43 research outputs found
Adolescentsâ and young peopleâs needs and preferences for support when living with a parent with life-threatening cancer: a grounded theory study
Background: Living with a parent facing life-threatening illness and losing a mom or dad at a young age can cause both short- and long-term health problems. Without satisfactory support, adolescentsâ and young people are at risk of developing low self-esteem, behavioural difficulties (e.g., anger and aggression), long-term illness or premature death caused by severe mental illness, substance abuse, self-harm and suicide attempts. The aim of this study was to explore adolescentsâ and young peopleâs needs and preferences for support as they live with a parent with life-threatening cancer.
Methods: Qualitative interviews were conducted with 10 respondents (17â24âyears) in Norway and Sweden. Data were analysed through grounded theory according to Charmaz.
Results: Adolescentsâ and young peoplesâ needs and preferences for support were described through the main category âTo feel safe and secure and to be preparedâ and further broken down into five subcategories âRelationships in the immediate familyâbalancing support and protectionâ; âThe social networkâsupport and normalcy in a carefully selected groupâ; âMaintaining everyday lifeâchallenges in school and working lifeâ; âThe right support at the right timeâcompetence, trust and continuity in meeting health care professionalsâ; and âSupport outside the homeâan opportunity for full transparencyâ.
Conclusion: Adolescentsâ and young peoplesâ preferences for support when living with a parent facing life-threatening illness are individual and unique, but they share a common need to feel safe and secure and to be prepared.
Adolescents and young people express that they primarily want support from parents and friends, but they also want support from health care professionals, especially in situations when the ill parent becomes worse. Therefore, it is of the utmost importance for health care professionals to identify the most vulnerable adolescents and young people by mapping their social networks and paying extra attention to their needs for support when there is deterioration in the parentâs illness state. This study also highlights the importance for health care professionals to establish a good relationship with adolescents and young people to meet their needs and preferences for support. In addition, information and support are needed in a timely manner and adapted to the life-threatening ill parentâs illness state and individualâs needs and preferences to optimise preparedness.publishedVersio
Adolescentsâ and young peopleâs needs and preferences for support when living with a parent with life-threatening cancer: a grounded theory study
Background Living with a parent facing life-threatening illness and losing a mom or dad at a young age can cause both short- and long-term health problems. Without satisfactory support, adolescentsâ and young people are at risk of developing low self-esteem, behavioural difficulties (e.g., anger and aggression), long-term illness or premature death caused by severe mental illness, substance abuse, self-harm and suicide attempts. The aim of this study was to explore adolescentsâ and young peopleâs needs and preferences for support as they live with a parent with life-threatening cancer. Methods Qualitative interviews were conducted with 10 respondents (17â24âyears) in Norway and Sweden. Data were analysed through grounded theory according to Charmaz. Results Adolescentsâ and young peoplesâ needs and preferences for support were described through the main category âTo feel safe and secure and to be preparedâ and further broken down into five subcategories âRelationships in the immediate familyâbalancing support and protectionâ; âThe social networkâsupport and normalcy in a carefully selected groupâ; âMaintaining everyday lifeâchallenges in school and working lifeâ; âThe right support at the right timeâcompetence, trust and continuity in meeting health care professionalsâ; and âSupport outside the homeâan opportunity for full transparencyâ. Conclusion Adolescentsâ and young peoplesâ preferences for support when living with a parent facing life-threatening illness are individual and unique, but they share a common need to feel safe and secure and to be prepared. Adolescents and young people express that they primarily want support from parents and friends, but they also want support from health care professionals, especially in situations when the ill parent becomes worse. Therefore, it is of the utmost importance for health care professionals to identify the most vulnerable adolescents and young people by mapping their social networks and paying extra attention to their needs for support when there is deterioration in the parentâs illness state. This study also highlights the importance for health care professionals to establish a good relationship with adolescents and young people to meet their needs and preferences for support. In addition, information and support are needed in a timely manner and adapted to the life-threatening ill parentâs illness state and individualâs needs and preferences to optimise preparedness.publishedVersio
Spatio-temporal composition and dynamics of zooplankton in the Kalmar Sound (western Baltic Sea) in 2009-2010
In pelagic food webs, zooplankton is the link between lower and higher trophic levels. It is thus essential to know how the zooplankton community structure varies with its environment. We investigated the seasonal and spatial variation in the zooplankton diversity and community structure during two consecutive years in the Kalmar Sound, along the Swedish east coast, an area with a strong bathymetric gradient and of high ecological importance for e.g. commercial fish species. Two zooplankton communities were identified in the area: a coastal/estuarine community in the south and an open-water community in the north. They were separated mainly by differing salinity and temperature conditions. Biodiversity increased from spring to autumn and was higher in the open waters. © 2014.C. DĂaz-Gil, M. Werner, O. Lövgren, O. Kaljuste and M. Casini were partially funded by the Swedish PLAN FISH project, financed by the Swedish Environmental Protection Agency and the Swedish Agency for Marine and Water Management. C. DĂaz-Gil was also funded by the EU Erasmus Program for international mobility of studentsPeer Reviewe
Spatio-temporal composition and dynamics of zooplankton in the Kalmar Sound (western Baltic Sea) in 2009â2010
In pelagic food webs, zooplankton is the link between lower and higher trophic levels. It is thus essential to know how the zooplankton community structure varies with its environment. We investigated the seasonal and spatial variation in the zooplankton diversity and community structure during two consecutive years in the Kalmar Sound, along the Swedish east coast, an area with a strong bathymetric gradient and of high ecological importance for e.g. commercial fish species. Two zooplankton communities were identified in the area: a coastal/estuarine community in the south and an open-water community in the north. They were separated mainly by differing salinity and temperature conditions. Biodiversity increased from spring to autumn and was higher in the open waters
Saknar dig! : Till dig som förlorat ett syskon i cancer
den hÀr skriften ingÄr i Barncancerfondens skriftserie dÀr vi tar upp olika typer av barncancer, behandlingar och annat som berör barn med cancer och deras familjer. Tanken med skriften Àr att ge stöd till dig som förlorat en bror eller syster i cancer.Informationsskrift frÄn Barncancerfonden framtagen i samarbete med Malin Lövgren.</p
NÀr det vÀrsta har hÀnt : Hur förÀldrar kan stötta syskon som mist
Den hÀr skriften ingÄr i Barncancerfondens skriftserie dÀr vi tar upp olika typer av barncancer, behandlingar och annat som berör barn med cancer och deras familjer. Syftet med skriften Àr att ge förÀldrar stöd i hur de kan möta syskon som mist en bror eller syster i cancer.Informationsskrift frÄn Barncancerfonden framtagen i samarbete med Malin Lövgren.</p
Symtom, besvÀr och tid hos kvinnor och mÀn med lungcancer
Background: Many patients with lung cancer (LC) are diagnosed in late
cancer stages, with palliative needs due to symptom burden. Although LC
is increasing in women, few studies have focused on gender-related
differences in symptoms and other concerns. One aim of this thesis was
therefore to examine symptoms and other issues potentially causing
distress in men and women with LC (sub-study I-III) and how well these
issues are assessed by commonly used assessment instruments (sub-study
III). As this patient group generally has short survival times, a further
aim was to examine potential delays in the care trajectory (sub-study I)
as well as how these patients experienced time during their first year
with LC (sub-study IV). Methods: Sub-study I was based on data from
medical records and included 314 patients with LC. Sub-study II-IV
included patients with inoperable LC, using data derived from EORTC QLQ
C- 30+LC13 (sub-study II) (N=159), an open question: what do you
perceive as most distressing at present? (sub-study III) (N=343) and
qualitative interviews with 35 patients (sub-study IV). Analysis
strategies included descriptive and inferential statistics (sub-study
I-III), as well as content analysis (sub-study III-IV). Results: Patients
reported many, varied and intense symptoms at all time-points studied.
Patients also reported many issues which were distressing during their
first year with LC. Most of these concerns could be related to somatic
and psychosocial problems, but 27% of the patients also reported concerns
categorized as related to contact with the health care system (HCS) as
causing most distress for them at some point during their first year with
LC. Men and women generally reported similar symptoms and other concerns.
Those differences which were found between men and women were often
psychosocial and were reported more often by women close to diagnosis.
Differences were not always related to sex alone but also to other
factors in the patients life situation, such as age, education and civil
status. Women <65 years reported more problems related to contact with
the HCS. Between 55-59% of all distressing concerns reported in response
to an open question were judged as being clearly assessed by three
self-reported instruments commonly used for cancer patients. The results
also showed extensive time intervals in the care trajectory for these
patients, often in excess of recommendations by the Swedish LC study
group. Patients described experiencing a lack of time in the HCS leading
to long waiting times, limited time for patient-professional contact and
poor coordination with risk for errors. Waiting both caused and
reinforced the uncertainty inherent in patients situations. Limited time
for patient-professional contacts was equated with little care for the
person, rather than the LC case . Patients also described existential
aspects of their changed perception of time including a re-evaluation of
their future and reprioritization of their use of time. Conclusion: This
thesis clarifies a need for a more efficient LC care trajectory. More
systematic assessment and management of patients concerns is also
needed. Problems related to contact with the HCS should be highlighted in
both research and clinical practice. This thesis further indicates the
need for time for care that is relational and unpredictable. Patients
ways of viewing and prioritizing time during this severe sickness can be
seen as being in conflict with how the HCS allocated time to patients.
Even if this thesis highlights similarities and differences in symptoms
and other concerns between women and men with LC, there is still a need
of research about what these problems mean for men and women with LC in
their daily life
Jag dÄ! : Till dig som har ett syskon med cancer
Den hÀr skriften ingÄr i Barncancerfondens skriftserie dÀr vi tar upp olika typer av barncancer, behandlingar och annat som berör barn med cancer och deras familjer. Den hÀr skriften vÀnder sig till dig som har en bror eller syster med cancer och Àr tÀnkt att ge stöd, nÀr livet stÀlls pÄ Ànda.Informationsskrift frÄn Barncancerfonden framtagen i samarbete med Malin Lövgren.</p