Psychosocial Considerations for Children and Adolescents Living with Rare Diseases

This Special Issue of the journal Children constitutes an opportune moment to reflect on the psychosocial needs of children living with rare diseases and of their families. As medical advances, treatments, and developments have enabled many of these children to survive infancy and to live into adulthood, progress brings with it concerns and opportunities to enhance the psychosocial quality of life of children living with rare diseases, and of their families. This Special Issue reflects the current state of psychosocial research, which is primarily qualitative in nature. There are no scientifically rigorous randomized clinical trials to create an evidence base of effective psychosocial interventions for the provision of care to children with rare diseases and to their families; nevertheless, the papers within this Special Issue provide a reflection on the state of the science, including ideas about future research and practice. In this next section we share observations about the contributions made by each of the 13 articles, which cover a diverse range of topics

Insiders\u27 Guide to the Student Academic Conference: 11th Annual SAC

Minnesota State University Moorhead Student Academic Conference abstract book

Policy Implementation Analysis of District Health System to Improve Health Services: Study in North Central Timor Regency, East Nusa Tenggara Timur Province, Indonesis

Context: Improving degree of public health in a region requires quality health services. For this reason, district health system has been formed which can be implemented comprehensively to the target community. A study is needed to find out the factors that influence policy implementation so that quality of health services can be improved. This study used quantitative method with structural equation models to find patterns of the relationship between the district health system and health services. The results showed that there are 7 indicators that are part of the district health system factors, 2 indicators that are part of the resposivensss factor, 8 indicators that are part of the policy implementation factor, and 3 indicators that are part of the health service factor. These indicators have loading factor ≥ 0.5. The district health system consisting of 7 subsystems if properly implemented will have a positive impact on health services by 1.98. Contribution of policy implementation in improving health services will be great if the district health system is implemented together with responsiveness, so that the total effect becomes 2.20

Pseudo National Security System of Health in Indonesia

ABstRACt Adolescence is a crucial period where one tends to identify who they are as an individual. However, as a teenager is struggling to find his/her place in this world, it is also a time where they are prone to engaging in risk behaviors, which tend to have an extreme psychological impact. The objective was to explore the experiences of an adolescent who engages in risk behaviors and to understand their level of personal fables. The study was a qualitative design with content analysis with semi-structured interviews of ten male adolescents aged 16-18 years. The major findings of the study indicated that adolescent’s pattern of thinking revolves around the fact that they are invincible and invulnerable. Furthermore, adolescents are aware of the risks they are putting themselves through and how in the process they are hurting others. The implications of the study are to conduct more life skill programs in schools; greater awareness has to be created on the impact and harmful effects of such behaviors

Rethinking Environmentally Induced Displacement in the Global North (pubblicazione integrale della tesi di dottorato)

This research investigates how the environmentally induced displacement phenomenon is perceived in the Global North on the basis of the evidence gathered in in two Italian catatsrophes. An analysis on the environmental resources management and the vulnerability in Italy has been associated with a study over media coverage, political discourses and personal experiences about environmentally induced displacements following the two landslides in Sarno (1998) and Cerzeto (2005), highlighting the limits of the use of this concept. Moreover, this research illustrated how, contrarily to the current debate, the phenomenon is likely to occur both in the Global North and Global South contexts. The theoretical, political and media discourses and representations seem to be, in fact, mostly focused on specific geographical areas of the Global South. The motivations behind these different descriptions and narratives on the same concept are investigated, through geographical and political science tools. The findings of this research reveal a political agenda exploiting the debate to reinforce the power unbalance within the Global North and between the Global North and the Global South