Development and Feasibility of a Structured Goals of Care Communication Guide

BackgroundDiscussing goals of care and advance care planning is beneficial, yet how to best integrate goals of care communication into clinical care remains unclear.ObjectiveTo develop and determine the feasibility of a structured goals of care communication guide for nurses and social workers.Design/setting/subjectsDevelopmental study with providers in an academic and Veterans Affairs (VA) health system (n = 42) and subsequent pilot testing with patients with chronic obstructive pulmonary disease or heart failure (n = 15) and informal caregivers (n = 4) in a VA health system. During pilot testing, the communication guide was administered, followed by semistructured, open-ended questions about the content and process of communication. Changes to the guide were made iteratively, and subsequent piloting occurred until no additional changes emerged.MeasurementsProvider and patient feedback to the communication guide.ResultsIterative input resulted in the goals of care communication guide. The guide included questions to elicit patient understanding of and attitudes toward the future of illness, clarify values and goals, identify end-of-life preferences, and agree on a follow-up plan. Revisions to guide content and phrasing continued during development and pilot testing. In pilot testing, patients validated the importance of the topic; none said the goals of care discussion should not be conducted. Patients and informal caregivers liked the final guide length (∼30 minutes), felt it flowed well, and was clear.ConclusionsIn this developmental and pilot study, a structured goals of care communication guide was iteratively designed, implemented by nurses and social workers, and was feasible based on administration time and acceptability by patients and providers

Home-Based Primary Care’s Role in Supporting the Older Old During Wildfires

Objectives: There is limited understanding of how Home-Based Primary Care (HBPC) programs support their medically complex patients in event of a disaster. This study aimed to identify emergency preparedness protocols and procedures undertaken in advance of and due to the 2017 Northern California wildfires by staff of the Veterans Health Administration (VA) HBPC programs. Methods: This study examines the experiences and responses of two VA HBPC programs to the 2017 Northern California wildfires. Six phone interviews were conducted from July to August 2018. The interview protocol addressed agency preparedness policies and procedures, continuity of care after the wildfires, as well as facilitators and barriers to disaster response. Results: The total patient census of participating HBPC programs was 300. Neither HBPC program reported a loss of life due to the wildfires. Early patient preparedness, effective leadership support, and strength of program operating procedures emerged as key factors to effective response. Conclusions: Demand for home health care, like VA’s HBPC program, is projected to grow as the number of older adults and longevity increases. Emergency management efforts must likewise evolve to address the unique needs of these vulnerable patients in disasters. Understanding the program activities conducted by the VA HBPC programs in response to the 2017 Northern California wildfires can help improve the understanding of how VA and non-VA home-based care programs can be best integrated into resilience planning of local communities

Development and Feasibility of a Structured Goals of Care Communication Guide.

BackgroundDiscussing goals of care and advance care planning is beneficial, yet how to best integrate goals of care communication into clinical care remains unclear.ObjectiveTo develop and determine the feasibility of a structured goals of care communication guide for nurses and social workers.Design/setting/subjectsDevelopmental study with providers in an academic and Veterans Affairs (VA) health system (n = 42) and subsequent pilot testing with patients with chronic obstructive pulmonary disease or heart failure (n = 15) and informal caregivers (n = 4) in a VA health system. During pilot testing, the communication guide was administered, followed by semistructured, open-ended questions about the content and process of communication. Changes to the guide were made iteratively, and subsequent piloting occurred until no additional changes emerged.MeasurementsProvider and patient feedback to the communication guide.ResultsIterative input resulted in the goals of care communication guide. The guide included questions to elicit patient understanding of and attitudes toward the future of illness, clarify values and goals, identify end-of-life preferences, and agree on a follow-up plan. Revisions to guide content and phrasing continued during development and pilot testing. In pilot testing, patients validated the importance of the topic; none said the goals of care discussion should not be conducted. Patients and informal caregivers liked the final guide length (∼30 minutes), felt it flowed well, and was clear.ConclusionsIn this developmental and pilot study, a structured goals of care communication guide was iteratively designed, implemented by nurses and social workers, and was feasible based on administration time and acceptability by patients and providers

Psychological Impact of the COVID-19 Pandemic on Long-Term Care Staff Using a Social Ecological Framework: A Scoping Review

The purpose of this review is to map the research targeting psychological stress, coping, and wellness among long-term care (LTC) staff throughout the COVID-19 pandemic onto a social ecology (SE) model with the goals of: (1) identifying areas in need of more research, and (2) consolidating evidence that can guide multi-level interventions. A SE framework was chosen because of the various organizational and societal stressors that likely impact LTC staff psychological experiences and wellness (Chamberlain et al., 2017; Cohen-Mansfield, 1995). Further, for populations experiencing disparities, such as LTC staff (PHI, 2019), multi-level interventions are recommended (Castillo & Harris, 2021). Ultimately, findings may be used to inform intervention designed to address psychological wellness among LTC, an important component of healing and growing from the COVID-19 pandemic. We are unaware of a previous review that applies this framework to review studies related to the psychological experience of LTC staff at multiple SE levels