Designing a web-application to support home-based care of childhood CKD stages 3-5: Qualitative study of family and professional preferences

Background: There is a lack of online, evidence-based information and resources to support home-based care of childhood CKD stages 3-5. Methods. Qualitative interviews were undertaken with parents, patients and professionals to explore their views on content of the proposed online parent information and support (OPIS) web-application. Data were analysed using Framework Analysis, guided by the concept of Self-efficacy. Results: 32 parents, 26 patients and 12 professionals were interviewed. All groups wanted an application that explains, demonstrates, and enables parental clinical care-giving, with condition-specific, continously available, reliable, accessible material and a closed communication system to enable contact between families living with CKD. Professionals advocated a regularly updated application to empower parents to make informed health-care decisions. To address these requirements, key web-application components were defined as: (i) Clinical care-giving support (information on treatment regimens, video-learning tools, condition-specific cartoons/puzzles, and a question and answer area) and (ii) Psychosocial support for care-giving (social-networking, case studies, managing stress, and enhancing families' health-care experiences). Conclusions: Developing a web-application that meets parents' information and support needs will maximise its utility, thereby augmenting parents' self-efficacy for CKD caregiving, and optimising outcomes. Self-efficacy theory provides a schema for how parents' self-efficacy beliefs about management of their child's CKD could potentially be promoted by OPIS. © 2014 Swallow et al.; licensee BioMed Central Ltd

Accessibility of Health Data Representations for Older Adults: Challenges and Opportunities for Design

Health data of consumer off-the-shelf wearable devices is often conveyed to users through visual data representations and analyses. However, this is not always accessible to people with disabilities or older people due to low vision, cognitive impairments or literacy issues. Due to trade-offs between aesthetics predominance or information overload, real-time user feedback may not be conveyed easily from sensor devices through visual cues like graphs and texts. These difficulties may hinder critical data understanding. Additional auditory and tactile feedback can also provide immediate and accessible cues from these wearable devices, but it is necessary to understand existing data representation limitations initially. To avoid higher cognitive and visual overload, auditory and haptic cues can be designed to complement, replace or reinforce visual cues. In this paper, we outline the challenges in existing data representation and the necessary evidence to enhance the accessibility of health information from personal sensing devices used to monitor health parameters such as blood pressure, sleep, activity, heart rate and more. By creating innovative and inclusive user feedback, users will likely want to engage and interact with new devices and their own data

Being-blind-in-the-world: a phenomenological analysis of blindness and a formulation of new objectives in rehabilitation

This work contains a phenomenological analysis of blindness, providing a basis for the evaluation of rehabilitation practice in South Africa and the formulation of future objectives in the field. Stereotypes of blindness associated with the perspectives of consumerism, scientific research, and social casework are analysed. Theories of blindness proposed by Braverman, Carroll, Monbeck, Foulke, Jernigan, and Scott are critically examined. The findings give substance to the claim that professional workers with the blind are guided in their attitudes and actions by images and meanings originating from these sources. All such preconceptions are rejected in favour of a description of blindness in terms of actual experience. An in-depth study of experience reveals how the nature of perception determines the blind person's relationship with the physical environment, with other people, and with the welfare system. In each sphere limitations arise which are overcome by specific responses and appropriate techniques. These observations lead to the formulation of a set of basic principles of rehabilitation, stressing the importance of individualization, self-reliance, assertiveness, versatility, and a personal interpretation of blindness. The relevance of traditional modalities is explained, while the need to expand rehabilitation teaching to include assertive skills training and various types of vocational instruction is emphasized. Current rehabilitation practice in South Africa is evaluated, comparisons being drawn with programmes offered by Beit Halochem in Tel Aviv, Arkansas Enterprises for the Blind, and the Center for Independent Living of the New York Infirmary. South African training is characterized as fostering the independence of the individual. Negative features are the lack of an effective delivery system and failure to meet the priority needs of certain groups. This prepares the way for a case study in which the redevelopment of rehabilitation services for the blind in South Africa .is discussed, beginning with the establishment of a new national rehabilitation centre. Amongst other matters, the study deals with negotiations to circumvent restrictive legislation, funding through a system of corporate sponsorship, and purposeful architectural design. The rehabilitation centre is viewed as the first component of a broader strategy to provide rehabilitation training to all blind people in South Africa, incorporating national, urban, rural, and specialized services. The successful implementation of any action plan will require the participation of blind people themselves by way of a disability rights movement. Finally, attention is focused on the effect of South African racial policies on welfare work. The principle of equal opportunity cannot be practised under present legislation

Teaching Learners with Visual Impairment

This book, Teaching Learners with Visual Impairment, focuses on holistic support to learners with visual impairment in and beyond the classroom and school context. Special attention is given to classroom practice, learning support, curriculum differentiation and assessment practices, to mention but a few areas of focus covered in the book. In this manner, this book makes a significant contribution to the existing body of knowledge on the implementation of inclusive education policy with learners affected by visual impairment

Externalities and Enterprise Software: Helping and Hindering Legal Compliance

Enterprise software helps organizations comply with laws and regulations, yet software itself creates negative externalities that can undermine rights and laws. Software developers are an important regulatory force, yet many know little about how law and software interact. This work examines developer understanding of legal concepts and examples of the software code and law relationship: payroll, Sarbanes Oxley Act, web accessibility, and data protection

Health of the working-age population

Strokovnjaki raziskujejo, kako izboljšati, zagotavljati in ohraniti zdravje delovno aktivne populacije, sodobne države pa podpirajo izsledke raziskav z zakonodajo, ki nalaga delodajalcem, da temu področju namenijo posebno pozornost. Kako je v praksi? Katere so poglavitne težave in izzivi reševanja le-teh? Koliko nam lahko pri odpravljanju težav pomagajo informacijsko komunikacijske tehnologije in koliko "zdrava pamet"? Na omenjena vprašanja skuša odgovoriti pričujoča publikacija, ki je nastala v okviru znanstvene in strokovne konference Zdravje delovno aktivne populacije. V prispevkih avtorji predstavljajo aktualne študije in sodobne pristope, ki se uporabljajo v praksi na področju zdravstvene preventive in promocije zdravja delovno aktivne populacije

Virtual Reality Games for Motor Rehabilitation

This paper presents a fuzzy logic based method to track user satisfaction without the need for devices to monitor users physiological conditions. User satisfaction is the key to any product’s acceptance; computer applications and video games provide a unique opportunity to provide a tailored environment for each user to better suit their needs. We have implemented a non-adaptive fuzzy logic model of emotion, based on the emotional component of the Fuzzy Logic Adaptive Model of Emotion (FLAME) proposed by El-Nasr, to estimate player emotion in UnrealTournament 2004. In this paper we describe the implementation of this system and present the results of one of several play tests. Our research contradicts the current literature that suggests physiological measurements are needed. We show that it is possible to use a software only method to estimate user emotion

Retrying Leopold and Loeb: A Neuropsychological Perspective

They called it the crime of the century; in 1924 in Chicago two brilliant, well-educated, and wealthy young men kidnapped and murdered a 14-year-old boy and killed him for the thrill of it . Expert testimony was presented by several well-known psychiatrists and psychologists, but even with all their clinical insights, none could reach a conclusion about the causal relation between their disturbed childhoods and a violent senseless crime. In fact, the well-known criminal defense attorney Clarence Darrow made little mention of the extensive psychiatric and psychological workups, and the judge did not deal with it in his sentencing. A review of the findings does suggest a delusional disorder for one of the defendants and psychopathy for the other; the interaction of these two disordered personalities led to a perfect storm a confluence of factors that only in combination could result in the brutal crime. Recent developments in neuropsychology allow us to see how these two disordered personalities interacted; the neuropsychological basis of delusional disorder and of psychopathy will be explored in this presentation along with a re-imagined closing argument by their attorney

INFORMATION FOR ELDERLY PEOPLE: A VITAL BUT MISSING LINK IN COMMUNITY CARE

Merged with duplicate record 10026.1/1871 on 08.03.2017 by CS (TIS)The aim of this thesis has been to explore the interrelationship between elderly people and information. A case-study approach was adopted which examined whether the information needs of elderly people (consumers) in relation to community care had, in their perception. been addressed by the Information Strategy developed by the Social Services Department of one shire county (providers) in response to the Community Care Act 1990 to provide information about its services and how to access them. Two key findings emerge from the research. Firstly, elderly people's information needs in relation to community care have not been addressed by the Information Strategy. Secondly, the Strategy has encountered a number of implementation problems, namely communication difficulties, interagency issues and the gatekeeping role of frontline staff in information provision. The findings from the thesis suggest that a Community Care Information Strategy should be based on three key elements. It should acknowledge that elderly people are likely to comprise the largest single group in receipt of community care services. It should recognise that potential and current users of community care services are a heterogeneous group, with a diverse range of information and service needs. Finally, it should be based on an understanding of the information seeking behaviour of potential and current users of community care services and their preferred methods of information provision, and on an awareness of the likely barriers to information which may be in operation