Towards a science and practice of resilience in the face of pain

The primary objective of this paper is to discuss how a resilience approach to (chronic) pain may advance our current understanding of (mal)adaptation to pain. Different resilience perspectives are described, and future challenges for research, prevention and treatment of (chronic) pain are discussed. Literature searches were performed in Web of Science and PubMed to identify relevant literature on risk and resilience in the context of pain. Resilience can be best defined as the ability to restore and sustain living a fulfilling life in the presence of pain. The Psychological Flexibility Model, the Broaden-and-Build Theory, and Self-Determination Theory are described as theories that may provide insight into resilience within the context of (chronic) pain. We describe how a resilience paradigm shifts the outcomes to pursue in pain research and intervention and argue the need for including positive outcomes in addition to negative outcomes. Psychological flexibility, positive affect and basic psychological needs satisfaction are described as potentially important resilience mechanisms with the potential to target both sustainability and recovery from pain. A resilience approach to chronic pain may have important implications for the prevention and treatment of chronic pain problems, as it may give specific indications on how to empower patients to continue living a fulfilling life (in the presence of pain)

Working with parents to support their disabled children’s social and school inclusion. An exploratory counseling study

This article synthesizes the long-lasting counseling process of a family with a child suffering from a chronic illness. The provided intervention model draws on a series of principles from various theoretical approaches, namely systemic, psychodynamic, and resiliency. Family functioning and support is considered a catalytic parameter in assisting children with disabilities to fully develop their potential. This project is based on a family and child-centered integrative counseling model adopting the nonmedical conception of disability. Through the presentation of a case study of a couple who faced a critical situation in the life of their child, this article briefly describes the way the family dynamics were readdressed through this intervention counseling model. In addition, this work attempts to give a picture of the complex and confusing emotional states parents may go through when dealing with physical and psychological health-threatening situations and present guidelines for integrated counseling models. © 2015 Taylor & Francis Group, LL

Symposium on Indigenous Scholarship: The Centrality of Culture and Indigenous Values

The trend of globalization has led to a strong demand for the culture-specific or emic approach in scholarly research. It is the purpose of this paper to provide an opportunity for scholars to have their voices on the issues of indigenous scholarship. The paper consists of four essays examining the theme from four aspects, namely, the centrality of culture and communication, the Asiacentric communication paradigm, the development of Chinese communication theories, and an indigenous view of the study of resilience. It is hoped that the paper will contribute to the better understanding of indigenous scholarship and further provide a possible direction for the future investigation in this line of research

Troubling Vulnerability: Designing with LGBT Young People's Ambivalence Towards Hate Crime Reporting

HCI is increasingly working with ?vulnerable? people yet there is a danger that the label of vulnerability can alienate and stigmatize the people such work aims to support. We report our study investigating the application of interaction design to increase rates of hate crime reporting amongst Lesbian, Gay, Bisexual and Transgender young people. During design-led workshops participants expressed ambivalence towards reporting. While recognizing their exposure to hate crime they simultaneously rejected ascription as victim as implied in the act of reporting. We used visual communication design to depict the young people?s ambivalent identities and contribute insights on how these fail and succeed to account for the intersectional, fluid and emergent nature of LGBT identities through the design research process. We argue that by producing ambiguous designed texts, alongside conventional qualitative data, we ?trouble? our design research narratives as a tactic to disrupt static and reductive understandings of vulnerability within HCI

Managing for local resilience: towards a strategic approach

The term resilience is increasingly being used to capture the challenges involved in managing in ‘hard times’. This article aims to provide one of the first empirical studies of the term’s application to local authority interventions around emergency planning and climate change: two areas in which resilience has been particularly emphasised in local policy making. Drawing upon research undertaken in the north east of England, the article considers how local managers have understood and applied the term, the extent to which it has been developed as a coherent policy agenda, and its strategic significance. In reframing the debate on resilience in terms of discourses of ‘recovery’ and ‘transformation’, the article examines how, in addition to informing policy realities on the ground, resilience is also a normative, politically laden term, within which conservative narratives of uncertainty, vulnerability and anxiety compete with a more radical focus on hope, adaptation and transformation. The study reveals concerns over the term’s longevity, tensions between the different interpretations of resilience, and the lack of a coherent strategic framework within which the different discourses on resilience could be considered and reconciled. However, the article also captures the growing importance of a resilience narrative that is seen to add value in a period of austerity, integrate key features of climate change adaptation and emergency planning, and act as a ‘strategic lynchpin’ in relation to other policy areas, such as economic resilience

South Asia and societal challenges : a regional perspective

This paper is a summary of the South Asian region’s status and interests concerning the seven thematic societal challenges identified under the EU’s Horizon 2020 research programme: Health, demographic change and wellbeing; Food security, sustainable agricultures, marine and maritime research and the bio-based economy; Clean and efficient energy; Smart, green and integrated transport; Climate action, resource efficiency and raw materials; A changing world - inclusive, innovative and reflective societies; and, Secure societies - protecting freedom and security of the country and its citizens. This paper considers the position of seven countries in South Asia: Afghanistan; Bangladesh; Bhutan; Maldives; Nepal; Pakistan; and, Sri Lanka1. It also identifies national and regional priorities for the seven themes under consideration. This paper is an output of the CASCADE project (Collaborative Action towards Societal Challenges through Awareness, Development, and Education) that aims to provide the foundation for a future International Cooperation Network programme targeting South Asian Countries, which will promote bi-regional coordination of Science & Technology cooperation. The EU recognise a need to strengthen internationalisation through strategic policy action. The need for linkages with Asian countries has been highlighted given the region’s rapidly growing research and innovation capacities and the urgency to address global challenges. The project coincides with the launch of Horizon 2020, a Europe 2020 flagship initiative aimed at securing Europe’s global competitiveness. Running from 2014 to 2020 with a budget of just over €80 billion, the EU’s new programme for research and innovation is part of the drive to tackle global societal challenges, and create new growth and jobs. International cooperation in research and innovation is an essential element for meeting the objectives of Europe 2020. Recognising the global nature of producing and using knowledge, Horizon 2020 builds on the success of international cooperation in previous framework programmes and is fully open to participation from third countries

Master\u27s Project: Examining Equity and Emergence: Personal Inquiry and Practice

When I awakened to the reality of my White privilege I began a transformative learning journey which implicates my personal life, professional work, and leadership practice. This project deepened and integrated my understanding of Whiteness, power, privilege, and systemic oppression. By learning the ways I perpetuate white supremacy, I create personal agency for changing such patterns, embodying leadership which builds a more equitable and justice-centered future. This personal inquiry utilized emergent strategy, relationship-building, and critical reflection to generate deep and integrated learning

Toward a Library Renaissance

For centuries, librarians have tried to safeguard information, sometimes in the face of destruction. Think of the great Library of Alexandria, the burning of which symbolizes the irretrievable loss of knowledge. Think also of Umberto Eco\u27s novel, The Name of the Rose, and the (fictitious) 14th-century story about the search for a lost volume of Aristotle that no one is allowed to read—but yet must be preserved—because it might reveal that Jesus could and did laugh, contrary to the death-obsessed zeitgeist of the time. Fast-forward to the age of the internet, when some fear libraries are again being destroyed and many ask: Who wants libraries when you have Google? This is not an easy question to address but one need not yield to pessimism. This paper argues that identifiable trends direct to a promising future: in light of these, one should be able to circumscribe plausible scenarios. Approaches to strategic planning that count on ownership should make a big difference and point to desirable skills for librarians. If they also invest in resilience and give unequivocal attention to branding, libraries can enjoy a renaissance

Rethinking the patient: using Burden of Treatment Theory to understand the changing dynamics of illness

<b>Background</b> In this article we outline Burden of Treatment Theory, a new model of the relationship between sick people, their social networks, and healthcare services. Health services face the challenge of growing populations with long-term and life-limiting conditions, they have responded to this by delegating to sick people and their networks routine work aimed at managing symptoms, and at retarding - and sometimes preventing - disease progression. This is the new proactive work of patient-hood for which patients are increasingly accountable: founded on ideas about self-care, self-empowerment, and self-actualization, and on new technologies and treatment modalities which can be shifted from the clinic into the community. These place new demands on sick people, which they may experience as burdens of treatment.<p></p> <b>Discussion</b> As the burdens accumulate some patients are overwhelmed, and the consequences are likely to be poor healthcare outcomes for individual patients, increasing strain on caregivers, and rising demand and costs of healthcare services. In the face of these challenges we need to better understand the resources that patients draw upon as they respond to the demands of both burdens of illness and burdens of treatment, and the ways that resources interact with healthcare utilization.<p></p> <b>Summary</b> Burden of Treatment Theory is oriented to understanding how capacity for action interacts with the work that stems from healthcare. Burden of Treatment Theory is a structural model that focuses on the work that patients and their networks do. It thus helps us understand variations in healthcare utilization and adherence in different healthcare settings and clinical contexts