Understanding user interaction patterns in health social media

Internet users are becoming increasingly social in their online information behavior, as shown by a growing trend of social media adoption in the past decade. Social interaction patterns in this new space are governed by the technological affordances in the infrastructure and membership to the community, yet at times also by individual emotional needs for seeking social support. In the consumer health domain, social networking technology and consumer health information needs combine to show that even within the same community, relationships are not expressed in the same manner across various computer mediated communication (CMC) formats. The motivation for this research comes from an increasing need to understand the patterns of social interactions online, especially of e-patients using the Internet as a health resource. Frequently, e-patients use social networking platforms to teach each other about conditions and treatments (Civan and Pratt, 2007; Wright and Bell, 2003). Social networking sites are predicted to increase in popularity as a way for people to socialize online as an extension of their physical environment. Online community tools include the popular text-based communication formats such as posting status updates, discussion boards and profile pages. While many previous studies of online support communities identified sociability factors such as types of social support (i.e. informational support, emotional support) exchanged in online support groups and health outcomes, there is a gap in research literature concerning the design of software interface architecture. The central focus of this research investigated the impact of software features on online supportive communication behavior across multiple computer-mediated communication (CMC) formats. This research contributes insights to opportunities for design and implementation of social media technologies for online health support communities; scholarly literature regarding online support communities, and inform policy makers who determine parameters for both design and management of online health support communities. The outcome of this study can contribute to improving online intervention programs by targeting specific functions of social network sites.Ph.D., Information studies -- Drexel University, 201

‘Someone like me’ : user experiences of the discussion forums of non-12-step alcohol online support groups, June 2019

Background Peer support is widely acknowledged to be an important factor in recovery from problem drinking. Many seek this from support groups, including those online. Whilst Alcoholics Anonymous (AA) and other 12-step groups have provided help to many people, some individuals do not find them useful. This paper aims to contribute to the current limited knowledge on non-12-step groups, i.e., those that do not follow the approach of AA. Methods Twenty-five semi-structured interviews were carried out with users of five non-12-step alcohol online support groups (AOSGs) which differed in approach to recovery from problem drinking, size and location. The study was publicised via the groups, and interviewees self-selected. Data were analysed using thematic and template analysis. Results The most important benefit of the groups, according to most interviewees was finding ‘someone like me’: something that many did not feel they could do elsewhere, including in AA. Another key perceived difference from 12-step groups was that their groups provided support without requiring them to follow a set programme for recovery. The groups respected individuals' rights to choose their own goal for sobriety (e.g., abstinence, moderate drinking) and to choose how they achieved it. Other key benefits included seeing that recovery is possible and sharing experiential information. Some disadvantages of using the forums are also discussed. Conclusion The findings report the experiences and perceptions of twenty-five users of non-12-step AOSGs. These are groups that have received little research attention so the findings offer a rare insight into users' opinions on these sources of peer support

Information Practices of Administrators for Controlling Information in an Online Community of New Mothers in Rural America

Rarely does any empirical investigation show how administrators routinely control information in online communities and alleviate misinformation, hate speech, and information overload supported by profit-driven algorithms. Thematic analysis of in-depth phone interviews with members and administrators of a “Vaginal Birth After Cesarean” (VBAC) group with over 500 new mothers on Facebook shows that the administrators make 19 choices for recurring, authoritative but evolving 19 information-related activities when (a) forming the VBAC group over Facebook for local new mothers, (b) actively recruiting women who had a VBAC or have related competencies, (c) removing doctors and solicitors from the group, (d) setting up and revising guidelines for interactions in the group, (e) maintaining the focus of the group, (f) initiating distinct threads of conversations on the group, (g) tagging experts during conversations in the group, and (h) correcting misinformation. Thirty-eight information practices of the administrators indicate their nine gatekeeping roles, seven of these roles help administrators alleviate misinformation, hate speech, and information overload. Findings also show that the management of members and their interactions is a prerequisite to controlling information in online communities. Prescriptions to social networking companies and guidelines for administrators of online communities are discussed at the end

The major life events taxonomy: Social readjustment, social media information sharing, and online network separation during times of life transition

When people experience major life changes, this often impacts their self‐presentation, networks, and online behavior in substantial ways. To effectively study major life transitions and events, we surveyed a large U.S. sample (n = 554) to create the Major Life Events Taxonomy, a list of 121 life events in 12 categories. We then applied this taxonomy to a second large U.S. survey sample (n = 775) to understand on average how much social readjustment each event required, how likely each event was to be shared on social media with different types of audiences, and how much online network separation each involved. We found that social readjustment is positively correlated with sharing on social media, with both broad audiences and close ties as well as in online spaces separate from one's network of known ties. Some life transitions involve high levels of sharing with both separate audiences and broad audiences on social media, providing evidence for what previous research has called social media as social transition machinery. Researchers can use the Major Life Events Taxonomy to examine how people's life transition experiences relate to their behaviors, technology use, and health and well‐being outcomes.National Center for Institutional DiversityPeer Reviewedhttp://deepblue.lib.umich.edu/bitstream/2027.42/167011/1/asi.24455.pdfhttp://deepblue.lib.umich.edu/bitstream/2027.42/167011/2/asi24455-sup-0001-AppendixS1.docxhttp://deepblue.lib.umich.edu/bitstream/2027.42/167011/3/asi24455-sup-0002-AppendixS2.docxhttp://deepblue.lib.umich.edu/bitstream/2027.42/167011/4/asi24455-sup-0003-AppendixS3.docxhttp://deepblue.lib.umich.edu/bitstream/2027.42/167011/5/asi24455-sup-0004-AppendixS4.docxhttp://deepblue.lib.umich.edu/bitstream/2027.42/167011/6/The Major Life Events Taxonomy.xlsxDescription of asi.24455.pdf : Main articleDescription of asi24455-sup-0001-AppendixS1.docx : Appendix ADescription of asi24455-sup-0002-AppendixS2.docx : Appendix BDescription of asi24455-sup-0003-AppendixS3.docx : Appendix CDescription of asi24455-sup-0004-AppendixS4.docx : Appendix DDescription of The Major Life Events Taxonomy.xlsx : The Major Life Events TaxonomySEL

Making Waves: Stories of Participatory Communication for Social Change

Provides an account of fifty experiments designed to empower people living in disadvantaged communities to seize control of their own life stories and begin to change their circumstances of poverty, discrimination and exclusion

An autoethnography exploring the engagement of records management (RM) through a computer mediated communication co-operative inquiry (CMC)

This thesis is an autoethnography exploring the engagement of records management (RM) through the vehicle of a computer mediated communication (CMC) focused co-operative inquiry. CMC is defined as, “communication that takes place between human beings via the instrumentality of computers” (Herring, 1996, p.81). The PhD stance was that with the advent of new technologies, such as CMC, the role and place of RM has been challenged. RM practitioners needed to evaluate their principles and practice in order to discover why RM is not uniformly understood and also why it fails to engage many CMC users and information professionals. The majority of today’s information is generated as the result of unstructured communications (AIIM, 2005 and 2006) that no longer have a fixed reality but exist across fragmented globalised spaces through the Cloud, Web 2.0 and software virtualisation. Organisational boundaries are permanently perforated and the division between public and private spaces are blurred. Traditional RM has evolved in highly structured organisational information environments. Nevertheless, RM could lie at the heart of the processes required for dealing with this splintered data. RM takes a holistic approach to information management, establishing the legislative requirements, technical requirements and the training and support for individuals to communicate effectively, simultaneously transmitting and processing the communications for maximum current and ongoing organisational benefits. However RM is not uniformly understood or practiced. The focus of the thesis was to understand how RM engagement can and should be achieved. The research was conducted by establishing a co-operative inquiry consisting of 82 international co-researchers, from a range of disciplines, investigating the question, ‘How do organisations maximise the information potential of CMC for organisational benefit, taking into account the impact of the individual?” The PhD established a novel approach to co-operative inquiry by separating, managing and merging three groups of co-researchers (UK Records Managers, UK CMC users, international Records Managers and CMC users). I was embedded as a co-researcher within this wider inquiry personally exploring as an autoethnography the relevance of RM to the wider research question, the ability of RM practitioners to advocate for RM and the co-researchers’ responses to the place of RM within this context. The thesis makes several contributions to the research field. It examines how records managers and RM principles and practice engaged through the inquiry, articulating the reasons why users sometimes failed to engage with RM principles and practice, and what assists users to successfully engage with RM. It was found that national perspectives and drivers were more significant as to whether or not individuals engaged with RM concepts than age, gender or professional experience. In addition, users engaged with RM when it was naturally embedded within processes. In addition, as a result of the inquiry’s discussions and actions, the thesis suggests that RM principles and practice need to be refined, for example in regards to the characteristics that define a record. In this respect it concludes that there is rarely likely to be an original archival record surviving through time given the need for migration. The research delivered a novel approach to co-operative inquiry whereby merging groups through time produced new learning at each merger point. The thesis recommends further research to build upon its findings

The Ethical Implications of Telemedicine and the Internet for Home Healthcare

Information and communication technologies, such as the Internet, are transforming our business, education, and leisure practices. The healthcare industry is no exception to this trend and the burgeoning field of home-based telemedicine is evidence of this. As with many technological innovations in healthcare, assessments of homebased telemedicine and correlative policies are being driven by economic and technological criteria that emphasize cost reduction and technologic efficiency. These are important considerations, but these assessments neither identify the ethical values involved in home-based telemedicine nor address its possible ethical implications. Since the economic and technologic viability of home-based telemedicine is not identical with its ethical appropriateness and justification, this is a serious oversight. Hence, the use of telemedicine and the Internet in home healthcare invite a discussion about their ethical implications for the traditional goals and moral ideals of healthcare practice. The purpose of this study is to argue that the ethical implications of telemedicine and the Internet for home healthcare should be better understood and incorporated into future home-based telemedicine research and policy development. To this end, this study reviews the home-based telemedicine literature and examines the normative connections between home-based telemedicine and the following: (1) provider-patient relationships, (2) healthcare privacy and confidentiality, (3) distributive and family justice, and (4) informed consent. This study concludes that given the traditional values and goals of healthcare, information and communication technologies present both possible harms and benefits for home healthcare recipients and providers, but that on balance the benefits are more likely to outweigh the harms. However, because the exact benefits and harms of homebased telemedicine are unknown at this time, additional empirical research and outcome studies are needed. Finally, as part of a general technology assessment of home-based telemedicine, future research should include an ethical evaluation of all information and communication technologies that will be employed. If this is not done, home-based telemedicine policies will be inadequately informed and many of the possible harms of home-based telemedicine that could be prevented will not be prevented