23,327 research outputs found

    BNCI systems as a potential assistive technology: ethical issues and participatory research in the BrainAble project

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    This paper highlights aspects related to current research and thinking about ethical issues in relation to Brain Computer Interface (BCI) and Brain-Neuronal Computer Interfaces (BNCI) research through the experience of one particular project, BrainAble, which is exploring and developing the potential of these technologies to enable people with complex disabilities to control computers. It describes how ethical practice has been developed both within the multidisciplinary research team and with participants. Results: The paper presents findings in which participants shared their views of the project prototypes, of the potential of BCI/BNCI systems as an assistive technology, and of their other possible applications. This draws attention to the importance of ethical practice in projects where high expectations of technologies, and representations of “ideal types” of disabled users may reinforce stereotypes or drown out participant “voices”. Conclusions: Ethical frameworks for research and development in emergent areas such as BCI/BNCI systems should be based on broad notions of a “duty of care” while being sufficiently flexible that researchers can adapt project procedures according to participant needs. They need to be frequently revisited, not only in the light of experience, but also to ensure they reflect new research findings and ever more complex and powerful technologies

    The ABCD of usability testing

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    We introduce a methodology for tracking and auditing feedback, errors and suggestions for software packages. This short paper describes how we innovate on the evaluation mechanism, introducing an (Antecedent, Barrier, Consequence and Development) ABCD form, embedded within an eParticipation platform to enable end users to easily report on any usability issues. This methodology will be utilised to improve the STEP cloud eParticipation platform (part of the current STEP Horizon2020 project http://step4youth.eu. The platform is currently being piloted in real life contexts, with the participation of public authorities that are integrating the eParticipation platform into their regular decision-making practices. The project is involving young people, through engagement and motivation strategies and giving them a voice in Environmental decision making at the local level. The pilot evaluation aims to demonstrate how open engagement needs to be embedded within public sector processes and the usability methodology reported here will help to identify the key barriers for wide scale deployment of the platform

    An evaluation of the Department of Health’s Health and Social Care Volunteering Fund

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    The Health and Social Care Volunteering Fund (HSCVF) is an innovative programme that was established in 2009 by the Department of Health (DH) to build organisational and community capacity for volunteering through a national and local grant scheme. The HSCVF has offered both funds and tailored support to health and social care projects delivered by Voluntary, Community and Social Enterprise (VCSE) organisations. The HSCVF is managed by a partnership led by Ecorys and with expertise from leading national voluntary sector organisations: Attend, Community Service Volunteers (CSV) and Primetimers. To date the HSCVF has funded a total of 157 local and national projects, of which 114 are currently live. This report presents findings from an evaluation of the HSCVF with a specific focus on the 2010/2011 national and local projects, conducted by a team from the Institute for Health & Wellbeing at Leeds Metropolitan University. It presents evidence on the extent to which, how and in what ways the HSCVF programme has built organisational and community capacity across the national and local HSCVF projects, as well as on the health and social outcomes that resulted

    Pillars for Progress on the Right to Health: Harnessing the Potential of Human Rights Through a Framework Convention on Global Health

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    Ever more constitutions incorporate the right to health, courts continue to expand their right to health jurisprudence, and communities and civil society increasingly turn to the right to health in their advocacy. Yet the right remains far from being realized. Even with steady progress on numerous fronts of global health, vast inequities at the global and national levels persist, and are responsible for millions of deaths annually. We propose a four-part approach to accelerating progress towards fulfilling the right to health: 1) national legal and policy reform, incorporating right to health obligations and principles including equity, participation, and accountability in designing, implementing, and monitoring the health sector, as well as an all-of-government approach in advancing the public\u27s health; 2) litigation, using creative legal strategies, enhanced training, and promotion of progressive judgments to increase courts\u27 effectiveness in advancing the right to health; 3) civil society and community engagement, empowering communities to understand and claim this right and building the capacity of right to health organizations; and 4) innovative global governance for health, strengthening World Health Organization leadership on health and human rights, further clarifying the international right to health, ensuring sustained and scalable development assistance, and conforming other international legal regimes (e.g., trade, intellectual property, and finance) to health and human rights norms. We offer specific steps to advance each of these areas, including how a new global health treaty, a Framework Convention on Global Health, could help construct these four pillars

    Potentialities and constraints in the relation between social innovation and public policies: some lessons from South America

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    Social innovation (SI) can offer alternative forms of organization and novel solutions to complex problems faced by contemporary societies. As governments face increasing pressures from mounting societal challenges, it is assumed that SI can provide bottom-up solutions in ways that can create transformative change. However, the dialectic relation between bottom-up initiatives and government can be difficult and sometimes contradictory. Even more, assumptions about the diminishing powers of government can be misleading and overstress the role of SI. Based on the study of the recent South American experience, we have departed from this assumption, seeking to understand what the role of public policies as initiators or supporters of SI could be. We analyzed two top-down initiatives promoted by public policies that ultimately fostered SI in Argentina, the subsistence agriculture “Pro-Huerta” program and the policies of the National Technology and Social Innovation Program, and one complementary case study of a bottom-up SI experience in Brazil, the One Million Cisterns Program, which was later inserted into public policies. Together, these cases have allowed us to understand the potentialities and limitations of SI and the kind of dialectic relations they established with public policies. In particular, we have considered how public policies can foster and support SI.Fil: Gordon, Ariel. Universidad Nacional de Quilmes. Departamento de Economía y Administracion; Argentina. Consejo Nacional de Investigaciones Científicas y Técnicas; ArgentinaFil: Becerra, Lucas Dardo. Universidad Nacional de Quilmes. Centro de Estudios e Investigación. Instituto de Estudios Sobre la Ciencia y Tecnología; Argentina. Consejo Nacional de Investigaciones Científicas y Técnicas; ArgentinaFil: Fressoli, Juan Mariano. Centro de Investigaciones para la Transformación; Argentina. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentin

    Evaluation of the self directed support pilot for children and young adults with a physical disability

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    Disability and Community Care Services, Department of Communities commissioned an evaluation of the outcomes, process and costs of the Self Directed Support pilot by a research team led by the Social Policy Research Centre.  This final report provides findings about the outcomes for participants and their families, implementation of the pilot, the process and cost analysis. It also draws together implications for future development of similar programs.  The Self Directed Support pilot had two key objectives: community inclusion and the empowerment of service users to make their own choices about their support (self direction). Self directed support enabled individuals, their families and their other informal supporters to identify their needs, lifestyles and aspirations, and set personal goals. By giving people with disabilities access to planning and case management, and control over their allocated funding, the program allowed them to be their own agents of change (Department of Communities, 2010: 7). The Queensland Department of Communities selected two service providers from a negotiated tender process to implement the Self Directed Support pilot to two groups of people with disability – children and their families, and young adults. One was the Sunshine Coast Children’s Therapy Centre (SCCTC), which supports young children (0-6 years) with physical disabilities and their family carers and significant other informal supporters. SCCTC had one full-time service coordinator. The second was the Acquired Brain Injury Outreach Service (ABIOS) in Brisbane, which supports young adults (20-35 years) with acquired brain injury and physical disability. Existing ABIOS case managers (ten) incorporated the self directed support function into their other responsibilities. The two provider

    Current Developments in Services for People with Intellectual Disabilities

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    [Taken from Executive Summary] This literature review is the culmination of the Saskatchewan Community Living Division jurisdictional study which began in the autumn of 2003. Following a brief survey of developments in providing services to people with intellectual disabilities (hitherto the People) for creating the questionnaire for this study, information was gleaned from the provinces and territories on their services. The CLD Jurisdictional Project was completed in the spring of 2005. Subsequently, a thorough search and examination of pertinent resources for serving this People and for policy development was conducted. From over 800 documents about 350 were selected for this literature review. The material is recorded in the following chapters: Public Consultation and Policy Development; Social Philosophy: the philosophical influence on contemporary social issues; Definition of disabilities; Needs assessment systems; Human Rights; Advocacy; Community services & Deinstitutionalization; Issues and Influences; Citizenship; Inclusion; Self-determination; Person-centered planning; Supports; Respite; Individualized funding; Canadian governmental initiatives; Provincial Services

    An evaluation of the Flexible Response Team: does the service provide an integrated approach to family support work?

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    Welfare technology dilemmas facing young people with intellectual impairment – some illustrated theoretical explorations

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    This is an Accepted Manuscript of an article published by Taylor & Francis in Nordic Social Work Research on 21.11.2017, available online: https://doi.org/10.1080/2156857X.2017.1403365.The introduction of new technologies, specifically Welfare Technology, is examined in this article. Illustrative examples and experiences from young adults with intellectual impairments are provided as input to our theoretical discussions. A theoretical examination of dilemmas linked to the development and introduction of WT technology within the welfare society is offered, with challenges and dilemmas linked to inclusion and exclusion. Enhanced inclusion may be supported by WT technology and promote possibilities for self-determination. On the other hand, necessities to provide surveillance may stigmatize a person as someone unlikely to take responsibility for his/her own life. Special attention is offered in this respect to issues of ambiguities and dilemmas regarding the introduction of WT in the areas of health care and social work. Three issues will be explored in relation to this area: Knowledge- and skill requirements, technological challenges and involvement/user participation accompanying control and monitoring purposes.acceptedVersio
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