4 research outputs found
Clinical foundations and information architecture for the implementation of a federated health record service
Clinical care increasingly requires healthcare professionals to access patient record information that
may be distributed across multiple sites, held in a variety of paper and electronic formats, and
represented as mixtures of narrative, structured, coded and multi-media entries. A longitudinal
person-centred electronic health record (EHR) is a much-anticipated solution to this problem, but
its realisation is proving to be a long and complex journey.
This Thesis explores the history and evolution of clinical information systems, and establishes a set
of clinical and ethico-legal requirements for a generic EHR server. A federation approach (FHR) to
harmonising distributed heterogeneous electronic clinical databases is advocated as the basis for
meeting these requirements.
A set of information models and middleware services, needed to implement a Federated Health
Record server, are then described, thereby supporting access by clinical applications to a distributed
set of feeder systems holding patient record information. The overall information architecture thus
defined provides a generic means of combining such feeder system data to create a virtual
electronic health record. Active collaboration in a wide range of clinical contexts, across the whole
of Europe, has been central to the evolution of the approach taken.
A federated health record server based on this architecture has been implemented by the author
and colleagues and deployed in a live clinical environment in the Department of Cardiovascular
Medicine at the Whittington Hospital in North London. This implementation experience has fed
back into the conceptual development of the approach and has provided "proof-of-concept"
verification of its completeness and practical utility.
This research has benefited from collaboration with a wide range of healthcare sites, informatics
organisations and industry across Europe though several EU Health Telematics projects: GEHR,
Synapses, EHCR-SupA, SynEx, Medicate and 6WINIT.
The information models published here have been placed in the public domain and have
substantially contributed to two generations of CEN health informatics standards, including CEN
TC/251 ENV 13606
The Effect of Risk Attitude and Uncertainty Comfort on Primary Care Physicians' Use of Electronic Information Resources
Background: Clinicians use information regularly in clinical care. New electronic information resources provided in push, pull, and prompting formats have potential to improve information support but have not been designed for individualization. Physicians with differing risk status use healthcare resources differently often without an improvement in outcomes.Questions: Do physicians who are risk seeking or risk avoiding and comfortable or uncomfortable with uncertainty use or prefer electronic information resources differently when answering simulated clinical questions and can the processes be modeled with existing theoretical models?Design: Cohort study.Methods: Primary care physicians in Canada and the United States were screened for risk status. Those with high and low scores on 2 validated scales answered 23 multiple-choice questions and searched for information using their own electronic resources for 2 of these questions. They also answered 2 other questions using information from 2 electronic information sources: PIERĀ© and Clinical EvidenceĀ© .Results: The physicians did not differ for number of correct answers according to risk status although the number of correct answers was low and not substantially higher than chance. Their searching process was consistent with 2 information-seeking models from information science (modified Wilson Problem Solving and Card/Pirolli Information Foraging/Information Scent models). Few differences were seen for any electronic searching or information use outcome based on risk status although those physicians who were comfortable with uncertainty used more searching heuristics and spent less effort on direct searching. More than 20% of answers were changed after searchingāalmost the same number going from incorrect to correct and from correct to incorrect. These changes from a correct to incorrect answer indicate that some electronic information resources may not be ideal for direct clinical care or integration into electronic medical record systems.Conclusions: Risk status may not be a major factor in the design of electronic information resources for primary care physicians. More research needs to be done to determine which computerized information resources and which features of these resources are associated with obtaining and maintaining correct answers to clinical questions