Towards Cross-Provider Analysis of Transparency Information for Data Protection

Transparency and accountability are indispensable principles for modern data protection, from both, legal and technical viewpoints. Regulations such as the GDPR, therefore, require specific transparency information to be provided including, e.g., purpose specifications, storage periods, or legal bases for personal data processing. However, it has repeatedly been shown that all too often, this information is practically hidden in legalese privacy policies, hindering data subjects from exercising their rights. This paper presents a novel approach to enable large-scale transparency information analysis across service providers, leveraging machine-readable formats and graph data science methods. More specifically, we propose a general approach for building a transparency analysis platform (TAP) that is used to identify data transfers empirically, provide evidence-based analyses of sharing clusters of more than 70 real-world data controllers, or even to simulate network dynamics using synthetic transparency information for large-scale data-sharing scenarios. We provide the general approach for advanced transparency information analysis, an open source architecture and implementation in the form of a queryable analysis platform, and versatile analysis examples. These contributions pave the way for more transparent data processing for data subjects, and evidence-based enforcement processes for data protection authorities. Future work can build upon our contributions to gain more insights into so-far hidden data-sharing practices.Comment: technical repor

Spielformen im Spielfilm : zur Medienmorphologie des Kinos nach der Postmoderne

Die aktuelle Konjunktur exzentrischen Erzählens im gegenwärtigen Kino ist längst nicht mehr bloß die Illustration einer condition postmoderne, sie verweist vielmehr auf die Hybridisierung von Erzählung und Spiel im digitalen Medienumbruch. Insbesondere im massenattraktiven Spielfilm stehen nicht mehr die selten gewordenen Identifikationsofferten im Zentrum des Interesses und die Zuschauer sorgen sich auch nicht um Interpretationshypothesen, sondern sie finden Vergnügen an Erzählrätseln und verfolgen neugierig das Spiel mit unterschiedlichen Plotvarianten oder paradoxalen Welten. In den Beiträgen dieses Bandes werden Formen dieser Hybridisierung exemplarisch aufgeschlüsselt und genealogisch nachvollzogen

The management of acute venous thromboembolism in clinical practice - study rationale and protocol of the European PREFER in VTE Registry

Background: Venous thromboembolism (VTE) is a major health problem, with over one million events every year in Europe. However, there is a paucity of data on the current management in real life, including factors influencing treatment pathways, patient satisfaction, quality of life (QoL), and utilization of health care resources and the corresponding costs. The PREFER in VTE registry has been designed to address this and to understand medical care and needs as well as potential gaps for improvement. Methods/design: The PREFER in VTE registry was a prospective, observational, multicenter study conducted in seven European countries including Austria, France Germany, Italy, Spain, Switzerland, and the UK to assess the characteristics and the management of patients with VTE, the use of health care resources, and to provide data to estimate the costs for 12 months treatment following a first-time and/or recurrent VTE diagnosed in hospitals or specialized or primary care centers. In addition, existing anticoagulant treatment patterns, patient pathways, clinical outcomes, treatment satisfaction, and health related QoL were documented. The centers were chosen to reflect the care environment in which patients with VTE are managed in each of the participating countries. Patients were eligible to be enrolled into the registry if they were at least 18 years old, had a symptomatic, objectively confirmed first time or recurrent acute VTE defined as either distal or proximal deep vein thrombosis, pulmonary embolism or both. After the baseline visit at the time of the acute VTE event, further follow-up documentations occurred at 1, 3, 6 and 12 months. Follow-up data was collected by either routinely scheduled visits or by telephone calls. Results: Overall, 381 centers participated, which enrolled 3,545 patients during an observational period of 1 year. Conclusion: The PREFER in VTE registry will provide valuable insights into the characteristics of patients with VTE and their acute and mid-term management, as well as into drug utilization and the use of health care resources in acute first-time and/or recurrent VTE across Europe in clinical practice. Trial registration: Registered in DRKS register, ID number: DRKS0000479