Growing pains with information overload

Emotional and cognitive overload with information technology can be caused by more than just too many digital devices. © 2006 IEEE

How to create value with unobtrusive monitoring technology in home-based dementia care: a multimethod study among key stakeholders

BACKGROUND: There is a growing interest to support extended independent living of people with dementia (PwD) via unobtrusive monitoring (UM) technologies which allow caregivers to remotely monitor lifestyle, health, and safety of PwD. However, these solutions will only be viable if developers obtain a clear picture of how to create value for all relevant stakeholders involved and achieve successful implementation. The aim of this study was therefore to explore the value proposition of UM technology in home-based dementia care and preconditions for successful implementation from a multi-stakeholder perspective. METHODS: We conducted an expert-informed survey among potential stakeholders (n = 25) to identify key stakeholders for UM technology in home-based dementia care. Subsequently, focus groups and semi-structured interviews were conducted among 5 key stakeholder groups (n = 24) including informal caregivers (n = 5), home care professionals (n = 5), PwD (n = 4), directors and managers within home care (n = 4), and policy advisors within the aged care and health insurance sector (n = 6). The sessions addressed the value proposition- and business model canvas and were analyzed using thematic analysis. RESULTS: Stakeholders agreed that UM technology should provide gains such as objective surveillance, timely interventions, and prevention of unnecessary control visits, whereas pains mainly included information overload, unplannable care due to real-time monitoring, and less human interaction. The overall design-oriented need referred to clear situation classifications including urgent care (fall- and wandering detection), non-urgent care (deviations in eating, drinking, sleeping), and future care (risk predictions). Most important preconditions for successful implementation of UM technology included inter-organizational collaboration, a shared vision on re-shaping existing care processes, integrated care ICT infrastructures, clear eligibility criteria for end-users, and flexible care reimbursement systems. CONCLUSIONS: Our findings can guide the value-driven development and implementation of UM technology for home-based dementia care. Stakeholder values were mostly aligned, although stakeholders all had their own perspective on what UM technology should accomplish. Besides, our study highlights the complexity of implementing novel UM technology in home-based dementia care. To achieve successful implementation, organizational and financial preconditions, as well as digital data exchange between home care organizations, will be important. SUPPLEMENTARY INFORMATION: The online version contains supplementary material available at 10.1186/s12877-022-03550-1

Musculoskeletal pain in schoolchildren across puberty: A 3-year follow-up study

BACKGROUND: Chronic Musculoskeletal Pain (MSP) in children can be due to non-inflammatory conditions, such as the benign joint hypermobility syndrome (BJHS) or idiopathic MSP (IMSP). Aim of the study was to evaluate type and persistence of MSP in a cohort of schoolchildren with MSP followed for 3 years, in order to identify the main risk factors. METHODS: Healthy schoolchildren, aged 8-13 years, underwent a general and rheumatologic examination, focusing on presence of chronic MSP, defined as continuous or recurrent pain lasting more than 3 months and heavily interfering with daily life activities, presence of generalized joint hypermobility, the body mass index and the pubertal stage. All symptomatic subjects were re-evaluated 3 years later with the same methods. RESULTS: Seventy of the 88 symptomatic subjects of the initial cohort of 289 were re-evaluated 3 years later. Of these, 38 (54.3 %) still presented MSP, including 19 with BJHS and 19 with IMSP. Main symptoms were lower limbs arthralgia and myalgia. MSP persisted more in females than in males (p = 0.038) and in pubertal rather than pre-pubertal subjects (p = 0.022); these subjects recovered significantly more both from BJHS (p = 0.004) and IMSP (p = 0.016). Gender did not influence the distribution of MSP according to pubertal stage. CONCLUSIONS: Female gender, BJHS and pubertal stage are important risk factors for persistence of MSP. Further studies are needed to evaluate the natural history of MSP towards adulthood and the role of the pubertal age

Web API Fragility: How Robust is Your Web API Client

Web APIs provide a systematic and extensible approach for application-to-application interaction. A large number of mobile applications makes use of web APIs to integrate services into apps. Each Web API's evolution pace is determined by their respective developer and mobile application developers are forced to accompany the API providers in their software evolution tasks. In this paper we investigate whether mobile application developers understand and how they deal with the added distress of web APIs evolving. In particular, we studied how robust 48 high profile mobile applications are when dealing with mutated web API responses. Additionally, we interviewed three mobile application developers to better understand their choices and trade-offs regarding web API integration.Comment: Technical repor

New literacies and future educational culture

The paper draws attention to three developments that are crucial to online education. First, the new literacy required by group discussion in writing, i.e. by computer‐mediated communication ('e‐talk') is discussed Educators are urged to delimit and structure their courses so that online conversations in writing are successfully framed for effective discourse. Second, new literacy arising from the merging of multimedia with text is considered It is maintained that this will enhance communication, not debase it. Third, the way that increasing ease of information retrieval is eroding boundaries between traditional disciplines is discussed It is argued that this may create new difficulties in education. The paper recommends various ways of overcoming the problems that arise from the three developments

Pregnancy and childbirth in English prisons : institutional ignominy and the pains of imprisonment

© 2020 The Authors. Sociology of Health & Illness published by John Wiley & Sons Ltd on behalf of Foundation for SHIL.With a prison population of approximately 9000 women in England, it is estimated that approximately 600 pregnancies and 100 births occur annually. Despite an extensive literature on the sociology of reproduction, pregnancy and childbirth among women prisoners is under‐researched. This article reports an ethnographic study in three English prisons undertaken in 2015‐2016, including interviews with 22 prisoners, six women released from prison and 10 staff members. Pregnant prisoners experience numerous additional difficulties in prison including the ambiguous status of a pregnant prisoner, physical aspects of pregnancy and the degradation of the handcuffed or chained prisoner during visits to the more public setting of hospital. This article draws on Erving Goffman's concepts of closed institutions, dramaturgy and mortification of self, Crewe et al.'s work on the gendered pains of imprisonment and Crawley's notion of ‘institutional thoughtlessness’, and proposes a new concept of institutional ignominy to understand the embodied situation of the pregnant prisoner.Peer reviewe

Exploring the Effects of Caring for Congestive Heart Failure Patients on Caregiver Well-Being: A Descriptive Study

Background: As the incidence of heart failure (HF) quickly becomes the leading cause of disability among older adults, the need for non-professional, in-home caregivers increases as well. Many caregivers are family members who receive no compensation for their efforts, but all are an invaluable tool in the fight against a debilitating disease. Patients with caregivers experience an improved quality of life and lower mortality rates than patients with little social support. The caregiver of a patient with HF may be responsible for everyday activities such as housekeeping and shopping, as well as more complex disease-related necessities as managing medication regimens and fluid restrictions. The stresses associated with caring for a loved one with a progressive and life-altering disease can take a toll on the caregiver, contributing to a decrease in caregiver health and increase in mortality. Purpose: The purpose of this study was to explore how stress factors of caring for an individual with HF impact the emotional health, physical health, social activity, relationships, and lifestyle of the caregiver. Methodology: The study protocol was approved by the University of Arkansas and Washington Regional Medical Center Institutional Review Boards. Patients were accessed through a HF clinic in Northwest Arkansas, the Advanced Nurse Practitioner identifying patients that met the criteria of having an unpaid caregiver as defined in the study. The prospective cohort study was conducted September to December 2016 with 29 individuals identified as friends or family members of a patient with HF who provided care to the HF patient and received no financial compensation for their services. The Caregiver Burden Questionnaire – HF Version 3.0, consists of 26 questions regarding how the caregiver’s experience has been over the past four weeks of caregiving, and was used to measure four domains of physical, emotional/psychological, social, and lifestyle burdens. Results: Summary scores were created for all variables and descriptive statistics used. A Spearman’s rank-order correlation was used to determine the strength and direction of the association between variables. In agreement with previous research findings, physical health of the caregiver was positively correlated with emotional well-being. Discussion: Being a caregiver for a patient with HF can cause strain for the caregiver, but can also be rewarding. The benefits, such as feeling a sense of reward through helping someone else, can provide an emotional buffer that supports the caregiver through times of hospitalization or decline in the patient’s condition. Our findings suggest that interventions implemented to increase the caregiver’s perception of emotional support, perhaps through repeated contact by a healthcare professional, could improve caregiver, and therefore patient, outcomes

Story in health and social care

This paper offers a brief consideration of how narrative, in the form of people‟s own stories, potentially figures in health and social care provision as part of the impulse towards patient-centred care. The rise of the epistemological legitimacy of patients‟ stories is sketched here. The paper draws upon relevant literature and original writing to consider the ways in which stories can mislead as well as illuminate the process of making individual treatment care plans