Social Responsibilities of Islamic Religious Education Teachers To The Community of Gayo Lues, Aceh, Indonesia

This study aimed to determine the social responsibility of Islamic Religious Education teachers to the people of Gayo Lues Regency, the community's responses to the social responsibility of Islamic Religious Education teachers of Gayo Lues Regency, and the contribution of Islamic Religious Education Teachers to Knowledge in Gayo Regency Lues. This study was conducted in the form of qualitative field study. Interviews and documentation were employed as data collection techniques. The findings of the study indicate that some PAI teachers engage in forms of social responsibility with an inclusive, objective, nondiscriminatory, adaptable, and communicative attitude that manifests itself in both religious and nonreligious fields. Positive responses were received in the form of support, willingness to participate, and a desire to maintain the role of the PAI teacher in response to the social responsibility undertaken. Negative response where PAI teachers are less involved and participate less in the community, and where PAI teachers are considered to be confined to teaching at school without engaging with the adjacent community. Regarding PAI teachers' contribution to education in Gayo Lues Regency, it is carried out to the greatest extent possible, beginning with the provision of all extant skills to students and the surrounding community. Additionally, PAI teachers constantly teach Duha prayers as sunnah prayers for students

Empowering People Experiencing Usher Syndrome as Participants in Research

Engaging people from marginalised groups such as the deafblind and Usher communities to participate in research has historically proved challenging, mainly due to communication differences between participants and researcher. Therefore an approach called ‘Multiple Sensory Communication and Interview Methods’ (MSCIM) was developed and used when conducting research with people who are deafblind and have Usher syndrome. This article considers the value of using MSCIM by critiquing the data collection and interview methods used by the author in a qualitative research study with twenty participants aged 18-82 who experience Usher syndrome. Communication and interview methods were participant led with communication methods including: Clear speech, visual frame British Sign Language (BSL), hands on BSL, deafblind manual and written communication. Participants were given the choice to be interviewed face to face, over the telephone, via Skype (video/no video) or email. Whilst this approach was natural in the researcher’s role as a sensory social worker, within the study this approach led to a measure of unexpected equalising between the researched and the researcher and explored how empowering individuals from marginalised groups as active participants in research contributes to inclusivity and promotes trustworthiness in research

Using mobile technology to engage sexual and gender minorities in clinical research.

IntroductionHistorical and current stigmatizing and discriminatory experiences drive sexual and gender minority (SGM) people away from health care and clinical research. Being medically underserved, they face numerous disparities that make them vulnerable to poor health outcomes. Effective methods to engage and recruit SGM people into clinical research studies are needed.ObjectivesTo promote health equity and understand SGM health needs, we sought to design an online, national, longitudinal cohort study entitled The PRIDE (Population Research in Identity and Disparities for Equality) Study that enabled SGM people to safely participate, provide demographic and health data, and generate SGM health-related research ideas.MethodsWe developed an iPhone mobile application ("app") to engage and recruit SGM people to The PRIDE Study-Phase 1. Participants completed demographic and health surveys and joined in asynchronous discussions about SGM health-related topics important to them for future study.ResultsThe PRIDE Study-Phase 1 consented 18,099 participants. Of them, 16,394 provided data. More than 98% identified as a sexual minority, and more than 15% identified as a gender minority. The sample was diverse in terms of sexual orientation, gender identity, age, race, ethnicity, geographic location, education, and individual income. Participants completed 24,022 surveys, provided 3,544 health topics important to them, and cast 60,522 votes indicating their opinion of a particular health topic.ConclusionsWe developed an iPhone app that recruited SGM adults and collected demographic and health data for a new national online cohort study. Digital engagement features empowered participants to become committed stakeholders in the research development process. We believe this is the first time that a mobile app has been used to specifically engage and recruit large numbers of an underrepresented population for clinical research. Similar approaches may be successful, convenient, and cost-effective at engaging and recruiting other vulnerable populations into clinical research studies

Understanding research, consent and ethics: a participatory research methodology in a medium secure unit for men with a learning disability

People with learning disability have historically been the subjects or recipients of research, rather than participants or contributors. Whilst there is considerable literature on issues of informed consent, little is known about what people with learning disability understand about research, participation in research or how to facilitate understanding. Ways of facilitating consent have been offered by a number of studies (Fisher, 2003, Murphy and Clare, 1995, DeRenzo et al 1998) but these studies have not researched the effectiveness of such methods from the perspective of the participants. Understanding what is meant by research is fundamental to involving people with learning disabilities in research and to developing and maintaining informed consent (Gilbert, 2004). This study set out to discover how men with a learning disability living in a Medium Secure Unit understand research, consent and ethics and what enables them to learn about these concepts. Seven men and ten staff were invited to become co-researchers with two researchers from Northumbria University, over 20 months. Lessons learned from this study about research can now be used to educate other adults with learning disability concerning research, how it can be helpful, and how it can make a difference in the lives of people with learning disability

Building Citywide Systems for Quality: A Guide and Case Studies for Afterschool Leaders

This guide is intended to help cities strengthen and sustain quality afterschool programs by using an emerging practice known as a quality improvement system (QIS). The guide explains how to start building a QIS or how to further develop existing efforts and features case studies of six communities' QIS

The Role of Nurses in Hospital Quality Improvement

Presents findings from interviews with hospital executives on the role nurses play in efforts to improve the quality of hospital care, factors affecting their involvement, and the challenges they face. Describes common quality improvement programs

Building Quality Improvement Systems: Lessons from Three Emerging Efforts in the Youth-Serving Sector

Quality is fast becoming a policy priority in states and localities around the country. As a result, formal and informal networks of youth organizations are seeking and developing strategies to help them assess and improve performance. This report takes a close look at efforts underway in three networks and provides a preliminary framework for thinking about key questions when planning any kind of program quality improvement work in the youth-serving sector

Engaging with community researchers for exposure science: lessons learned from a pesticide biomonitoring study

A major challenge in biomonitoring studies with members of the general public is ensuring their continued involvement throughout the necessary length of the research. The paper presents evidence on the use of community researchers, recruited from local study areas, as a mechanism for ensuring effective recruitment and retention of farmer and resident participants for a pesticides biomonitoring study. The evidence presented suggests that community researchers' abilities to build and sustain trusting relationships with participants enhanced the rigour of the study as a result of their on-the-ground responsiveness and flexibility resulting in data collection beyond targets expected