Implications of Synchronous IVR Radio on Syrian Refugee Health and Community Dynamics

With 1,033,513 Syrian refugees adding a strain on the Lebanese healthcare system, innovation is key to improving access to healthcare. Our previous work identified the potential for technology to improve access to antenatal care services and increase refugee agency. Using (1) paper mock ups and a mobile based prototype, (2) process mapping, (3) focus groups and interviews and (4) key informant meetings, we explored the concept of refugee led community radio shows to deliver peer-led healthcare. We observed the influence of community radio shows on Syrian refugee health education, community dynamics and community agency in relationships between healthcare providers and refugees. Refugees were positively impacted through situating the technology within the community. We highlight issues around trust, agency, understanding, sel-forganization and privacy that resulted from running the shows through mock ups and a mobile based prototype. Our findings inform future work in community run radio shows

Integrating Health technologies in Health Services for Syrian Refugees in Lebanon: Qualitative study

Background: Lebanon currently hosts around one million Syrian refugees. There has been an increasing interest in integrating eHealth and mHealth technologies into the provision of primary health care to refugees and Lebanese citizens. Objective: We aimed to gain a deeper understanding of the potential for technology integration in primary health care provision in the context of the protracted Syrian refugee crisis in Lebanon. Methods: A total of 17 face-to-face semistructured interviews were conducted with key informants (n=8) and health care providers (n=9) involved in the provision of health care to the Syrian refugee population in Lebanon. Interviews were audio recorded and directly translated and transcribed from Arabic to English. Thematic analysis was conducted. Results: Study participants indicated that varying resources, primarily time and the availability of technologies at primary health care centers, were the main challenges for integrating technologies for the provision of health care services for refugees. This challenge is compounded by refugees being viewed by participants as a mobile population thus making primary health care centers less willing to invest in refugee health technologies. Lastly, participant views regarding the health and technology literacies of refugees varied and that was considered to be a challenge that needs to be addressed for the successful integration of refugee health technologies. Conclusions: Our findings indicate that in the context of integrating technology into the provision of health care for refugees in a low or middle income country such as Lebanon, some barriers for technology integration related to the availability of resources are similar to those found elsewhere. However, we identified participant views of refugees’ health and technology literacies to be a challenge specific to the context of this refugee crisis. These challenges need to be addressed when considering refugee health technologies. This could be done by increasing the visibility of refugee capabilities and configuring refugee health technologies so that they may create spaces in which refugees are empowered within the health care system and can work toward debunking the views discovered in this study

In a New Land:Mobile Phones, Amplified Pressures and Reduced Capabilities

Framed within the theoretical lens of positive and negative security, this paper presents a study of newcomers to Sweden and the roles of mobile phones in the establishment of a new life. Using creative engagement methods through a series of workshops, two researchers engaged 70 adult participants enrolled into further education colleges in Sweden. Group narratives about mobile phone use were captured in creative outputs, researcher observations and notes and were analysed using thematic analysis. Key findings show that the mobile phone offers security for individuals and a safe space for newcomers to establish a new life in a new land as well as capitalising on other spaces of safety, such as maintaining old ties. This usage produces a series of threats and vulnerabilities beyond traditional technological security thinking related to mobile phone use. The paper concludes with recommendations for policies and support strategies for those working with newcomers

Food Aid Technology:The Experience of a Syrian Refugee Community in Coping with Food Insecurity

Over half of Syrian refugee households in Lebanon are food insecure with some reliant on an electronic voucher (e-voucher) system for food aid. The interplay between the digitisation of food aid, within the socio-technical context of refugees, and community collaborative practices is yet to be investigated. Through design engagements and interviews with refugees and shop owners we explore the experiences of a Syrian refugee community in Lebanon using the e-voucher system. We provide insights into the socio-technical environment in which the e-voucher system is dispensing aid, the information and power asymmetries experienced, refugee collaborative coping practices and how they interplay with the e-voucher system. We highlight the need for: (1) expanding refugee digital capabilities to encompass understandings of aid technologies and identifying trusted intermediaries and (2) for technologies to support in upholding humanitarian principles and mitigating power and information asymmetries. Lastly, we call for CSCW researchers and humanitarian innovators to consider how humanitarian technologies can enable refugee collaborative practices and adopt everyday security as a lens for designing aid technologies. The paper contributes to CSCW knowledge regarding the interplay between aid technologies and refugees’ socio-technical contexts and practices that provides a basis for future technological designs for collaborative technologies for refugee food security

Towards a conceptual framework for understanding the challenges in refugee re-settlement

Upon arrival to a host community, refugees and asylum seekers face immense challenges to rebuild their social capital that is critical in the process of their resettlement. Developing a holistic understanding of these challenges can provide significant opportunities to inform designers and services providers working with this demography. We adopt the lens of social capital coupled with an inquiry in to the heterogeneity of refugees and asylum seekers to gain a holistic understanding of various challenges that they with. We accordingly present a conceptual framework that has been iteratively built based on our four years of engagement with refugee communities. The framework highlights three important aspects: cultural backdrops, displacement-related stressor, and social resources in the host community. We offer several implications for technology design, policies, and the theory of social capital that can support members from these communities in their resettlement

Woman-Centered Design through Humanity, Activism, and Inclusion

Women account for over half of the global population, however, continue to be subject to systematic and systemic disadvantage, particularly in terms of access to health and education. At every intersection, where systemic inequality accounts for greater loss of life or limitations on full and healthy living, women are more greatly impacted by those inequalities. The design of technologies is no different, the very definition of technology is historically cast in terms of male activities, and advancements in the field are critical to improve women's quality of life. This article views HCI, a relatively new field, as well positioned to act critically in the ways that technology serve, refigure, and redefine women's bodies. Indeed, the female body remains a contested topic, a restriction to the development of women's health. On one hand, the field of women's health has attended to the medicalization of the body and therefore is to be understood through medical language and knowledge. On the other hand, the framing of issues associated with women's health and people's experiences of and within such system(s) remain problematic for many. This is visible today in, e.g., socio-cultural practices in disparate geographies or medical devices within a clinic or the home. Moreover, the biological body is part of a great unmentionable, i.e., the perils of essentialism. We contend that it is necessary, pragmatically and ethically, for HCI to turn its attention toward a woman-centered design approach. While previous research has argued for the dangers of gender-demarcated design work, we advance that designing for and with women should not be regarded as ghettoizing, but instead as critical to improving women's experiences in bodily transactions, choices, rights, and access to and in health and care. In this article, we consider how and why designing with and for woman matters. We use our design-led research as a way to speak to and illustrate alternatives to designing for and with women within HCI.QC 20200930</p

Exploring the role of technologies in building Syrian refugee community resilience

PhD ThesisWe are witnessing the largest humanitarian crises occurring within the digital age. The ubiquity of digital technologies has created a space for digital humanitarianism. Digital humanitarianism has been tied to concepts of community resilience by critics of both fields. Humanitarian academics call for a critical investigation of these concepts that accounts for the socio-political, cultural and economic contexts in which they are applied. However, empirical research at the intersection of digital humanitarianism and community resilience is lacking. In this thesis I explore how digital technologies may contribute to refugee community resilience, using an Experience-Centred Design (ECD) research approach to engage with Syrian refugee women residing in an informal settlement in Lebanon. Through the issue of food security, I engage in an exploratory study using focus groups, dialogue cards and the co-creation of an advocacy artefact to explore refugee participants’ understandings of community resilience and how a technology designed for improving refugee food insecurity can contribute to their community resilience. I further use paper prototypes to engage with participants to mimic potential future experiences of technologically mediated collective purchasing. The data collected with refugee participants is augmented by interviews with other stakeholders in the food aid system. Additionally, I use autoethnographic methods to reflect on the value of ECD within this context. I highlight the potential for community-designed humanitarian technologies to increase refugee agency, facilitate self-mobilisation and consequently contribute to refugee community resilience. I also emphasise the need, when designing technologies for community resilience, to account for subcommunities that form within geographically defined refugee communities. My findings extend the concepts of community resilience and digital humanitarianism by envisioning refugee-community-driven technology and using ECD as a methodology for designing with refugee communities

Situating network infrastructure with people, practices, and beyond: A community building workshop

Our world is now connected and even entangled in unprecedented ways through networked technologies. Yet pockets of unequal connectivity persist, and technical infrastructures for connectivity remain difficult to design and build even for experts. In this workshop we aim to bring together a global community of multi- and inter-disciplinary researchers and implementers working on infrastructure development and connectivity to explore the existing design challenges and opportunities for bringing technical dimensions of networked infrastructures in conversation with human-computer interaction (HCI) and the social science of infrastructure. We will share, assess and define research problems and resources for rethinking networked infrastructures from human-, community-, and society-centered perspectives, understanding them to be embedded with human values and biases. We particularly intend our collaborative work to support real-world connectivity initiatives, which have grown in critical importance over the pandemic years—especially projects in support of Global South communities. Concrete deliverables from the workshop will include: (1) an initial shared bibliography to help formalize the state of knowledge in our area, (2) an agenda of shared goals, challenges, and intentions in our field, (3) a compilation of resources to support future work, and (4) social and organizing infrastructures for continued communication and academic collaboration

Enabling the Participation of People with Parkinson's and Their Caregivers in Co-Inquiry around Collectivist Health Technologies

While user participation is central to HCI, co-inquiry takes this further by having participants direct and control research from conceptualisation to completion. We describe a co-inquiry, conducted over 16 months with a Parkinson's support group. We explored how the participation of members might be enabled across multiple stages of a research project, from the generation of research questions to the development of a prototype. Participants directed the research into developing alternative modes of information provision, resulting in ‘Parkinson’s Radio’ — a collectivist health information service produced and edited by members of the support group. We reflect on how we supported participation at different stages of the project and the successes and challenges faced by the team. We contribute insights into the design of collectivist health technologies for this group, and discuss opportunities and tensions for conducting co-inquiry in HCI research