14 research outputs found
Quality of life in individuals with cervical dystonia before botulinum toxin injection in a Brazilian tertiary care hospital
Obstetrical outcome valuations by patients, professionals, and laypersons: Differences within and between groups using three valuation methods
Background: Decision-making can be based on treatment preferences of the patient, the doctor, or by guidelines based on lay people's preferences. We compared valuations assigned by three groups: patients, obstetrical care professionals, and laypersons, for health states involving both mother and (unborn) child. Our aim was to compare the valuations of different groups using different valuation methods and complex obstetric health outcome vignettes that involve both maternal and neonatal ou
The physical, social and emotional aspects are the most affected in the quality of life of the patients with cervical dystonia
Quality of life in patients with craniocervical dystonia: Italian validation of the âCervical Dystonia Impact Profile (CDIP-58)â and the âCraniocervical Dystonia Questionnaire (CDQ-24)â
Dystonia is a disabling and disfiguring disorder
that can often affect many aspects of patientsâ daily lives, and
lower their self-esteem. To date, quality of life (QoL) has
been assessed in dystonic patients using generic measures
that do not address the specific problems of this diagnostic
group. Recently, two disease-specific scales ââThe Cervical
Dystonia Impact Profile (CDIP-58)ââ and the ââCraniocervical
Dystonia Questionnaire (CDQ-24)ââ were validated for
measuring QoL in craniocervical dystonia patients. No disease-
specific scales for QoL for dystonic patients are currently
available in Italian. The aim of our study was to
produce and validate the Italian version of the CDIP-58 and
CDQ-24. We obtained the Italian version of CDQ-24 and
CDIP-58 with a back-translation design. Both scales were
applied to a population of 94 craniocervical dystonia patients
along with the Short Form 36 health-survey questionnaire
(SF-36), both before and 4 weeks after botulinum toxin
therapy. A group of 65 controls matched for sex, age and
comorbidity underwent the SF-36. Internal consistency was
satisfactory for all subscales. Both the CDIP-58 and CDQ-24
showed moderate to high correlations with similar items of
the SF-36. Sensitivity to change was confirmed by highly
significant improvements in all CDQ-24 subscales and by
moderate improvements in three out of eight CDIP-58 subscales
and total score. This is the first Italian study on QoL in
dystonia patients. We validated the Italian version of two
disease-specific questionnaires to evaluate QoL in craniocervical
dystonia patients. These scales could be useful for
both clinical practice and clinical trials