Experiencias de la familia que convive con la enfermedad mental grave: un estudio cualitativo en Navarra

Fundamento. La enfermedad mental grave compromete al 1% de la población, siendo la familia, en gran parte de los casos, la que apoya, cuida y acompaña, y de esta forma convive con la enfermedad. La relación entre la familia y el sistema de salud ha sido poco explorada en España, así como los aprendizajes de la familia puestos al servicio de otras familias, de forma que el objetivo del presente artículo es aportar en estos dos aspectos. Material y métodos. En la Comunidad Foral de Navarra (España) se llevó a cabo un estudio cualitativo de tipo narrativo, realizando entrevistas a profundidad a familias que conviven con la enfermedad mental grave. Se realizaron dos entrevistas a cada familia (incluyendo a la persona con el diagnóstico de enfermedad mental) y posteriormente se realizó un análisis multimodal (estructural, temático y dialógico) de cada familia y un análisis entre familias. Resultados. Se entrevistaron seis familias y dieciocho participantes. Se encontraron dos categorías: requerimientos de las familias y de familia a familia. En los requerimientos se destacan la optimización de la relación con los profesionales de la salud, los medicamentos, los centros de rehabilitación psicosocial y el apoyo a las familias. En la segunda categoría se encuentran recomendaciones desde la perspectiva del familiar con enfermedad y de los familiares sin enfermedad. Conclusiones. Las familias desean mayor acompañamiento por los profesionales sanitarios, y a la vez son una fuente de aprendizajes que pueden ser utilizados para el proceso de recuperación de otras familias.Background. It is estimated that 1% of the general population suffers from severe mental illness (SMI). In most cases, families are the ones providing support and direct care to the ill relative, which in turn results in the family being the unit that lives with the mental illness. In Spain, two key aspects have been barely explored: the relationship between the family and the mental health system; and the knowledge of families and the possible transfer of such knowledge to other families. The aim of this paper is to contribute to exploring these two aspects. Methods. A qualitative study with a narrative approach was implemented in the Foral Community of Navarre (Spain). The study consisted of in-depth interviews with families living with SMI. Two interviews were conducted with each family (which included the individual diagnosed with a mental illness). A multimodal analysis (structural, thematic and dialogical) was conducted with each family. Comparative analyses between families were also performed. Results. A total of 6 families were interviewed with a total of 18 participants. Findings were grouped around two central categories: requirements of families and family to family. The first category includes improving relationships with mental health providers, medications, psychosocial rehabilitation centers and supporting families. The second category includes recommendations from the perspective of the relative with a SMI and those without it. Conclusions. Families would like to receive a higher degree of support from mental-health providers. At the same time, families should be considered as important sources of knowledge and support for the treatment of other families living with SMI

Experiencias de la familia que convive con la enfermedad mental grave: un estudio cualitativo en Navarra

Fundamento. La enfermedad mental grave compromete al 1% de la población, siendo la familia, en gran parte de los casos, la que apoya, cuida y acompaña, y de esta forma convive con la enfermedad. La relación entre la familia y el sistema de salud ha sido poco explorada en España, así como los aprendizajes de la familia puestos al servicio de otras familias, de forma que el objetivo del presente artículo es aportar en estos dos aspectos. Material y métodos. En la Comunidad Foral de Navarra (España) se llevó a cabo un estudio cualitativo de tipo narrativo, realizando entrevistas a profundidad a familias que conviven con la enfermedad mental grave. Se realizaron dos entrevistas a cada familia (incluyendo a la persona con el diagnóstico de enfermedad mental) y posteriormente se realizó un análisis multimodal (estructural, temático y dialógico) de cada familia y un análisis entre familias. Resultados. Se entrevistaron seis familias y dieciocho participantes. Se encontraron dos categorías: requerimientos de las familias y de familia a familia. En los requerimientos se destacan la optimización de la relación con los profesionales de la salud, los medicamentos, los centros de rehabilitación psicosocial y el apoyo a las familias. En la segunda categoría se encuentran recomendaciones desde la perspectiva del familiar con enfermedad y de los familiares sin enfermedad. Conclusiones. Las familias desean mayor acompañamiento por los profesionales sanitarios, y a la vez son una fuente de aprendizajes que pueden ser utilizados para el proceso de recuperación de otras familias.Background. It is estimated that 1% of the general population suffers from severe mental illness (SMI). In most cases, families are the ones providing support and direct care to the ill relative, which in turn results in the family being the unit that lives with the mental illness. In Spain, two key aspects have been barely explored: the relationship between the family and the mental health system; and the knowledge of families and the possible transfer of such knowledge to other families. The aim of this paper is to contribute to exploring these two aspects. Methods. A qualitative study with a narrative approach was implemented in the Foral Community of Navarre (Spain). The study consisted of in-depth interviews with families living with SMI. Two interviews were conducted with each family (which included the individual diagnosed with a mental illness). A multimodal analysis (structural, thematic and dialogical) was conducted with each family. Comparative analyses between families were also performed. Results. A total of 6 families were interviewed with a total of 18 participants. Findings were grouped around two central categories: requirements of families and family to family. The first category includes improving relationships with mental health providers, medications, psychosocial rehabilitation centers and supporting families. The second category includes recommendations from the perspective of the relative with a SMI and those without it. Conclusions. Families would like to receive a higher degree of support from mental-health providers. At the same time, families should be considered as important sources of knowledge and support for the treatment of other families living with SMI

Multi-messenger Observations of a Binary Neutron Star Merger

International audienceOn 2017 August 17 a binary neutron star coalescence candidate (later designated GW170817) with merger time 12:41:04 UTC was observed through gravitational waves by the Advanced LIGO and Advanced Virgo detectors. The Fermi Gamma-ray Burst Monitor independently detected a gamma-ray burst (GRB 170817A) with a time delay of $\sim 1.7\,{\rm{s}}$ with respect to the merger time. From the gravitational-wave signal, the source was initially localized to a sky region of 31 deg(2) at a luminosity distance of ${40}_{-8}^{+8}$ Mpc and with component masses consistent with neutron stars. The component masses were later measured to be in the range 0.86 to 2.26 $\,{M}_{\odot }$. An extensive observing campaign was launched across the electromagnetic spectrum leading to the discovery of a bright optical transient (SSS17a, now with the IAU identification of AT 2017gfo) in NGC 4993 (at $\sim 40\,{\rm{Mpc}}$) less than 11 hours after the merger by the One-Meter, Two Hemisphere (1M2H) team using the 1 m Swope Telescope. The optical transient was independently detected by multiple teams within an hour. Subsequent observations targeted the object and its environment. Early ultraviolet observations revealed a blue transient that faded within 48 hours. Optical and infrared observations showed a redward evolution over ∼10 days. Following early non-detections, X-ray and radio emission were discovered at the transient’s position $\sim 9$ and $\sim 16$ days, respectively, after the merger. Both the X-ray and radio emission likely arise from a physical process that is distinct from the one that generates the UV/optical/near-infrared emission. No ultra-high-energy gamma-rays and no neutrino candidates consistent with the source were found in follow-up searches. These observations support the hypothesis that GW170817 was produced by the merger of two neutron stars in NGC 4993 followed by a short gamma-ray burst (GRB 170817A) and a kilonova/macronova powered by the radioactive decay of r-process nuclei synthesized in the ejecta