2,271 research outputs found

    Social Justice Documentary: Designing for Impact

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    Explores current methodologies for assessing social issue documentary films by combining strategic design and evaluation of multiplatform outreach and impact, including documentaries' role in network- and field-building. Includes six case studies

    The Evolution of Gero-Oncology Nursing

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    This article summarizes the evolution of gero-oncology nursing and highlights key educational initiatives, clinical practice issues, and research areas to enhance care of older adults with cancer

    Navigating cancer using online communities: a grounded theory of survivor and family experiences

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    Purpose: People affected by cancer often have unmet emotional and social support needs. Online cancer communities are a convenient channel for connecting cancer survivors, allowing them to support one another. However, it is unclear whether online community use makes a meaningful contribution to cancer survivorship, as little previous research has examined the experience of using contemporary cancer communities. We aimed to explore the experiences of visitors to online cancer communities. Methods: Twenty-three in-depth interviews were conducted with online cancer community visitors, including cancer survivors (n = 18), family members (n = 2), and individuals who were both a survivor and family member (n = 3). Interviews were analysed using a grounded theory approach. Results: A theory developed explaining how individuals ‘navigated’ the experience of cancer using online cancer communities. Online advice and information led participants on a ‘journey to become informed’. Online friendships normalised survivorship and cast participants on a ‘journey to recreate identity’. Participants navigated a ‘journey through different worlds’ as they discovered relevant and hidden communities. Conclusions: This theory highlights virtual paths people affected by cancer can take to self-manage their experience of the disease. Online community experiences can be improved by promoting online evaluation skills and signposting visitors to bereavement support. Implications for cancer survivors: Cancer survivors can benefit through both lurking and posting in online communities. However, individuals risk becoming distressed when they befriend individuals who may soon die. Additionally, people affected by rarer cancers can struggle to find shared experiences online and may need to look elsewhere for support

    Care of Adult Cancer Survivors

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    As innovative cancer treatments emerge, more people are surviving cancer. Cancer survivors have multiple and unique healthcare needs due to their cancer and cancer treatments. Communication among those treating the cancer, primary care providers, and cancer survivors is necessary to coordinate care once treatment is finished. The development of a survivorship care plan that is reviewed with the cancer survivor is intended to facilitate communication among all stakeholders. This quality improvement project examined current practice in a survivorship clinic in a Midwestern health system cancer center that cares for a variety of types of cancer patients. By reviewing evidence in the literature regarding cancer survivorship care, a quality improvement project was designed and implemented to standardize cancer survivorship care. Clinician education led to increased knowledge regarding Commission on Cancer requirements for survivorship care (p-Value 0.0016), and 100% were able to identify time parameters for survivorship care. Overall, a low rate of survivorship care and care plans were found. An 18% increase in patients being offered survivorship care (p-Value 0.18) occurred post education and identification of need for care. A survey of patients who received survivorship care found patients used the survivorship care plan and reported more support with symptom management when a plan was mailed and reviewed over the phone

    A model of consultation in prostate cancer care:evidence from a systematic review

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    Background: There has been an evolution of various consultation models in the literature. Men affected by prostate cancer can experience a range of unmet supportive care needs. Thus, effective consultations are paramount in the delivery of supportive care to optimize tailored self-management plans at the individual level of need. Objective: The aim of this study is to critically appraise existing models of consultation and make recommendations for a model of consultation within the scope of clinical practice for prostate cancer care. Methods: A systematic review was conducted according to the Preferred Reporting Items for Systematic Reviews and Meta-Analyses Statement Guidelines. Electronic databases were searched using a wide range of keywords and free text items to increase the sensitivity and inclusiveness of the searches. Findings were integrated in a narrative synthesis. Results: A total of 1829 articles were retrieved and 17 papers were included. Beneficial features ranged across a number of models that included a person-centered consultation, shared management plans, and safety netting. None of the reviewed models of consultation are suitable for use in prostate cancer care because of a range of limitations and the clinical context in which models were developed. A Cancer Care Consultation Model was informed from critical appraisal of the evidence and expert clinical and service user comment. Conclusion: Further research is needed to empirically test consultation models in routine clinical practice, specifically for advanced cancer specialist nurses. Implications for Practice: The Prostate Cancer Model of Consultation can be used to structure clinical consultations to target self-management care plans at the individual level of need over the cancer care continuum

    Knowledge Sharing in Online Cancer Survivorship Community System: A Theoretical Framework

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    Innovative uses of technology to support patient to patient or patient to clinician knowledge sharing are emerging through professional health institutions and communities that take advantage of social networking technologies. Although successful online health communities exist, many such communities do fail. Researchers have stated that the reason for these failures is due to the lack of evidence-based, scientific guidance in building and managing online communities. Knowledge sharing among participants is important for the survival of online health communities. The most difficult and challenging task for online health communities is to understand why certain participants share knowledge in a sustained manner while others do not. The purpose of this study is to identify the conditions that will predict and prescribe a successful online health community. We propose a theoretical model that presents computer self-efficacy, system capabilities, patient characteristics, appropriation support as determinants of knowledge sharing. We also propose that knowledge sharing affects satisfaction, and frequent usage of online health community networks within online cancer survivorship community

    Healing conversations: Developing a practical framework for clinical communication between Aboriginal communities and healthcare practitioners

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    In recognition of the ongoing health disparities experienced by Aboriginal and Torres Strait Islander peoples (hereafter Aboriginal), this scoping review explores the role and impact of the clinical communication process on Aboriginal healthcare provision. A medical education lens is applied, looking at the utility of a tailored clinical communication framework to assist health practitioners work more effectively with Aboriginal peoples and communities. The initial framework, building on existing communication guides, proposes four domains: content, process, relational and environmental. It places emphasis on critical self-reflection of the health practitioner’s own cultural identity and will be guided by collective Aboriginal world-views in select Australian settings. Using a two-eyed seeing approach the framework will be developed and tested in health professional education. The aim of this research journey is to enable health practitioners to have more effective healthcare conversations with Aboriginal peoples, working toward more socially just and equitable healthcare interactions and outcome

    Wisconsin Comprehensive Cancer Control plan 2010-2015

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    The Wisconsin Comprehensive Cancer Control Plan 2010-2015 (WI CCC Plan) was developed in collaboration with partners across Wisconsin. Strategies and action steps across the cancer continuum are presented\uef\ubf\ubc\uef\ubf\ubcthroughout the WI CCC Plan for organizations to implement over the next five years to reduce the burden of cancer in the state.Suggested Citation: Wisconsin Comprehensive Cancer Control Plan 2010-2015. Madison, WI: University of Wisconsin Carbone Cancer Center and Wisconsin Department of Health Services; 2010. Available online at: www.wicancer.org.Publication date from document properties./wisconsin_ccc_plan_2010_2015.pd
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