The European Institute for Innovation through Health Data

The European Institute for Innovation through Health Data (i~HD, www.i-hd.eu) has been formed as one of the key sustainable entities arising from the Electronic Health Records for Clinical Research (IMI-JU-115189) and SemanticHealthNet (FP7-288408) projects, in collaboration with several other European projects and initiatives supported by the European Commission. i~HD is a European not-for-profit body, registered in Belgium through Royal Assent. i~HD has been established to tackle areas of challenge in the successful scaling up of innovations that critically rely on high-quality and interoperable health data. It will specifically address obstacles and opportunities to using health data by collating, developing, and promoting best practices in information governance and in semantic interoperability. It will help to sustain and propagate the results of health information and communication technology (ICT) research that enables better use of health data, assessing and optimizing their novel value wherever possible. i~HD has been formed after wide consultation and engagement of many stakeholders to develop methods, solutions, and services that can help to maximize the value obtained by all stakeholders from health data. It will support innovations in health maintenance, health care delivery, and knowledge discovery while ensuring compliance with all legal prerequisites, especially regarding the insurance of patient's privacy protection. It is bringing multiple stakeholder groups together so as to ensure that future solutions serve their collective needs and can be readily adopted affordably and at scale

The EU Services Directive - Reusing Existing Resources In Public Sector Interoperability

The paper presents a case study of an ongoing implementation project in the framework of the European Union Services Directive. In the German federal state of Brandenburg, authorities are preparing a common taxonomy of professions and industries for general use and in particular for business registration. It is a measure for the creation of a point of single contact as required in the Services Directive. Existing code lists and taxonomies are used as semantic interoperability assets and consolidated for the new purpose with the help of the Semantic Interoperability Centre Europe SEMIC.EU). The unique contribution of the strategy chosen in the case is the combination of real-life feasibility and the instant creation of interoperability through semantic harmonization with an existing 20-language catalogue and an established classification of business activities

Adding Value to Statistics in the Data Revolution Age

As many statistical offices in accordance with the European Statistical System commitment to Vision 2020, since the second half of 2014 Istat has implemented its internal standardisation and industrialisation process within the framework of a common Business Architecture. Istat modernisation programme aims at building services and infrastructures within a plug-and-play framework to foster innovation, promote reuse and move towards full integration and interoperability of statistical process, consistent with a service-oriented architecture. This is expected to lead to higher effectiveness and productivity by improving the quality of statistical information and reducing the response burden. This paper addresses the strategy adopted by Istat which is focused on exploiting administrative data and new data sources in order to achieve its key goals enhancing value to users. The strategy is based on some priorities that consider services centred on users and stakeholders as well as Linked Open Data, to allow Machine-to-Machine data and metadata integration through definition of common statistical ontologies and semantics

Planets: Integrated Services for Digital Preservation

The Planets Project is developing services and technology to address core challenges in digital preservation. This article introduces the motivation for this work, describes the extensible technical architecture and places the Planets approach into the context of the Open Archival Information System (OAIS) Reference Model. It also provides a scenario demonstrating Planets’ usefulness in solving real-life digital preservation problems and an overview of the project’s progress to date

Cultural heritage and sustainable development targets : a possible harmonisation? Insights from the European Perspective

The Agenda 2030 includes a set of targets that need to be achieved by 2030. Although none of the 17 Sustainable Development Goals (SDGs) focuses exclusively on cultural heritage, the resulting Agenda includes explicit reference to heritage in SDG 11.4 and indirect reference to other Goals. Achievement of international targets shall happen at local and national level, and therefore, it is crucial to understand how interventions on local heritage are monitored nationally, therefore feeding into the sustainable development framework. This paper is focused on gauging the implementation of the Sustainable Development Goals with reference to cultural heritage, by interrogating the current way of classifying it (and consequently monitoring). In fact, there is no common dataset associated with monitoring SDGs, and the field of heritage is extremely complex and diversified. The purpose for the paper is to understand if the taxonomy used by different national databases allows consistency in the classification and valuing of the different assets categories. The European case study has been chosen as field of investigation, in order to pilot a methodology that can be expanded in further research. A cross‐comparison of a selected sample of publicly accessible national cultural heritage databases has been conducted. As a result, this study confirms the existence of general harmonisation of data towards the achievement of the SDGs with a broad agreement of the conceptualisation of cultural heritage with international frameworks, thus confirming that consistency exists in the classification and valuing of the different assets categories. However, diverse challenges of achieving a consistent and coherent approach to integrating culture in sustainability remains problematic. The findings allow concluding that it could be possible to mainstream across different databases those indicators, which could lead to depicting the overall level of attainment of the Agenda 2030 targets on heritage. However, more research is needed in developing a robust correlation between national datasets and international targets

Open Government Architecture: The evolution of De Jure Standards, Consortium Standards, and Open Source Software

Conducted for the Treasury Board of Québec, this study seeks to present recent contributions to the evolution, within an enterprise architecture context, of de jure and de facto standards by various actors in the milieu, industrial consortia, and international standardization committees active in open source software. In order to be able to achieve its goals of delivering services to citizens and society, the Government of Québec must integrate its computer systems to create a service oriented open architecture. Following in the footsteps of various other governments and the European Community, such an integration will require elaboration of an interoperability framework, i.e. a structured set of de jure standards, de facto standards, specifications, and policies allowing computer systems to interoperate. Thus, we recommend that the Government of Québec: Pursue its endeavours to elaborate an interoperability framework for its computer systems that is based on open de jure and de facto standards. This framework should not only reflect the criteria enumerated in this study and apply to internal computer systems, but it should also extend to Web services supplied to organizations outside of the government. This framework should explicitly prioritize open source de jure and de facto standards and include a policy covering free software. The interoperability framework should initially draw on that of the state of Massachusetts. In the medium term, is should be as comprehensive as that of the British government. Integrate this interoperability framework into its enterprise architecture. Publish this interoperability framework with its enterprise architecture. Specify this interoperability framework in its calls for tenders. Elaborate a policy of compliance with this framework for all new applications.

Quantum surveillance and 'shared secrets'. A biometric step too far? CEPS Liberty and Security in Europe, July 2010

It is no longer sensible to regard biometrics as having neutral socio-economic, legal and political impacts. Newer generation biometrics are fluid and include behavioural and emotional data that can be combined with other data. Therefore, a range of issues needs to be reviewed in light of the increasing privatisation of ‘security’ that escapes effective, democratic parliamentary and regulatory control and oversight at national, international and EU levels, argues Juliet Lodge, Professor and co-Director of the Jean Monnet European Centre of Excellence at the University of Leeds, U

The Once-Only Principle

This open access State-of-the-Art Survey describes and documents the developments and results of the Once-Only Principle Project (TOOP). The Once-Only Principle (OOP) is part of the seven underlying principles of the eGovernment Action Plan 2016-2020. It aims to make the government more effective and to reduce administrative burdens by asking citizens and companies to provide certain standard information to the public authorities only once. The project was horizontal and policy-driven with the aim of showing that the implementation of OOP in a cross-border and cross-sector setting is feasible. The book summarizes the results of the project from policy, organizational, architectural, and technical points of view

Open public sector information: from principles to practice

Accessible information is the lifeblood of a robust democracy and a productive economy. As part of a worldwide movement, the Australian Government is fundamentally changing the way that information is valued, managed, used and shared with others. The concept that best captures this trend, both in Australia and internationally, is the term \u27public sector information\u27 (PSI). This describes data, information or content that is generated, collected, or funded by or for the government or public institutions. PSI is a valuable resource that underpins all the essential public functions that government discharges. It can be an equally valuable resource outside government. People and business can use PSI to evaluate, respond, research, plan, discover, invent, innovate and aspire. The true value of information is realised only when others can use and build upon it to create new ideas, inventions and strategies. Open PSI is the necessary policy setting to make that happen. It requires, in essence, that government information and data is managed in a way that makes it readily discoverable, accessible and reusable by business and the community. This report details the results of a survey conducted by the Office of the Australian Information Commissioner (OAIC) on how 191 Australian Government agencies manage PSI. The survey was structured around the eight Principles on open public sector information (Open PSI principles) that were published by the OAIC in 2011. The key finding of this report is that Australian Government agencies are actively embracing an open access and proactive disclosure culture. The high response rate to this survey confirms that finding. The widespread and growing use of digital and web technologies to support a PSI transformation is another sign. There are nevertheless many policy challenges and practical obstacles that must be tackled. It is more a time of transition than fulfilment. This transition – or cultural shift – is more successful when built on four elements: agency leadership, officer innovation, community engagement and investment in information infrastructure. Those four elements were identified by agencies themselves as key issues in developing national information policy. Shortcomings in existing policies, structure and information management practices are highlighted by the survey responses: Transitioning to open access and proactive publication requires cultural change, including more active sponsorship of this philosophy by agency leaders; this is particularly important to overcome resistance or disengagement within agencies. Existing systems for record keeping, information governance, information release and user consultation are not suitably designed for the new era of open PSI, in which government information and data must be valued as a core agency asset and a national resource. Information management systems do not always apply uniformly across agencies; from an open PSI perspective there can be indefensible differences in information management practices across agency branches and locations. A great deal of valuable information is held by agencies in legacy documents that must be reformatted for digital publication; this can be a costly and technologically challenging process. Not all agencies have the technical specialisation and capacity to implement open PSI, on issues such as attachment of metadata, conformance to WCAG 2.0 and data release in an open and standards-based format. The default position of open access licensing is not clearly or robustly stated, nor properly reflected in the practice of government agencies. Agencies have been successful in identifying information that is required to be published under the Information Publication Scheme, but have not been as successful in identifying or prioritising other information that can be published through the agency website or on open data portals. Budgetary limitations hamper the capacity of agencies to be more dynamic in implementing an open PSI culture. An open PSI access strategy is vital to enable Australia to fully enjoy the economic, regulatory and cultural benefits of an open government model. Great strides to unlock PSI assets have recently been taken through the combined impact of the Government\u27s Gov 2.0 strategy, freedom of information changes, the innovation agenda, a shift in public service culture, and service delivery reform

BlogForever D3.2: Interoperability Prospects

This report evaluates the interoperability prospects of the BlogForever platform. Therefore, existing interoperability models are reviewed, a Delphi study to identify crucial aspects for the interoperability of web archives and digital libraries is conducted, technical interoperability standards and protocols are reviewed regarding their relevance for BlogForever, a simple approach to consider interoperability in specific usage scenarios is proposed, and a tangible approach to develop a succession plan that would allow a reliable transfer of content from the current digital archive to other digital repositories is presented