Giving patients granular control of personal health information: Using an ethics ‘Points to Consider’ to inform informatics system designers

Objective: There are benefits and risks of giving patients more granular control of their personal health information in electronic health record (EHR) systems. When designing EHR systems and policies, informaticists and system developers must balance these benefits and risks. Ethical considerations should be an explicit part of this balancing. Our objective was to develop a structured ethics framework to accomplish this. Methods: We reviewed existing literature on the ethical and policy issues, developed an ethics framework called a “Points to Consider” (P2C) document, and convened a national expert panel to review and critique the P2C. Results: We developed the P2C to aid informaticists designing an advanced query tool for an electronic health record (EHR) system in Indianapolis. The P2C consists of six questions (“Points”) that frame important ethical issues, apply accepted principles of bioethics and Fair Information Practices, comment on how questions might be answered, and address implications for patient care. Discussion: The P2C is intended to clarify whatis at stake when designers try to accommodate potentially competing ethical commitments and logistical realities. The P2C was developed to guide informaticists who were designing a query tool in an existing EHR that would permit patient granular control. While consideration of ethical issues is coming to the forefront of medical informatics design and development practices, more reflection is needed to facilitate optimal collaboration between designers and ethicists. This report contributes to that discussion

User-centric Privacy Engineering for the Internet of Things

User privacy concerns are widely regarded as a key obstacle to the success of modern smart cyber-physical systems. In this paper, we analyse, through an example, some of the requirements that future data collection architectures of these systems should implement to provide effective privacy protection for users. Then, we give an example of how these requirements can be implemented in a smart home scenario. Our example architecture allows the user to balance the privacy risks with the potential benefits and take a practical decision determining the extent of the sharing. Based on this example architecture, we identify a number of challenges that must be addressed by future data processing systems in order to achieve effective privacy management for smart cyber-physical systems.Comment: 12 Page

Algorithms that Remember: Model Inversion Attacks and Data Protection Law

Many individuals are concerned about the governance of machine learning systems and the prevention of algorithmic harms. The EU's recent General Data Protection Regulation (GDPR) has been seen as a core tool for achieving better governance of this area. While the GDPR does apply to the use of models in some limited situations, most of its provisions relate to the governance of personal data, while models have traditionally been seen as intellectual property. We present recent work from the information security literature around `model inversion' and `membership inference' attacks, which indicate that the process of turning training data into machine learned systems is not one-way, and demonstrate how this could lead some models to be legally classified as personal data. Taking this as a probing experiment, we explore the different rights and obligations this would trigger and their utility, and posit future directions for algorithmic governance and regulation.Comment: 15 pages, 1 figur

State of The Art and Hot Aspects in Cloud Data Storage Security

Along with the evolution of cloud computing and cloud storage towards matu- rity, researchers have analyzed an increasing range of cloud computing security aspects, data security being an important topic in this area. In this paper, we examine the state of the art in cloud storage security through an overview of selected peer reviewed publications. We address the question of defining cloud storage security and its different aspects, as well as enumerate the main vec- tors of attack on cloud storage. The reviewed papers present techniques for key management and controlled disclosure of encrypted data in cloud storage, while novel ideas regarding secure operations on encrypted data and methods for pro- tection of data in fully virtualized environments provide a glimpse of the toolbox available for securing cloud storage. Finally, new challenges such as emergent government regulation call for solutions to problems that did not receive enough attention in earlier stages of cloud computing, such as for example geographical location of data. The methods presented in the papers selected for this review represent only a small fraction of the wide research effort within cloud storage security. Nevertheless, they serve as an indication of the diversity of problems that are being addressed

Security and Privacy Issues of Big Data

This chapter revises the most important aspects in how computing infrastructures should be configured and intelligently managed to fulfill the most notably security aspects required by Big Data applications. One of them is privacy. It is a pertinent aspect to be addressed because users share more and more personal data and content through their devices and computers to social networks and public clouds. So, a secure framework to social networks is a very hot topic research. This last topic is addressed in one of the two sections of the current chapter with case studies. In addition, the traditional mechanisms to support security such as firewalls and demilitarized zones are not suitable to be applied in computing systems to support Big Data. SDN is an emergent management solution that could become a convenient mechanism to implement security in Big Data systems, as we show through a second case study at the end of the chapter. This also discusses current relevant work and identifies open issues.Comment: In book Handbook of Research on Trends and Future Directions in Big Data and Web Intelligence, IGI Global, 201

Privacy Preserving Utility Mining: A Survey

In big data era, the collected data usually contains rich information and hidden knowledge. Utility-oriented pattern mining and analytics have shown a powerful ability to explore these ubiquitous data, which may be collected from various fields and applications, such as market basket analysis, retail, click-stream analysis, medical analysis, and bioinformatics. However, analysis of these data with sensitive private information raises privacy concerns. To achieve better trade-off between utility maximizing and privacy preserving, Privacy-Preserving Utility Mining (PPUM) has become a critical issue in recent years. In this paper, we provide a comprehensive overview of PPUM. We first present the background of utility mining, privacy-preserving data mining and PPUM, then introduce the related preliminaries and problem formulation of PPUM, as well as some key evaluation criteria for PPUM. In particular, we present and discuss the current state-of-the-art PPUM algorithms, as well as their advantages and deficiencies in detail. Finally, we highlight and discuss some technical challenges and open directions for future research on PPUM.Comment: 2018 IEEE International Conference on Big Data, 10 page

The Identity Project: in-depth case studies of Identity Management - UCL institutional audit. Final report

This report presents the results of an audit of identity management practices at UCL, as part of Work Package 2 of The Identity Project (http://www.identity-project.info), a study funded under the JISC e-infrastructure programme, to address the current practice and future needs of UK academic institutions in Identity Management. After an introduction to the organisational context and a description of the audit methodology, the results of fifteen interviews are presented thematicall

The Profiling Potential of Computer Vision and the Challenge of Computational Empiricism

Computer vision and other biometrics data science applications have commenced a new project of profiling people. Rather than using 'transaction generated information', these systems measure the 'real world' and produce an assessment of the 'world state' - in this case an assessment of some individual trait. Instead of using proxies or scores to evaluate people, they increasingly deploy a logic of revealing the truth about reality and the people within it. While these profiling knowledge claims are sometimes tentative, they increasingly suggest that only through computation can these excesses of reality be captured and understood. This article explores the bases of those claims in the systems of measurement, representation, and classification deployed in computer vision. It asks if there is something new in this type of knowledge claim, sketches an account of a new form of computational empiricism being operationalised, and questions what kind of human subject is being constructed by these technological systems and practices. Finally, the article explores legal mechanisms for contesting the emergence of computational empiricism as the dominant knowledge platform for understanding the world and the people within it