treatment. Conclusions: Given that few longitudinal predictors of outcome have been established, the finding that pre-treatment barriers to self-compassion predict outcomes in both inpatient and residential settings is noteworthy. Targeting self-compassion barriers early in treatment may be helpful in facilitating ED recovery. Keywords: Self-compassion, Fear of self-compassion, Barriers to self-compassion, Eating disorders, Treatment Plain English summary Self-compassion is associated with a number of positive health indicators and has been shown to support recovery from an eating disorder. This exploratory study examined whether self-compassion and barriers to self-compassion predict clinical outcomes in inpatient and residential eating disorders treatment settings. Whereas self-compassion was rarely associated with outcome, self-compassion barriers were associated with the majority of variables investigated. Given that few longitudinal predictors have been established in this field, the relation between barriers to self-compassion and outcome in both inpatient and residential settings is noteworthy. Targeting self-compassion barriers early in treatment may be helpful in facilitating eating disorder recovery.Arts and Social Sciences, Irving K. Barber Faculty of (Okanagan)Medicine, Faculty ofNon UBCPsychiatry, Department ofPsychology, Department of (Okanagan)ReviewedFacultyResearche

The Short Treatment Allocation Tool for Eating Disorders : current practices in assigning patients to level of care

The Short Treatment Allocation Tool for Eating Disorders (STATED) is a new evidence-based algorithm developed to match patients to the most clinically appropriate and cost-effective level of care (Geller et al., 2016). The objective of this research was to examine the extent to which current practices are in alignment with STATED recommendations. Method: Participants were 179 healthcare professionals providing care for youth and/or adults with eating disorders. They completed an online survey and rated the extent to which three patient dimensions (medical stability, symptom severity, and readiness) were used in assigning patients to each of five levels of care. Results: The majority of analyses testing a priori hypotheses based on the STATED were statistically significant (all p’s < .001), in the direction of STATED recommendations. However, a strict coding scheme evaluating the extent to which ratings were fully consistent with the STATED showed inconsistency rates ranging from 17 to 55% across the five levels of care, with the greatest inconsistencies involving the use of readiness information, and the lowest involving the use of medical stability information. Discussion: Although practices were generally aligned with the STATED recommendations, readiness information was used least consistently in assigning patients to level of care.Arts and Sciences, Irving K. Barber School of (Okanagan)Medicine, Faculty ofOther UBCNon UBCPsychiatry, Department ofPsychology, Department of (Okanagan)ReviewedFacult

The readiness and motivation interview for families (RMI-Family) managing pediatric obesity: study protocol

Background: Experts recommend that clinicians assess motivational factors before initiating care for pediatric obesity. Currently, there are no well-established clinical tools available for assessing motivation in youth with obesity or their families. This represents an important gap in knowledge since motivation-related information may shed light on which patients might fail to complete treatment programs. Our study was designed to evaluate the measurement properties and utility of the Readiness and Motivational Interview for Families (RMI-Family), a structured interview that utilizes a motivational interviewing approach to (i) assess motivational factors in youth and their parents, and (ii) examine the degree to which motivation and motivation-related concordance between youth and parents are related to making changes to lifestyle habits for managing obesity in youth. Methods: From 2016 to 2020, this prospective study will include youth with obesity (body mass index [BMI] ≥97th percentile; 13–17 years old; n = 250) and their parents (n = 250). The study will be conducted at two primary-level, multidisciplinary obesity management clinics based at children’s hospitals in Alberta, Canada. Participants will be recruited and enrolled after referral to these clinics, but prior to initiating clinical care. Each youth and their parent will complete the RMI-Family (~1.5 h) at baseline, and 6- and 12-months post-baseline. Individual (i.e., youth or parent) and family-level (i.e., across youth and parent) responses to interview questions will be scored, as will aspects of interview administration (e.g., fidelity to motivational interviewing tenets). The RMI-Family will also be examined for test-retest reliability. Youth data collected at each time point will include demography, anthropometry, lifestyle habits, psychosocial functioning, and health services utilization. Cross-sectional and longitudinal associations between individual and family-level interview scores on the RMI-Family and these clinical measures will be examined. Discussion: As a measurement tool drawing on family-centered care and motivational interviewing, the RMI-Family was designed to increase understanding of the role of motivational factors in pediatric obesity management, allowing healthcare providers and policymakers to manage pediatric obesity more effectively and efficiently. Findings will help to create an innovative, tailored model of health care delivery that uses resources judiciously and is designed to best meet families’ needs.Medicine, Faculty ofOther UBCNon UBCPopulation and Public Health (SPPH), School ofPsychiatry, Department ofReviewedFacult

Additional file 2: of The readiness and motivation interview for families (RMI-Family) managing pediatric obesity: study protocol

The RMI-Family Scoring template. A scoring template to calculate individual- and family-level motivation and concordance. (DOCX 116 kb