Public Interest in Medical Research Participation: Differences by Volunteer Status and Study Type

Purpose We assessed national levels of public interest in medical research participation (MRP) and factors associated with interest as a healthy volunteer; as a diagnosed volunteer; and in seven study types. Method Cross‐sectional, Web‐based survey of the US population in June 2012. Descriptive statistics estimated interest in MRP and multivariable logistic regression determined associations between respondent‐level predictors and interest in MRP. Results Of 2,668 respondents (response rate = 61%), 41% were interested in MRP as healthy volunteers and 60% as diagnosed volunteers. Respondents with some college (OR = 1.54, 1.09–2.19) or higher education (OR = 1.86, 1.29–2.70) had higher adjusted odds of interest as healthy volunteers. Non‐Hispanic black race (OR = 0.56, 0.37–0.86) and education below high school (OR = 0.57, 0.35–0.92) were associated with lower adjusted odds of interest as diagnosed volunteers. Non‐Hispanic black race was associated with lower odds of interest in medication trials as diagnosed volunteers (OR = 0.61, 0.40–0.93). Conclusions We found high levels of interest in MRP that contrast with low levels of prior research participation. Interest is higher in medical research involving noninvasive designs. Comparatively lower levels of interest in MRP among non‐Hispanic blacks and those with less education raise concerns about disparities in future study enrollment.Peer Reviewedhttp://deepblue.lib.umich.edu/bitstream/2027.42/106963/1/cts12142.pd

Loneliness and Health

The National Poll on Healthy Aging shows many older adults, especially those with health issues, feel isolated.AARPMichigan MedicineInstitute for Healthcare Policy & Innovationhttps://deepblue.lib.umich.edu/bitstream/2027.42/148147/1/NPHA_Loneliness-Report_FINAL-022619.pdfhttps://deepblue.lib.umich.edu/bitstream/2027.42/148147/3/NPHA_Loneliness-Report_FINAL-030419.pdfDescription of NPHA_Loneliness-Report_FINAL-022619.pdf : March 2019 report: Loneliness and HealthDescription of NPHA_Loneliness-Report_FINAL-030419.pdf : Report - Final Version w/DO

Logging In: Using Patient Portals to Access Health Information

https://deepblue.lib.umich.edu/bitstream/2027.42/145683/6/0085_NPHA_Patient-Portal-Report_updated-110118.pdfhttps://deepblue.lib.umich.edu/bitstream/2027.42/145683/2/10_June-2018-Patient-Portal-Report-Qs_052518.pdfhttps://deepblue.lib.umich.edu/bitstream/2027.42/145683/1/Portals FINAL.pdfDescription of 0085_NPHA_Patient-Portal-Report_updated-110118.pdf : Poll ReportDescription of 10_June-2018-Patient-Portal-Report-Qs_052518.pdf : Poll QuestionsDescription of Portals FINAL.pdf : Press Releas

Public Interest in Medical Research Participation: Does It Matter if Patients or Community Members Have Helped Design the Study?

PurposeWe determined national levels of public participation in medical research study design. We compared public interest in medical research participation (MRP) in studies overall, versus studies explicitly designed with public involvement.MethodCross‐sectional household survey of US population in June 2013. Descriptive statistics estimated participation in medical research study design. Chi‐square test compared levels of interest in MRP if respondent knew patients or community members helped design the study.ResultsOf 2,048 respondents (participation rate 60%), 5% knew someone who had helped design a medical research study. There was no association between having known someone or personal participation in study design and willingness to engage in MRP. Although the overall proportion of respondents who would consider MRP initially (51%) was similar to the proportion who would consider MRP with community member involvement in study design (49%), the changes in respondents' views across the different scenarios were significantly greater than what would have been expected by chance.ConclusionsWe found similar levels of interest in MRP whether or not the public is involved in medical research study design. This finding may indicate that public involvement in study design, like community‐based participatory research, may not affect overall rates of MRP.Peer Reviewedhttp://deepblue.lib.umich.edu/bitstream/2027.42/115983/1/cts12278.pd

Vision and Eye Care in Older Adults

https://deepblue.lib.umich.edu/bitstream/2027.42/145685/1/NPHA_Vision-Report_FINAL-082718.pdfhttps://deepblue.lib.umich.edu/bitstream/2027.42/145685/2/12_September-2018-Vision-Report-Qs_083018.pd

Health Insurance Decision-Making Near Retirement

https://deepblue.lib.umich.edu/bitstream/2027.42/146766/1/NPHA-Health-Insurance-Report_FINAL_v2-122018.pd

Urinary Incontinence: An Inevitable Part of Aging?

https://deepblue.lib.umich.edu/bitstream/2027.42/146144/1/NPHA_Incontinence-Report_FINAL-102318.pdfhttps://deepblue.lib.umich.edu/bitstream/2027.42/146144/3/NPHA_Incontinence-Report_FINAL-110118.pdfDescription of NPHA_Incontinence-Report_FINAL-102318.pdf : ReportDescription of NPHA_Incontinence-Report_FINAL-110118.pdf : Half of women over 50 experience incontinence, but most haven’t talked to a doctor

Older Adults' Views on Genetic Testing

https://deepblue.lib.umich.edu/bitstream/2027.42/145710/1/NPHA_Genetic-Testing-Report_092518-FINAL.pdfhttps://deepblue.lib.umich.edu/bitstream/2027.42/145710/2/13_October-2018-Genetic-Testing-Report-Qs_092018.pd

Older Adults' Experiences with Opioid Prescriptions

https://deepblue.lib.umich.edu/bitstream/2027.42/145684/1/NPHA-Opioids-Report_072518.pdfhttps://deepblue.lib.umich.edu/bitstream/2027.42/145684/2/11_July-August-2018-Opioid-Report-Qs_071218.pd

Drug Interactions: How to Avoid Them

https://deepblue.lib.umich.edu/bitstream/2027.42/139881/1/NPHA_Drug-Interactions-Report_111417.pdfhttps://deepblue.lib.umich.edu/bitstream/2027.42/139881/2/Druginteraction poll release 11 20.docxDescription of NPHA_Drug-Interactions-Report_111417.pdf : December 2017, Full ReportDescription of Druginteraction poll release 11 20.docx : December 2017, Press Releas