Community ICT projects: do they really work? Reflections from the West End Connect project one year on

The West End suburb of Brisbane is an example of a socially, culturally and economically diverse community in Australia. The suburb has traditionally been home to Indigenous and migrant populations as well as being a refuge for many of Brisbane’s homeless people. The demographics of this suburb, however, are being significantly altered by new property developments with wealthier residents choosing to move close to the city. West End is rapidly becoming a digitally divided community. In 2004/05, academics from the Queensland University of Technology, worked with staff from the State Library of Queensland and the Ethnics Community Council of Queensland, and members of two West End community groups – the Women’s Ethnic Network and the African Women’s Network on a community Information and Communication Technology (ICT) project. Twelve community members from the groups participated in a ten month project that began with focus groups to discuss how ICT was used in the daily life of participants and what they perceived were their personal training needs and the training needs of the larger community group they represent. Training sessions (i.e. Beginning Email) were delivered based on these focus groups. Three months after the sessions, participants were interviewed about their ongoing feelings with ICT; whether they had shared their training experiences with other community members and what impact they felt the training had on their life. All participants reported that the training had a positive impact on their lives and their community. This paper presents the results of a focus group with the participants one year after their initial training experience to determine what ongoing impact, if any, the training had on their life and their community. The study is limited by its small sample size. Nonetheless, three observations can be noted: Firstly, ICT and ICT training does empower and change people’s lives. Secondly, ICT training for community groups should be provided via specialized learning environments that will allow the group members to learn and grow at their own pace and style. Thirdly, ICT training that directly involves only a small number of community members can still have considerable impact on the larger community group through shared narratives and support by the training participants with the other community members. Drawing upon the researcher’s experience of conducting the West End Connect project from beginning to end (and beyond), and having consulted the existing literature in the field of ICT projects, the following literature based recommendations (or is that predictions?) for future community ICT projects are offered: (i) community ICT projects should identify and utilize ‘communities of practice’; (ii) community ICT projects should be inspired to be community ICT initiatives; and, (iii) community ICT projects should use community leaders or educators

Presenting evidence-based health information for people with multiple sclerosis : the IN-DEEP project protocol

Background - Increasingly, evidence-based health information, in particular evidence from systematic reviews, is being made available to lay audiences, in addition to health professionals. Research efforts have focused on different formats for the lay presentation of health information. However, there is a paucity of data on how patients integrate evidence-based health information with other factors such as their preferences for information and experiences with information-seeking. The aim of this project is to explore how people with multiple sclerosis (MS) integrate health information with their needs, experiences, preferences and values and how these factors can be incorporated into an online resource of evidence-based health information provision for people with MS and their families.Methods - This project is an Australian-Italian collaboration between researchers, MS societies and people with MS. Using a four-stage mixed methods design, a model will be developed for presenting evidence-based health information on the Internet for people with MS and their families. This evidence-based health information will draw upon systematic reviews of MS interventions from The Cochrane Library. Each stage of the project will build on the last. After conducting focus groups with people with MS and their family members (Stage 1), we will develop a model for summarising and presenting Cochrane MS reviews that is integrated with supporting information to aid understanding and decision making. This will be reviewed and finalised with people with MS, family members, health professionals and MS Society staff (Stage 2), before being uploaded to the Internet and evaluated (Stages 3 and 4).Discussion - This project aims to produce accessible and meaningful evidence-based health information about MS for use in the varied decision making and management situations people encounter in everyday life. It is expected that the findings will be relevant to broader efforts to provide evidence-based health information for patients and the general public. The international collaboration also permits exploration of cultural differences that could inform international practice.<br /

Problem-based learning spanning real and virtual words: a case study in Second Life

There is a growing use of immersive virtual environments for educational purposes. However, much of this activity is not yet documented in the public domain, or is descriptive rather than analytical. This paper presents a case study in which university students were tasked with building an interactive learning experience using Second Life as a platform. Both problem‐based learning and constructionism acted as framing pedagogies for the task, with students working in teams to design and build a learning experience which could potentially meet the needs of a real client in innovative ways which might not be possible in real life. A process account of the experience is provided, which examines how the pedagogies and contexts (real and virtual) influence and enhance each other. The use of a virtual environment, combined with problem‐based learning and constructionism, subtly changed the nature of the instructor–student relationship, allowed students to explore ‘problematic problems’ in a motivating and relevant manner, provided students with greater ownership over their work, and allowed problems to be set which were flexible, but at the same time allowed for ease of assessment

Patient access to complex chronic disease records on the internet

Background: Access to medical records on the Internet has been reported to be acceptable and popular with patients, although most published evaluations have been of primary care or office-based practice. We tested the feasibility and acceptability of making unscreened results and data from a complex chronic disease pathway (renal medicine) available to patients over the Internet in a project involving more than half of renal units in the UK. Methods: Content and presentation of the Renal PatientView (RPV) system was developed with patient groups. It was designed to receive information from multiple local information systems and to require minimal extra work in units. After piloting in 4 centres in 2005 it was made available more widely. Opinions were sought from both patients who enrolled and from those who did not in a paper survey, and from staff in an electronic survey. Anonymous data on enrolments and usage were extracted from the webserver. Results: By mid 2011 over 17,000 patients from 47 of the 75 renal units in the UK had registered. Users had a wide age range (&#60;10 to &#62;90 yrs) but were younger and had more years of education than non-users. They were enthusiastic about the concept, found it easy to use, and 80% felt it gave them a better understanding of their disease. The most common reason for not enrolling was being unaware of the system. A minority of patients had security concerns, and these were reduced after enrolling. Staff responses were also strongly positive. They reported that it aided patient concordance and disease management, and increased the quality of consultations with a neutral effect on consultation length. Neither patient nor staff responses suggested that RPV led to an overall increase in patient anxiety or to an increased burden on renal units beyond the time required to enrol each patient. Conclusions: Patient Internet access to secondary care records concerning a complex chronic disease is feasible and popular, providing an increased sense of empowerment and understanding, with no serious identified negative consequences. Security concerns were present but rarely prevented participation. These are powerful reasons to make this type of access more widely available