1,239 research outputs found

    Carers of people affected by cancer and other long-term conditions at end of life: a qualitative study of providing a bespoke package of support in a rural setting

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    Background: A UK charity, Macmillan Cancer Support has funded a local intervention, whereby carers of people affected by cancer and other long-term conditions at end of life are offered a bespoke package of support. Aim: This short report describes the qualitative experiences of carers in receipt of the intervention. Design: Qualitative research utilising in-depth interviews. Discussions were digitally recorded and transcribed verbatim. Data were analysed using thematic analysis. Setting/participants: Participants were carers (n = 10) in receipt of the intervention. Interviews were conducted between August and September 2014 in Lincolnshire (England). Results: Five themes from the interviews were identified: (1) Awareness and advertising, (2) focus of support on the carer, (3) modes of communication, (4) personal attributes and skills of the support worker (5) streamlining and signposting. Conclusion: The intervention was successful within a social care setting. The participants had no overtly negative opinions on the service in its current format and all held it in high regard. Carers felt a sense of reassurance from having background support and maintained that their situation would have been worse had this support not been there

    A historical Southern Ocean climate dataset from whaling ships’ logbooks

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    Historical ship logbooks provide vital historic meteorological observations in the Southern Ocean, one of the largest climate-data deficient regions on the Earth. Christian Salvesen Whaling Company logbooks from whaling ships operating in the Southern Ocean, starting from the 1930s through the 1950s, are examined. Meteorological information contained in these logbooks has been extracted to produce a historical climate dataset. We discuss various instructions recommended by the British Admiralty to observe and record weather conditions on board whaling ships. Statistical tests were used to flag erroneous values and corrections were made using neighbouring values. Meteorological parameters such as air pressure, air and sea temperature and wind force on the Beaufort scale were standardised, converting imperial to metric units. The data were structured according to the internationally accepted International Maritime Meteorological Archive (IMMA) format, which includes the most commonly reported meteorological variables, including the time, location, and ship-related meta-data. Hence, a readily accessible, error-corrected and standardised historical climate dataset of the Weddell Sea sector of the Southern Ocean is presented

    ‘The show must go on!’ Fieldwork, mental health and wellbeing in Geography, Earth and Environmental Sciences

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    Fieldwork is central to the identity, culture and history of academic Geography, Earth and Environmental Sciences (GEES). However, in this paper we recognise that, for many academic staff, fieldtrips can be a profoundly challenging “ordeal,” ill‐conducive to wellness or effective pedagogic practice. Drawing on research with 39 UK university‐based GEES academics who self‐identify as having a mental health condition, we explore how mental health intersects with spaces and expectations of fieldwork in Higher Education. We particularly focus on their accounts of undertaking undergraduate residential fieldtrips and give voice to these largely undisclosed experiences. Their narratives run counter to normative, romanticised celebrations of fieldwork within GEES disciplines. We particularly highlight recurrent experiences of avoiding fieldwork, fieldwork‐as‐ ordeal, and “coping” with fieldwork, and suggest that commonplace anxieties within the neoliberal academy – about performance, productivity, fitness‐to‐work, self‐presentation, scrutiny and fear‐of‐falling‐behind – are felt particularly intensely during fieldwork. In spite of considerable work to make fieldwork more accessible to students, we find that field‐based teaching is experienced as a focal site of distress, anxiety and ordeal for many GEES academics with common mental health conditions. We conclude with prompts for reflection about how fieldwork could be otherwise

    "When you haven't got much of a voice": An evaluation of the quality of Independent Mental Health Advocate (IMHA) Services in England

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    Advocacy serves to promote the voice of service users, represent their interests and enable participation in decision-making. Given the context of increasing numbers of people detained under the Mental Health Act and heightened awareness of the potential for neglect and abuse in human services, statutory advocacy is an important safeguard supporting human rights and democratising the social relationships of care. This article reports findings from a national review of Independent Mental Health Advocate (IMHA) provision in England. A qualitative study used a two-stage design to define quality and assess the experience and impact of IMHA provision in eight study sites. A sample of 289 participants – 75 focus group participants and 214 individuals interviewed – including 90 people eligible for IMHA services, as well as advocates, a range of hospital and community-based mental health professionals, and commissioners. The research team included people with experience of compulsion. Findings indicate that the experience of compulsion can be profoundly disempowering, confirming the need for IMHA. However, access was highly variable and more problematic for people with specific needs relating to ethnicity, age and disability. Uptake of IMHA services was influenced by available resources, attitude and understanding of mental health professionals, as well as the organisation of IMHA provision. Access could be improved through a system of opt-out as opposed to opt-in. Service user satisfaction was most frequently reported in terms of positive experiences of the process of advocacy rather than tangible impacts on care and treatment under the Mental Health Act. IMHA has the potential to significantly shift the dynamic so that service users have more of a voice in their care and treatment. However, a shift is needed from a narrow conception of statutory advocacy as safeguarding rights to one emphasising self-determination and participation in decisions about care and treatment

    Fire Retardant Textiles

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