17 research outputs found

    Personal health records and personal health record systems: a report recommendation from the National Committee on Vital and Health Statistics

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    President Bush and Secretary Leavitt have put forward a vision that, in the Secretary\ue2\u20ac\u2122s words, \ue2\u20ac\u153would create a personal health record that patients, doctors and other health care providers could securely access through the Internet no matter where a patient is seeking medical care.\ue2\u20ac? The National Health Information Infrastructure Workgroup of the National Committee on Vital and Health Statistics (NCVHS) held six hearings on personal health records (PHRs) and PHR systems in 2002-2005. On the basis of those hearings, the Workgroup developed a letter report with twenty recommendations that it sent to the Secretary in September 2005. Citing the role PHR systems could play in improving health and healthcare and furthering the broad health information technology agenda, the letter report urges the Secretary to exercise leadership and give priority to developing PHRs and PHR systems, consistent with the Committee\ue2\u20ac\u2122s recommendations. The present report is a slightly expanded version of the letter report sent to the Secretary. Although substantively unchanged, it adds clarifying information for a broader audience.Acknowledgements -- Executive summary -- Background -- Personal Health records are evolving in concept and practice (Recommendations 1-2) -- Personal health record systems\ue2\u20ac\u2122 value depends on users, sponsors, and functionality -- Privacy (Recommendations 3-7) -- Security requirements (Recommendations 8-9) -- Interoperability (Recommendations 10-14) -- Federal Roles in PHR systems, internal and external (Recommendations 15-16) -- Advancing research and evaluation on PHR systems (Recommendations 17-20) -- Next steps for NCVHS"Developed by the Workgroup on the National Health Information Infrastructure (NHII) of the National Committee on Vital and Health Statistics"--P. 2.Also available via the World Wide Web.Includes bibliographical references

    Telemedicine

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    Telemedicine is a rapidly evolving field as new technologies are implemented for example for the development of wireless sensors, quality data transmission. Using the Internet applications such as counseling, clinical consultation support and home care monitoring and management are more and more realized, which improves access to high level medical care in underserved areas. The 23 chapters of this book present manifold examples of telemedicine treating both theoretical and practical foundations and application scenarios

    Digital Transformation and Public Services

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    Through a series of studies, the overarching aim of this book is to investigate if and how the digitalization/digital transformation process affects various welfare services provided by the public sector, and the ensuing implications thereof. Ultimately, this book seeks to understand if it is conceivable for digital advancement to result in the creation of private/non-governmental alternatives to welfare services, possibly in a manner that transcends national boundaries. This study also investigates the possible ramifications of technological development for the public sector and the Western welfare society at large. This book takes its point of departure from the 2016 Organization for Economic Co-operation and Development (OECD) report that targets specific public service areas in which government needs to adopt new strategies not to fall behind. Specifically, this report emphasizes the focus on digitalization of health care/social care, education, and protection services, including the use of assistive technologies referred to as "digital welfare." Hence, this book explores the factors potentially leading to whether state actors could be overrun by other non-governmental actors, disrupting the current status quo of welfare services. The book seeks to provide an innovative, enriching, and controversial take on society at large and how various aspects of the public sector can be, and are, affected by the ongoing digitalization process in a way that is not covered by extant literature on the market. This book takes its point of departure in Sweden given the fact that Sweden is one of the most digitalized countries in Europe, according to the Digital Economy and Society Index (DESI), making it a pertinent research case. However, as digitalization transcends national borders, large parts of the subject matter take on an international angle. This includes cases from several other countries around Europe as well as the United States

    Preface

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    Comprehending the Safety Paradox and Privacy Concerns with Medical Device Remote Patient Monitoring

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    Medical literature identifies a number of technology-driven improvements in disease management such as implantable medical devices (IMDs) that are a standard treatment for candidates with specific diseases. Among patients using implantable cardiac defibrillators (ICD), for example, problems and issues are being discovered faster compared to patients without monitoring, improving safety. What is not known is why patients report not feeling safer, creating a safety paradox, and why patients identify privacy concerns in ICD monitoring. There is a major gap in the literature regarding the factors that contribute to perceived safety and privacy in remote patient monitoring (RPM). To address this gap, the research goal of this study was to provide an interpretive account of the experience of RPM patients. This study investigated two research questions: 1) How did RPM recipients perceive safety concerns?, and 2) How did RPM recipients perceive privacy concerns? To address the research questions, in-depth, semi-structured interviews were conducted with six participants to explore individual perceptions in rich detail using interpretative phenomenological analysis (IPA). Four themes were identified and described based on the analysis of the interviews that include — comfort with perceived risk, control over information, education, and security — emerged from the iterative review and data analysis. Participants expressed comfort with perceived risk, however being scared and anxious were recurrent subordinate themes. The majority of participants expressed negative feelings as a result of an initial traumatic event related to their devices and lived in fear of being shocked in inopportune moments. Most of these concerns stem from lack of information and inadequate education. Uncertainties concerning treatment tends to be common, due to lack of feedback from ICD RPM status. Those who knew others with ICD RPM became worrisome after hearing about incidences of sudden cardiac death (SCD) when the device either failed or did not work adequately to save their friend’s life. Participants also expressed cybersecurity concerns that their ICD might be hacked, maladjusted, manipulated with magnets, or turned off. They believed ICD RPM security was in place but inadequate as well as reported feeling a lack of control over information. Participants expressed wanting the right to be left alone and in most cases wanted to limit others’ access to their information, which in turn, created conflict within families and loved ones. Geolocation was a contentious node in this study, with most of participants reporting they did not want to be tracked under any circumstances. This research was needed because few researchers have explored how people live and interact with these newer and more advanced devices. These findings have implications for practice relating to RPM safety and privacy such as identifying a gap between device companies, practitioners, and participants and provided directions for future research to discover better ways to live with ICD RPM and ICD shock
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