The future of social is personal: the potential of the personal data store

This chapter argues that technical architectures that facilitate the longitudinal, decentralised and individual-centric personal collection and curation of data will be an important, but partial, response to the pressing problem of the autonomy of the data subject, and the asymmetry of power between the subject and large scale service providers/data consumers. Towards framing the scope and role of such Personal Data Stores (PDSes), the legalistic notion of personal data is examined, and it is argued that a more inclusive, intuitive notion expresses more accurately what individuals require in order to preserve their autonomy in a data-driven world of large aggregators. Six challenges towards realising the PDS vision are set out: the requirement to store data for long periods; the difficulties of managing data for individuals; the need to reconsider the regulatory basis for third-party access to data; the need to comply with international data handling standards; the need to integrate privacy-enhancing technologies; and the need to future-proof data gathering against the evolution of social norms. The open experimental PDS platform INDX is introduced and described, as a means of beginning to address at least some of these six challenges

Sharing e-Health information through ontological layering

e-Health information, including patient clinical and demographic data, is very often dispersed across various environments, which either generate them or retrieve them from different sources. Healthcare professionals often need related e-health information in order to obtain a more comprehensive picture of a patient's health status. There are many obstacles to retrieving information and data from heterogeneous sources. In this paper we show that our ontological layering helps in (a) classifying requests imposed by healthcare professionals when retrieving e-health information from heterogeneous sources and (b) resolving semantic heterogeneities across repositories and composing an adequate answer to issued requests. We use a layered software architectural model based on Generic ontology for Context-aware, Interoperable and Data sharing (Go- CID) software applications, applicable to e-Health environments. Ontological layering and reasoning have been demonstrated with semantic web technologies

Smartphone as an Edge for Context-Aware Real-Time Processing for Personal e-Health

The medical domain is facing an ongoing challenge of how patients can share their health information and timeline with healthcare providers. This involves secure sharing, diverse data types, and formats reported by healthcare-related devices. A multilayer framework can address these challenges in the context of the Internet of Medical Things (IoMT). This framework utilizes smartphone sensors, external services, and medical devices that measure vital signs and communicate such real-time data with smartphones. The smartphone serves as an “edge device” to visualize, analyze, store, and report context- aware data to the cloud layer. Focusing on medical device connectivity, mobile security, data collection, and interoperability for frictionless data processing allows for building context-aware personal medical records (PMRs). These PMRs are then securely transmitted through a communication protocol, Message Queuing Telemetry Transport (MQTT), to be then utilized by authorized medical staff and healthcare institutions. MQTT is a lightweight, intuitive, and easy-to-use messaging protocol suitable for IoMT systems. Consequently, these PMRs are to be further processed in a cloud computing platform, Amazon Web Services (AWS). Through AWS and its services, architecting a customized data pipeline from the mobile user to the cloud allows displaying of useful analytics to healthcare stakeholders, secure storage, and SMS notifications. Our results demonstrate that this framework preserves the patient’s health-related timeline and shares this information with professionals. Through a serverless Business intelligence interactive dashboard generated from AWS QuickSight, further querying and data filtering techniques are applied to the PMRs which identify key metrics and trends

CRUD-DOM: a model for bridging the gap between the object-oriented and the relational paradigms

Best Paper AwardObject-oriented programming is the most successful programming paradigm. Relational database management systems are the most successful data storage components. Despite their individual successes and their desirable tight binding, they rely on different points of view about data entailing difficulties on their integration. Some solutions have been proposed to overcome these difficulties, such as Embedded SQL, object/relational mappings (O/RM), language extensions and even Call Level Interfaces (CLI), as JDBC and ADO.NET. In this paper we present a new model aimed at integrating object-oriented languages and relational databases, named CRUD Data Object Model (CRUD-DOM). CRUDDOM relies on CLI (JDBC) and aims not only at exploring CLI advantages as preserving its performance and SQL expressiveness but also on providing a typestate approach for the implementation of the ResultSet interface. The model design aims to facilitate the development of automatic code generation tools. We also present such a tool, called CRUD Manager (CRUD-M), which provides automatic code generation with a complementary support for software maintenance. This paper shows that CRUD-DOM is an effective model to address the aforementioned objectives.(undefined