Exploring the impact of user involvement on health and social care services for cancer in the UK.

This report presents the findings from a study of cancer network partnership groups in the UK. Cancer network partnership groups are regional organisations set up to enable joint working between people affected by cancer and health professionals, with the aim of improving cancer care

A systematic review on the relationship between user involvement and system success

© 2014 Elsevier B.V. All rights reserved. Context: For more than four decades it has been intuitively accepted that user involvement (UI) during system development lifecycle leads to system success. However when the researchers have evaluated the user involvement and system success (UI-SS) relationship empirically, the results were not always positive. Objective: Our objective was to explore the UI-SS relationship by synthesizing the results of all the studies that have empirically investigated this complex phenomenon. Method: We performed a Systematic Literature Review (SLR) following the steps provided in the guidelines of Evidence Based Software Engineering. From the resulting studies we extracted data to answer our 9 research questions related to the UI-SS relationship, identification of users, perspectives of UI, benefits, problems and challenges of UI, degree and level of UI, relevance of stages of software development lifecycle (SDLC) and the research method employed on the UI-SS relationship. Results: Our systematic review resulted in selecting 87 empirical studies published during the period 1980-2012. Among 87 studies reviewed, 52 reported that UI positively contributes to system success, 12 suggested a negative contribution and 23 were uncertain. The UI-SS relationship is neither direct nor binary, and there are various confounding factors that play their role. The identification of users, their degree/level of involvement, stage of SDLC for UI, and choice of research method have been claimed to have impact on the UI-SS relationship. However, there is not sufficient empirical evidence available to support these claims. Conclusion: Our results have revealed that UI does contribute positively to system success. But it is a double edged sword and if not managed carefully it may cause more problems than benefits. Based on the analysis of 87 studies, we were able to identify factors for effective management of UI alluding to the causes for inconsistency in the results of published literature

Developing a digital intervention for cancer survivors: an evidence-, theory- and person-based approach

This paper illustrates a rigorous approach to developing digital interventions using an evidence-, theory- and person-based approach. Intervention planning included a rapid scoping review which identified cancer survivors’ needs, including barriers and facilitators to intervention success. Review evidence (N=49 papers) informed the intervention’s Guiding Principles, theory-based behavioural analysis and logic model. The intervention was optimised based on feedback on a prototype intervention through interviews (N=96) with cancer survivors and focus groups with NHS staff and cancer charity workers (N=31). Interviews with cancer survivors highlighted barriers to engagement, such as concerns about physical activity worsening fatigue. Focus groups highlighted concerns about support appointment length and how to support distressed participants. Feedback informed intervention modifications, to maximise acceptability, feasibility and likelihood of behaviour change. Our systematic method for understanding user views enabled us to anticipate and address important barriers to engagement. This methodology may be useful to others developing digital interventions

Understanding citizen science and environmental monitoring: final report on behalf of UK Environmental Observation Framework

Citizen science can broadly be defined as the involvement of volunteers in science. Over the past decade there has been a rapid increase in the number of citizen science initiatives. The breadth of environmental-based citizen science is immense. Citizen scientists have surveyed for and monitored a broad range of taxa, and also contributed data on weather and habitats reflecting an increase in engagement with a diverse range of observational science. Citizen science has taken many varied approaches from citizen-led (co-created) projects with local community groups to, more commonly, scientist-led mass participation initiatives that are open to all sectors of society. Citizen science provides an indispensable means of combining environmental research with environmental education and wildlife recording. Here we provide a synthesis of extant citizen science projects using a novel cross-cutting approach to objectively assess understanding of citizen science and environmental monitoring including: 1. Brief overview of knowledge on the motivations of volunteers. 2. Semi-systematic review of environmental citizen science projects in order to understand the variety of extant citizen science projects. 3. Collation of detailed case studies on a selection of projects to complement the semi-systematic review. 4. Structured interviews with users of citizen science and environmental monitoring data focussing on policy, in order to more fully understand how citizen science can fit into policy needs. 5. Review of technology in citizen science and an exploration of future opportunities

Successful acquisition of IT systems

School of Managemen