Experiences with community engagement and informed consent in a genetic cohort study of severe childhood diseases in Kenya

<p>Abstract</p> <p>Background</p> <p>The potential contribution of community engagement to addressing ethical challenges for international biomedical research is well described, but there is relatively little documented experience of community engagement to inform its development in practice. This paper draws on experiences around community engagement and informed consent during a genetic cohort study in Kenya to contribute to understanding the strengths and challenges of community engagement in supporting ethical research practice, focusing on issues of communication, the role of field workers in 'doing ethics' on the ground and the challenges of community consultation.</p> <p>Methods</p> <p>The findings are based on action research methods, including analysis of community engagement documentation and the observations of the authors closely involved in their development and implementation. Qualitative and quantitative content analysis has been used for documentation of staff meetings and trainings, a meeting with 24 community leaders, and 40 large public and 70 small community group meetings. Meeting minutes from a purposive sample of six community representative groups have been analysed using a thematic framework approach.</p> <p>Results</p> <p>Field workers described challenges around misunderstandings about research, perceived pressure for recruitment and challenges in explaining the study. During consultation, leaders expressed support for the study and screening for sickle cell disease. In community meetings, there was a common interpretation of research as medical care. Concerns centred on unfamiliar procedures. After explanations of study procedures to leaders and community members, few questions were asked about export of samples or the archiving of samples for future research.</p> <p>Conclusions</p> <p>Community engagement enabled researchers to take account of staff and community opinions and issues during the study and adapt messages and methods to address emerging ethical challenges. Field workers conducting informed consent faced complex issues and their understanding, attitudes and communication skills were key influences on ethical practice. Community consultation was a challenging concept to put into practice, illustrating the complexity of assessing information needs and levels of deliberation that are appropriate to a given study.</p

Disaster Resilience Education and Research Roadmap for Europe 2030 : ANDROID Report

A disaster resilience education and research roadmap for Europe 2030 has been launched. This roadmap represents an important output of the ANDROID disaster resilience network, bringing together existing literature in the field, as well as the results of various analysis and study projects undertaken by project partners.The roadmap sets out five key challenges and opportunities in moving from 2015 to 2030 and aimed at addressing the challenges of the recently announced Sendai Framework for Disaster Risk Reduction 2015-2030. This roadmap was developed as part of the ANDROID Disaster Resilience Network, led by Professor Richard Haigh of the Global Disaster Resilience Centre (www.hud.ac.uk/gdrc ) at the School of Art, Design and Architecture at the University of Huddersfield, UK. The ANDROID consortium of applied, human, social and natural scientists, supported by international organisations and a stakeholder board, worked together to map the field in disaster resilience education, pool their results and findings, develop interdisciplinary explanations, develop capacity, move forward innovative education agendas, discuss methods, and inform policy development. Further information on ANDROID Disaster Resilience network is available at: http://www.disaster-resilience.netAn ANDROID Disaster Resilience Network ReportANDROI

Addressing Students’ Mental Health Needs in Faculty-Led Study Abroad Courses

The increased enrollment of students with mental health needs in U.S. higher education, paired with increasing emphasis on study abroad participation has led campus mental health professionals to consider how their services might extend to serve students with mental health needs who are studying abroad. When it comes to faculty led courses, instructors can play a key role in providing on-the-ground support for students experiencing mental health challenges. The findings from this study provide key insights that college mental health professionals can use to better understand and support these instructors as they serve on the front lines of addressing students’ mental health needs while they are away from campus. In particular, our findings point to key ways that college mental health professionals can partner with education abroad offices to provide effective pre-departure training and in-country support for faculty instructors

Concept, Principles and Research Methods of African Environmental Ethics

[English] This paper aims to discuss ten traditional and contemporary methodological paradigms in African philosophy, and demonstrates how they may apply to African environmental ethics research. The methods include: Ethno-philosophy, Sage Philosophy, Conversational Philosophy, Conceptual Mandelanization, Eco-Afrocentricism, Indigenous Language Analysis, Eco-Afro-feminism, Conceptual Decolonization, Storytelling Philosophy, and Cultural Adaptationism. The significance and limitations of the methodologies are highlighted. The concept and principles of African environmental ethics are analyzed and discussed to facilitate an understanding of the conceptual frameworks that underpin the methodologies. In conclusion, the discourse demonstrates that environmental ethics research in Africa should be based on African philosophical methodologies so as to facilitate production of research that will be relevant in African contexts. [Annang] N̄wed nduongo ami ayem ibene nwọ́d mme n̄kaan nne mfa usung unam nduongo ke vilọsọvi Afrịke , nne nte amọ ekeme iwam unam nduongo mbanga ido ukpeme nkan-nkuk ke Afrịke. Mme usung unam nduongo ami nsehe ade ami: vilọsọvi mben ufọk, vilọsọvi n̄kan ideen, vilọsọvi nneme, vilọsọvi Mandela, “Eco-Afrocentricism”, nduongore usem utiit ajid, vilọsọvi ibaan Afrịke, vilọsọvi mkpọk-nyak, vilọsọvi n̄ke, nne ukpep ido idung agwo. N̄wed ami abene awọd mme ikek nne nde mem idem usung nduongo ami. N̄wed ami atang mkpọ abanga se ido ukpeme nkan-nkuk ke Afrịke anwongo nne mme itai amọ, nne nte amọ ewam mbon nduongo ediọhọ nnanga ekpekakpa ibọrọ nduongo amọ. Ke n̄suuk ikọ, ukpep ami mkpọ abene awọd ate ke ekpena ekama usung nduongo vilọsọvi Afrịke enam nduongo ebanga ido ukpeme nkan-nkuk ke Afrịke man ibọrọ nduongo asanga akekem nne se adiiwam Afrịke

On the Map: Charting the Landscape of Girl Work

This document presents the United Nations Foundation (UNF) and the International Center for Research on Women (ICRW) and how they have worked for many years to advance girls around the world. Recognizing the recent growth in girl-related attention and investment, ICRW undertook an initial mapping exercise in 2009 to understand more about the current landscape of "girl work" in the developing world. This paper presents the key findings from this exercise, describing what we have learned about the donors and organizations engaged in girl work, the policy and program efforts underway, and current and future directions for the field. It is hoped that the findings and considerations emerging from this mapping exercise will contribute toward a more strategic and coordinated effort to mobilize additional actors, resources and ideas on behalf of girls around the worl

The Potential of Positioning: Assessing New Directions for an Integrated, Feminist International Political Economy

Feminist analyses of International Political Economy (IPE) currently face a significant epistemological challenge. By seeking to engage with mainstream political economists, feminist IPE scholars have narrowed the interdisciplinary approach that is common in most contemporary feminist scholarship to instead focus almost exclusively on the effects of neoliberal globalization. However, this focus has proved unsuccessful in garnering the interest of most mainstream international political economists and has isolated these scholars from feminist research in other disciplines. This paper argues that feminist IPE could gain significant leverage within its field by employing an interdisciplinary approach that links broader feminist issue such as violence against women to political economy. This is examined by reviewing some of the major feminist works in IPE and assessing their reception within the field of IPE. Next, the potential for broader feminist issues to garner mainstream attention in IPE is assessed by evaluating the economic implications of violence against women. In altering their epistemology to include a broader feminist analysis, feminist IPE scholars can effectively illustrate the need for feminist analysis in IPE while also wedding their research to the rich, interdisciplinary research of feminists in other fields