Pårørendes erfaringer fra møte med helsevesenet i Strømstad og Fredrikstad : en beskrivende/utforskende studie

Sammendrag Strømstad og Fredrikstad kommune har et samarbeidsprosjekt med navn ” Den røde tråden i demensomsorgen”. Prosjektet beskrives som en forstudie om den demenssyke og pårørendes vei gjennom ”helsetjenesten”. Prosjektet har som mål å forbedre demensomsorgen og består av to undersøkelser. Det er kun en del som presenteres her. Undersøkelsen har til hensikt å få større forståelse om hvilke erfaringer pårørende til aldersdemente har fra møte med helsevesenet. Formidlet vil slike erfaringer gi verdifull innsikt som kan danne grunnlag for å arbeide videre med kvalitetsforbedringer av tjenestetilbudet til personer med demens og deres pårørende. 11 barn eller ektefeller av person med demens som er i ulike nivå i helsetjenesten er intervjuet. Sentrale gjennomgående funn er at informasjon/kommunikasjon fra/mellom tjenesteyter og pårørende representerer et svakt punkt. Når demensteamet i Strømstad kommer inn i bildet ser dette ut til å bedre seg. Pårørende beskriver å ha varierende grad av innflytelse på tjenesten og at den røde tråden i demensomsorgen ikke er helt tilstede. Undersøkelsen viser at kommunene har utfordringer å arbeide videre med for å forbedre demensomsorgen ytterligere. Rapporten avsluttes med å peke på disse utfordringene og anbefalinger for videre arbeid

Relatives’ participation in everyday care in special care units for persons with dementia

Background: Research concerning relatives’ participation in the everyday care related to persons living in special care units for persons with dementia is limited. Research questions: To examine relatives’ participation in their near one’s everyday care, the level of burden experienced and important factors for participation, in this special context. Design: The study had a cross-sectional design, and data collection was carried out by means of a study-specific questionnaire. Participants and context: A total of 233 relatives from 23 different special care units participated. Ethical consideration: The study was approved by the Norwegian Social Science Data Services. Results: A great majority of relatives reported that they visited weekly and were the resident’s spokesperson, but seldom really participated in decisions concerning their everyday care. Participation was seldom reported as a burden. Discussion: This study indicated that relatives were able to make a difference to their near one’s everyday life and ensure quality of care based on their biographical expertise, intimate knowledge about and emotional bond with the resident. Since knowing the resident is a prerequisite for providing individualised care that is in line with the resident’s preferences, information concerning these issues is of utmost importance. Conclusion: This study prompts reflection about what it is to be a spokesperson and whether everyday care is neglected in this role. Even though relatives were satisfied with the care provided, half of them perceived their participation as crucial for the resident’s well-being. This indicated that relatives were able to offer important extras due to their biographical expertise, intimate knowledge about and emotional bond with the resident. Good routines securing that written information about the residents’ life history and preferences is available and used should be implemented in practice

Pårørendes erfaringer fra samarbeid med helsepersonell på skjermet enhet for personer med demens.

Bakgrunn og hensikt: I de senere årene har det vært sterkt fokus på pårørendes rolle i ivaretakelsen av eldres utfordringer, og samarbeidet med pårørende er viet stor plass i nasjonale og politiske føringer. For personer med demens, som har utfordringer med kognitive funksjoner er det viktig med godt samarbeid mellom pårørende og helsepersonell. Studiens hensikt var å få mer kunnskap om hvordan pårørende erfarer samarbeidet med helsepersonell rundt personer med demens i sykehjem. Metode: Det er benyttet kvalitativ metode. Det ble gjennomført 5 semistrukturerte, individuelle intervju som er analysert ved hjelp av Malteruds systematiske tekstkondensering. Resultat: Studien viser at pårørende har behov for å bli sett, og behov for veiledning og støtte samt informasjon fra helsepersonell. Deres behov for informasjon avhenger av tilliten til helsepersonellets kompetanse. Pårørende erfarer at helsepersonell har det travelt og ønsker ikke å bli oppfattet som krevende pårørende. De erfarer også at viktig informasjon glipper, og at samarbeidet utfordres av turnus og turnover. Konklusjon: Den uformelle samtalen er av stor betydning for relasjonen mellom pårørende og helsepersonell og for samarbeidet. Det er viktig å se nærmere på hvordan man, til tross for utfordrende organisatoriske rammer, kan bygge opp under et godt samarbeid mellom pårørende og helsepersonell.publishedVersio

Pårørendes erfaringer fra samarbeid med helsepersonell på skjermet enhet for personer med demens.

Source at https://www.nsf.no/fg/geriatri-og-demens.I de senere årene har det vært sterkt fokus på pårørendes rolle i ivaretakelsen av eldres helseutfordringer, og pårørendesamarbeid er viet stor plass i nasjonale og politiske føringer

Being and becoming ‘a frail older adult’: Meaning-making and resistance through storytelling

By inquiring into older adults' narrations about their lives in the present, past, and future, this study aims to learn more about home-dwelling older adults' lived experiences of being and becoming “frail”. This article is based on a dialogical narrative analysis of interviews with three home-dwelling older adults identified as frail by the home care services. We conducted a series of three interviews with each participant over a period of eight months. Our results demonstrate that while some older adults experience frailty as inevitable and irreversible, others experience it as a transition. Some narrated frailty as a comprehensive experience, while others' narratives were more situational and transitional. Being able to live at home was crucial and moving to a nursing home was associated with the risk of becoming frailer and the loss of valued relations to family and their home. Experiences of frailty were framed and shaped by the past, present, and future. Faith, fate, and previous capacities to overcome adversities were crucial in the older adults' narrations. Older adults' stories provide an opening to diverse and changing experiences of living with frailty. By telling stories about the past, present, and future, older adults can maintain identity, a sense of belonging, and balance in the midst of adversities. By engaging with older adults' stories, health and care professionals can support the older adult in the ongoing process of being and becoming ‘a frail older adult’

Quality of care in a nursing home as experienced by patients with dementia

Background: Dementia care is one of the most rapidly growing areas in health care. Despite this, relatively little is known about the experiences of persons with dementia in relation to quality of care. Objective: The aim of this study was to describe how persons with dementia in nursing homes experience the quality of care. Design: A cross-sectional design was used. Setting and Participants: The study was conducted in a nursing home in Norway. A total of 33 persons with dementia participated. Results: Respondents’ mean age was 86.7 years. More than 80% reported their health as bad/neither good nor bad. Concerning their satisfaction with staying in the nursing home, two in ten were satisfied. Nearly half answered that they received or sometimes received good help and support when anxious. More than 50% reported that they only sometimes received or never received good help and support when they felt lonely. The majority perceived that the nurses came/or sometimes came when needed (79%) and that the nurses had time/sometimes had time to talk with them (73%). Conclusion: This study reveals that the voice of persons with dementia must be listened to, in order to increase the quality of care in nursing homes. The challenge concerning how living in nursing homes can be more satisfying must be addressed by leaders and nurses in nursing homes, as well as researchers. Special attention must be paid to anxiety, loneliness, and going outdoors.publishedVersio

Prehospital assessment and management of postpartum haemorrhage– healthcare personnel’s experiences and perspectives

Background Postpartum hemorrhage (PPH) is a serious obstetric emergency, and one of the top five causes of maternal mortality globally. The most common causes of PPH include uterine atony, placental disorders, birth trauma and coagulation defects. Timely diagnosis and early management are critical to reduce morbidity, the need for blood transfusion or even mortality. External, manual aortic compression (AC) has been suggested as an intervention that reduce PPH and extend time for control of bleeding or resuscitation. This procedure is not commonly utilized by healthcare personnel. The incidence of home-births is increasing, and competence in PPH assessment and management is essential in prehospital personnel. The objective was to explore prehospital personnel’s competence in PPH and AC, utilizing different tools. Methods The study was conducted in a county in South-eastern Norway, including five ambulance stations. All prehospital personnel (n = 250) were invited to participate in a questionnaire study. The questionnaire included the PPH self-efficacy (PPHSE) and PPH collective efficacy (PPHCE) tools, as well as tool developed utilizing the Delphi technique. Descriptive statistics were used to analyze the quantitative data, while quantitative content analysis was used to analyse free-text responses. Results A total of 87 prehospital personnel responded to the questionnaire, 57.5% male, mean age 37.9 years. In total, 80.4% were ambulance workers and/or paramedics, and 96.6 and 97.7% respectively reported to need more education or training in PPH. Moreover, 82.8% reported having managed patient(s) with PPH, but only 2.9% had performed AC. Prehospital personnels’ responses varied extensively regarding knowledge about what PPH is, how to estimate and handle PPH, and how to perform AC. Mean self-efficacy varied from 3.3 to 5.6, while collective efficacy varied from 1.9 to 3.8. Conclusions This study indicates that prehospital personnel lack knowledge about PPH and AC, due to various responses to the developed questionnaire. Even though AC is an acknowledged intervention in PPH, few participants reported that this was utilized. Our findings emphasize the need for education and training in PPH and PPH handling generally, and in AC specifically.publishedVersio

“I just feel more like a normal human being.”, The health and daily life experience by Norwegian rheumatics

The objective of this study is to illuminate the experience of Norwegian rheumatics illness during long-term residency in Spain. The method chosen is qualitative with a phenomenological approach. Twelve rheumatics comprise the sample group, eight women and four men, ages from 45 to 70. Data collection was performed by qualitative research interview. The data is analyzed using condensation, followed by a thematic approach, inspired by Giorgis phenomenological method. The essence of the Norwegian rheumatics experience is that they recovered control over everyday life. They experienced pain relief, reduced medication and increased personal activity. The study indicates that long-term stay in Spain can promote health for people suffering weather-sensitive rheumatism