25,924 research outputs found

    Attraction, selection, and attrition in online health communities: Initial conversations and their association with subsequent activity levels.

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    BACKGROUND:The effectiveness of online health communities (OHCs) for improving outcomes for health care consumers, health professionals, and health services has already been well investigated. However, research on determinants of OHC users' activity levels, what is associated with attrition or attraction to these communities, and the impacts of initial posts is limited. OBJECTIVES:We sought to explore topic exchanges in OHCs and determine how users' initial posts and community reactions to them are associated with their subsequent activity levels. We also aimed to extend the theory of Attraction-Selection-Attrition for Online Communities (OCASA) to this area. METHODS:We examined exchanges in a major Australian OHC for cancer patients, analyzing about 2500 messages posted over 2009-18. We developed a novel annotation scheme to examine new members' initial posts and the community's reactions to them. RESULTS:The annotation scheme includes five themes: informational support provision, emotional support provision, requests for help, self-reflection & disclosures, and conversational cues. Initial conversations were associated with future activity levels in terms of active posting versus non-active engagement in the community. We found that most OHC members disclosed personal reflections to bond with the community, and many actively posted to the community solely to provide informational and emotional support to others. CONCLUSION:Our work extends OCASA theory to bond-based contexts, presents a new annotation scheme for OHC support topics, and makes an important contribution to knowledge about the relationship between users' activity levels and their initial posts. The findings help managers and owners understand how members use OHCs and how to encourage active participation. They also suggest how to attract new members and minimize attrition among existing members

    On The Role Of Normative Influences In Commercial Virtual Communities

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    The potential to reconcile economic benefits to the firm with the social needs of customers has made commercial virtual communities a popular tool for companies to support their core products/service with a value-added service option. An important key to the success of such a virtual community is the behavior of its members. In this paper, we develop a framework of pro-social behavior (i.e., community citizenship behavior and contribution intentions) for understanding and explaining the motivation of virtual community members to actively participate in and care for the community. We show that the main determinants of pro-social behavior are the social norm of reciprocity and the personal norm of obligation. Reciprocity, in turn, is impacted by the value of the information and the socio-emotional support exchanged by the virtual community members.marketing ;

    Users’ Continued Usage of Online Healthcare Virtual Communities: An Empirical Investigation in the Context of HIV Support Communities

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    This study uses data from an online HIV/AIDS health support virtual community to examine whether users’ emotional states and the social support they receive influence their continued usage. We adopt grief theory to conceptualize the negative emotions that people living with HIV/AIDS could experience. Linguistic analysis is used to measure the emotional states of the users and the informational and emotional support that they receive. Results show that users showing a higher level of disbelief and yearning are more likely to leave the community while those with a high level of anger and depression are more likely to stay on. Users who receive more informational support are more likely to leave once they have obtained the information they sought, but those who receive more emotional support are more likely to stay on. The findings of this study can help us better understand users’ support seeking behavior in online support VCs

    Latinos and Cancer Information: Perspectives of Patients, Health Professionals and Telephone Cancer Information Specialists

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    Semi-structured interviews were conducted with 16 Latino cancer patients diagnosed in California; 10 health professionals from the San Francisco Bay Area and Fresno, California; and 10 Cancer Information Services (CIS) information specialists from the regional offices handling calls from Spanish-speakers. Interview guides were designed by the investigators to answer three main research questions: 1) How do Latinos obtain information about cancer and what types of information do they access?; 2) What sources of cancer information do they seek out and find credible?; and 3) What are the barriers and facilitators to Latinos obtaining cancer information? Stakeholders generally viewed health professionals as the most credible source of cancer information. All groups regarded family and friends as important sources of information. Patients and health professionals tended to differ on the value of print materials. Although patients found them generally useful, health professionals tended to view them as inadequate for meeting the informational needs of their Latino patients due to the challenge of low health literacy. Health professionals also tended to undervalue internet resources compared to patients and CIS specialists. All stakeholders viewed language, ethnic discordance and the impact on patients of the initial diagnosis as barriers to effective communication of cancer information. Health professionals and CIS specialists, but not patients, mentioned low literacy as a barrier. Our findings underscore the importance of the physician-patient relationship as a point of intervention to address the unmet informational and psychosocial needs of Latino cancer patients

    Social Network Analysis of Online Support Communities for Adolescent and Young Adult Cancer Survivors

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    There are an estimated 633,000 adolescent and young adult (AYA) cancer survivors in the U.S. and nearly 89,500 AYAs are diagnosed with cancer every year. Cancer creates developmental and life stage disruptions, which result in multiple survivorship challenges, particularly among AYAs. Despite the advances made in cancer oncology and survivorship care, AYA cancer survivors continue to face diverse and unique psychosocial needs. Research suggests that online support communities have the potential to positively impact psychosocial care by providing AYA cancer survivors with access to social support which can help them successfully transition from treatment back to normal life as well as improve their well-being. In addition, online support communities have become important sources of social support, particularly peer support, offering an opportunity for AYA cancer survivors to exchange support and overcome psychosocial challenges. However, despite an increasing use of online support communities by cancer survivors in general, there is limited evidence providing insights into how online social support can be leveraged by AYA cancer survivors to bridge existing gaps in their psychosocial care. This study provides a deeper understanding of online support exchange by examining the structures of support networks of online interactions among AYA cancer survivors. It applies an informatics approach that combines content analysis, computerized text analysis, and social network analysis. The results show that AYA cancer survivors are mostly exchanging emotional support but also exchange informational and esteem support in similar proportions. In addition, this study expands current understanding of how AYA cancer survivors are using language to exchange support online. Furthermore, the structural characteristics of support networks reveal they are characterized by low densities and average degrees. Moreover, subcommunities of network support developed among AYA cancer survivors, in spite oflow levels of cohesion and clustering between them. Additionally, support networks show that AYA cancer survivors who exchange informational or esteem support are also likely to exchange emotional support. Lastly, the novel data-driven insights gathered by applying an informatics approach may inform the future design and implementation of online support interventions that aim to address the unmet psychosocial needs of AYA cancer survivors

    From Seekers to Providers: Investigating the Transition of Participation Style in Online Health Communities

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    Online health communities (OHCs) enable community members to share informational and emotional support, enhancing their psychological and functional well-being. However, attrition of community membership has long hindered OHCs\u27 continuous development. Previous research suggests that social support providers, a particular participation style, tend to maintain longer community membership and demonstrate increased engagement in the community. This study aims to identify the factors that motivate members to transition from social support seekers to providers. Drawing on reciprocity and social norms, we hypothesize that community members who have received informational/emotional support or have been exposed to a higher proportion of such support are more likely to become informational/emotional providers. To validate these hypotheses, we will analyze data collected from a real OHC. Our findings will contribute to the contextualization of social support theory in OHC settings and offer practical guidance for enhancing community sustainability to OHC administrators

    Healthy Options: A Community-Based Program to Address Food Insecurity

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    The objectives of this study are to better understand the lived experience of food insecurity in our community and to examine the impact of a community-based program developed to increase access to local, healthy foods. Participants were given monthly vouchers to spend at local farmers’ markets and invited to engage in a variety of community activities. Using a community-based participatory research framework, mixed methods were employed. Survey results suggest that most respondents were satisfied with the program and many increased their fruit and vegetable consumption. However, over 40% of respondents reported a higher level of stress over having enough money to buy nutritious meals at the end of the program. Photovoice results suggest that the program fostered cross-cultural exchanges, and offered opportunities for social networking. Building upon the many positive outcomes of the program, community partners are committed to using this research to further develop policy-level solutions to food insecurity

    An Investigation of Autism Support Groups on Facebook

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    Autism-affected users, such as autism patients, caregivers, parents, family members, and researchers, currently seek informational support and social support from communities on social media. To reveal the information needs of autism- affected users, this study centers on the research of users’ interactions and information sharing within autism communities on social media. It aims to understand how autism-affected users utilize support groups on Facebook. A systematic method was proposed to aid in the data analysis including social network analysis, topic modeling, sentiment analysis, and inferential analysis. Social network analysis method was adopted to reveal the interaction patterns appearing in the groups, and topic modeling method was employed to uncover the discussion themes that users were concerned with in their daily lives. Sentiment analysis method helped analyze the emotional characteristics of the content that users expressed in the groups. Inferential analysis method was applied to compare the similarities and differences among different autism support groups found on Facebook. This study collected user-generated content from five sampled support groups (an awareness group, a treatment group, a parents group, a research group, and a local support group) on Facebook. Findings show that the discussion topics varied in different groups. Influential users in each Facebook support group were identified through the analysis of the interaction network. The results indicated that the influential users not only attracted more attention from other group members but also led the discussion topics in the group. In addition, it was examined that autism support groups on Facebook offered a supportive emotional atmosphere for group members. The findings of this study revealed the characteristics of user interactions and information exchanges in autism support groups on social media. Theoretically, the findings demonstrated the significance of social media for autism users. The unique implication of this study is to identify support groups on Facebook as a source of informational, social, and emotional support for autism-related users. The methodology applied in this study presented a systematic approach to evaluating the information exchange in health-related support groups on social media. Further, it investigated the potential role of technology in the social lives of autism-related users. The outcomes of this study can contribute to improving online intervention programs by highlighting effective communication approaches
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