Connectivity for Healthcare and Well-Being Management: Examples from Six European Projects

Technological advances and societal changes in recent years have contributed to a shift in traditional care models and in the relationship between patients and their doctors/carers, with (in general) an increase in the patient-carer physical distance and corresponding changes in the modes of access to relevant care information by all groups. The objective of this paper is to showcase the research efforts of six projects (that the authors are currently, or have recently been, involved in), CAALYX, eCAALYX, COGKNOW, EasyLine+, I2HOME, and SHARE-it, all funded by the European Commission towards a future where citizens can take an active role into managing their own healthcare. Most importantly, sensitive groups of citizens, such as the elderly, chronically ill and those suffering from various physical and cognitive disabilities, will be able to maintain vital and feature-rich connections with their families, friends and healthcare providers, who can then respond to, and prevent, the development of adverse health conditions in those they care for in a timely manner, wherever the carers and the people cared for happen to be

Telecare for managing diabetes in Saudi Arabia

Saudi Arabia is struggling to provide quality healthcare services in light of the growing population, rapid spread of chronic diseases, and limited resources available. In addition to these obstacles, the Saudi society is a highly conservative one, and certain traditions may sometimes limit how healthcare services can be offered. This work examines the impact of a Telecare solution on the healthcare system at the National Guard Health Affairs (NGHA). It focuses on diabetes, and the challenges faced by both the healthcare officials at NGHA, and the patients. These challenges also include social factors that may pose at obstacle in delivering healthcare services. The ‘Telecare for Managing Diabetes – TeMaD’ system is designed and developed using the Soft Systems Methodology. It was then integrated into the hospital information systems at King Abdulaziz Medical City in the Central Region, and consisted of 52 participating patients, and four involved Diabetic Educators. HbA1c levels of all patients were recorded prior to commencement of the study. Patients were required to use TeMaD for a 3-month period, then, had their HbA1c levels recorded again after completion of the study. Overall observation of the results showed a reduction in the HbA1c levels of 83% of the patients. Participating patients expressed their acceptance of the system, indicating that TeMaD allowed them to overcome some obstacles such as lack of transportation. It also assisted the majority of participants to better manage their diabetes and ease communication with their diabetic educators. Most patients requested that the system be offered permanently at the clinic. Diabetic educators were in favour of integrating TeMaD into the current healthcare system at NGHA, and they were enthusiastic about its numerous benefits. Telecare solutions can be used to enhance the quality of healthcare services, meet current demands, and address obstacles faced by the healthcare system in Saudi Arabia, including social factors that are unique. They can be adopted by neighbouring Gulf States which share common obstacles in healthcare

HEALTH GeoJunction: place-time-concept browsing of health publications

<p>Abstract</p> <p>Background</p> <p>The volume of health science publications is escalating rapidly. Thus, keeping up with developments is becoming harder as is the task of finding important cross-domain connections. When geographic location is a relevant component of research reported in publications, these tasks are more difficult because standard search and indexing facilities have limited or no ability to identify geographic foci in documents. This paper introduces <it><smcaps>HEALTH</smcaps> GeoJunction</it>, a web application that supports researchers in the task of quickly finding scientific publications that are relevant geographically and temporally as well as thematically.</p> <p>Results</p> <p><it><smcaps>HEALTH</smcaps> GeoJunction </it>is a geovisual analytics-enabled web application providing: (a) web services using computational reasoning methods to extract place-time-concept information from bibliographic data for documents and (b) visually-enabled place-time-concept query, filtering, and contextualizing tools that apply to both the documents and their extracted content. This paper focuses specifically on strategies for visually-enabled, iterative, facet-like, place-time-concept filtering that allows analysts to quickly drill down to scientific findings of interest in PubMed abstracts and to explore relations among abstracts and extracted concepts in place and time. The approach enables analysts to: find publications without knowing all relevant query parameters, recognize unanticipated geographic relations within and among documents in multiple health domains, identify the thematic emphasis of research targeting particular places, notice changes in concepts over time, and notice changes in places where concepts are emphasized.</p> <p>Conclusions</p> <p>PubMed is a database of over 19 million biomedical abstracts and citations maintained by the National Center for Biotechnology Information; achieving quick filtering is an important contribution due to the database size. Including geography in filters is important due to rapidly escalating attention to geographic factors in public health. The implementation of mechanisms for iterative place-time-concept filtering makes it possible to narrow searches efficiently and quickly from thousands of documents to a small subset that meet place-time-concept constraints. Support for a <it>more-like-this </it>query creates the potential to identify unexpected connections across diverse areas of research. Multi-view visualization methods support understanding of the place, time, and concept components of document collections and enable comparison of filtered query results to the full set of publications.</p

A framework for assistive communications technology in cross-cultural healthcare

Rural and remote Australian Aboriginal communities suffer seriously adverse life expectancy rates, lifestyle disease complications and hospital treatment needs due to type 2 diabetes. In great part this is due to communications barriers arising from the lack of equitable acculturation within patient-practitioner consultations. This research presents a framework foundation for a computerised patient-practitioner lingua franca. Behavioural and design science ontology development delivers an intercultural patient-practitioner type 2 diabetes assistive communications system, known as P-PAC

Evaluation of using web 2.0 technologies in diabetes education for adolescent and young patients

Diabetes Mellitius is a major chronic disease with multi-organ involvement and high-cost implications. Although it has been demonstrated that structured education can control the risk of developing these complications, there is a substantial room for improvement in the educational services for these patients. E-learning can be a good solution to fill this gap. A system dynamics model was developed in this study to highlight the potential return on investment in these systems

The web 2.0 Internet: Democratized Internet collaborations in the healthcare sector

Les col•laboracions democratitzades a Internet, entenent-les com les eines participatives de la xarxa, o la Web 2.0, afecten en l'actualitat a nombrosos aspectes la nostra vida. Els acadèmics destaquen el potencial de la Web 2.0 per millorar l’aprenentatge o la salut, així com el seu continu impacte en sectors com el de la tecnologia de mitjans de comunicació. També plantegen un gran nombre de qüestions importants als professionals i estudiosos. Per exemple, la consideració crítica de la Web 2.0 com una bombolla o bé com un element més del màrqueting, que necessita d'una determinació del seu abast i naturalesa. Aquest mateix punt és aplicable a l'ús de la Web 2.0 en el sector sanitari, també anomenat com Medicina 2.0 o Sanitat 2.0. Referent a això, considerant el risc que el contingut generat per altres usuaris sigui utilitzat per prendre decisions relatives a la salut, i tenint en compte l'eficàcia no provada de la Web 2.0 com a instrument de la política sanitària, els acadèmics del tema conviden a la definició de millors models que es puguin aplicar a l'ús pràctic d'aquesta eina. Aquesta tesi es centra en l'estudi d'aquestes qüestions fonamentals, en un camp que es mou a gran velocitat, per darrera de la pràctica real, i que requereix la concertació d'una investigació interdisciplinària. Per tant, aquesta tesi incorpora set obres diferents que ofereixen àmplies perspectives sobre l'ús d'eines de col•laboració en la xarxa en el camp de l'atenció sanitària, cadascuna analitzant el tema amb una profunditat suficient com per seguir sent rellevant en un camp en ràpida evolució. Aquestes obres inclouen un examen d'(1) la Web 2.0 i (2) la Medicina 2.0, utilitzant l'anàlisi del contingut de milions de converses de la xarxa per identificar les principals qüestions pràctiques o teòriques i les tensions subjacents a cada concepte. Dos estudis addicionals analitzen (3) com i per què els metges fan servir les eines de la Web 2.0, i (4) com els metges busquen la informació en aquest context en constant moviment com és el d'Internet. Aquests dos estudis es basen en enquestes, diaris i entrevistes amb els metges que treballen en el Servei Nacional de Salut del Regne Unit. Tots dos destaquen resultats importants com ara models per a l'ús de la Medicina 2.0, o contribucions importants a la literatura com la connexió de la recerca cognitiva en la xarxa i la valoració de la informació en xarxa, tots dos camps sense connexió amb anterioritat a aquest treball. Tres estudis addicionals analitzen la web 2.0 des d'una perspectiva organitzacional, incloent (5) un estudi dels models de disseny de l'ús de la Web 2.0 en el sector farmacèutic, el qual detalla els millors models de pràctiques d'ús, i la seva clara relació amb els models de disseny de codi obert, i (6) també les estratègies d'innovació oberta al sector farmacèutic, on les eines de col•laboració en la xarxa permeten aquest tipus d'estratègies. Els dos últims estudis fan servir entrevistes amb 120 executius del sector farmacèutic analitzats a través d'anàlisi temàtic. Tots dos fan contribucions importants a la literatura mitjançant la caracterització de les estratègies d'innovació oberta i les implicacions per generar la capacitat d'absorció en el context d'innovació oberta. L'últim estudi (7) examina la Medicina 2.0 des de la perspectiva dels proveïdors de serveis de salut, per ajudar a la gestió d'ús de la Web 2.0 com un instrument per a millorar l’atenció sanitària. En general, hi ha moltes contribucions importants a la literatura, que en conjunt aconsegueixen ampliar el panorama de la Web 2.0 en l'assistència sanitària, i aporten consideracions especifiques a la literatura que abasta els sistemes d'informació, les ciències de la informació i la informàtica mèdica , així com la innovació oberta i l'estratègia. Las colaboraciones democratizadas en Internet, entendiéndolas como las herramientas participativas de la red o la Web 2.0, afectan en la actualidad a numerosos aspectos nuestra vida. Los académicos destacan el potencial de la Web 2.0 para mejorar el eAprendizaje o la salud, así como su continuo impacto en sectores como el de la tecnología de medios de comunicación. También plantean un gran número de cuestiones importantes a los profesionales y estudiosos. Por ejemplo, la consideración crítica de la Web 2.0 como una burbuja o bien como un elemento más del marketing, que necesita de una determinación de su alcance y naturaleza. Este mismo punto es aplicable al uso de la Web 2.0 en el sector sanitario, también denominado como Medicina 2.0 o Sanitad 2.0. A este respecto y considerando el riesgo de que el contenido generado por otros usuarios sea utilizado para tomar decisiones relativas a la salud, y la eficacia no probada de la Web 2.0 como instrumento de la política sanitaria; los académicos del tema invitan a la definición de mejores modelos que se puedan aplicar al uso práctico de esta herramienta. Esta tesis se centra en el estudio de estas cuestiones fundamentales, en un campo que se mueve a gran velocidad, por detrás de la práctica real, y que requiere la concertación de una investigación interdisciplinaria. Por lo tanto, esta tesis incorpora siete obras distintas que ofrecen amplias perspectivas sobre el uso de herramientas de colaboración en la red en el campo de la atención sanitaria, cada una analizando el tema con una profundidad suficiente como para seguir siendo relevante en un campo en rápida evolución. Estas obras incluyen un examen de (1) la Web 2.0 y (2) la Medicina 2.0, utilizando el análisis del contenido de millones de conversaciones de la red, para identificar las principales cuestiones prácticas o teóricas y las tensiones que subyacen a cada concepto. Dos estudios adicionales analizan (3) cómo y por qué los médicos usan las herramientas de la Web 2.0, y (4) cómo los médicos buscan la información en este contexto en constante movimiento como es el de Internet. Estos dos estudios se basan en encuestas, diarios y entrevistas con los médicos que trabajan en el Servicio Nacional de Salud del Reino Unido. Ambos destacan resultados importantes tales como modelos para el uso de la Medicina 2.0, o contribuciones importantes a la literatura como la conexión de la búsqueda cognitiva en la red y la valoración de la información en red, ambos campos sin conexión con anterioridad al presente trabajo.Tres estudios adicionales analizan la Web 2.0 desde una perspectiva organizacional, incluyendo (5) un estudio de los modelos de diseño del uso de la Web 2.0 en el sector farmacéutico, el cual detalla los mejores modelos de prácticas de uso, y su clara relación con los modelos de diseño de la open source, y (6) y también las estrategias de innovación abierta en el sector farmacéutico donde las herramientas de colaboración en la red permiten este tipo de estrategias. Los dos últimos estudios emplean entrevistas con 120 ejecutivos del sector farmacéutico analizados a través de análisis temático. Ambos hacen contribuciones importantes a la literatura mediante la caracterización de las estrategias de innovación abierta y las implicaciones para generar la capacidad de absorción en el contexto de innovación abierta. El último estudio (7) examina la Medicina 2.0 desde la perspectiva de los proveedores de servicios de salud, para ayudar a la gestión de uso de la Web 2.0 como un instrumento para la gestión de una mejor atención sanitaria. En general, hay muchas contribuciones importantes a la literatura, que en conjunto logran ampliar el panorama de la Web 2.0 en la asistencia sanitaria, y aportan consideraciones específicas a la literatura que abarca los sistemas de información, las ciencias de la información, la informática médica, así como la innovación abierta y la estrategia.Democratized internet collaborations, referring to participatory online tools or Web 2.0, now impact many aspects of people’s lives. Scholars note Web 2.0’s potential to improve eLearning or healthcare, and its ongoing impact in sectors such as tech-media. They also raise a plethora of important questions for practitioners and scholars, such as the criticism of Web 2.0 as hype or marketing term, which necessitates some determination of the scope and nature of Web 2.0. This holds equally for Web 2.0’s use in health care, denoted as Medicine 2.0 or Health 2.0. Moreover, given the risks of people using user-generated content for health decisions, and its unproven effectiveness as a health policy tool, scholars have called for best practice models of use. This thesis addresses these fundamental issues, in a field that is fast moving, behind actual practice, and that requires concerted inter-disciplinary research. Therefore, this thesis incorporates seven distinct works that provide broad perspectives on the use of online collaboration tools in healthcare, each analyzing a specific topic in enough depth to remain relevant in a fast moving field. These works include an examination of (1) Web 2.0 and (2) Medicine 2.0, using content analysis of millions of online conversations to surface the major practical or theoretical issues and tensions that underpin each concept. Two further studies examine (3) how and why doctors use Web 2.0 tools, and (4) how doctors search or forage for information in this evolving internet environment. These two studies rely on surveys, diaries and interviews from doctors working in the UK’s National Health Service (NHS). Both highlight important results, such as models for Medicine 2.0 use, or make important contributions to literature such as connecting the previously separate cognitive online search and internet information judgment literatures. Three further studies examine Web 2.0 from an organizational perspective, including (5) design patterns of Web 2.0’s use in global Pharma, which details best practice models of use and its clear link to Open Source design patterns, and (6) global Pharma’s Open Innovation strategies, where online collaboration tools enable these strategies. The latter two studies employ interviews with 120 pharmaceutical executives analyzed through thematic analysis. They make major contributions to literature by characterizing open innovation strategies and gleaning implications for Absorptive Capacity in the Open Innovation context. The final study (7) examines Medicine 2.0 form the perspective of health service providers, informing management using eHealth as an instrument for improved healthcare management. Overall, there are many major contributions to literature, which together achieve both a broad overview of Web 2.0 in healthcare, but also make specific additions to literature encompassing information systems, information science, medical informatics, and open innovation and strategy

A proposed semantic framework for diabetes education content management, customisation and delivery within the M2DM project

M2DM (multi access services for telematic management of diabetes mellitus, http://www. labmedinfo.org/research/m2dm/m2dm.htm) is an EU-funded telemedicine project that aims at increasing the quality of diabetes care by improving communication between patients and caregivers. As part of this project, we have undertaken the initial work of describing the necessary requirements (framework) of an advanced educational component for M2DM in accordance with the latest Semantic Web concepts. This paper describes our proposed semantic framework for educational content management, customisation and delivery. A big internet challenge today is to find and push situation and user-specific quality knowledge to users based on their actual individual needs, circumstances and profiles at any given time. We believe that the semantic framework presented in this paper could be a good step towards meeting this challenge. Benefits for users, both developers and end users, of adopting such framework are also discussed. The ideas discussed in this paper could be easily adapted to other similar services besides M2DM and to different health topics besides diabetes mellitus

Advancement in Dietary Assessment and Self-Monitoring Using Technology

Although methods to assess or self-monitor intake may be considered similar, the intended function of each is quite distinct. For the assessment of dietary intake, methods aim to measure food and nutrient intake and/or to derive dietary patterns for determining diet-disease relationships, population surveillance or the effectiveness of interventions. In comparison, dietary self-monitoring primarily aims to create awareness of and reinforce individual eating behaviours, in addition to tracking foods consumed. Advancements in the capabilities of technologies, such as smartphones and wearable devices, have enhanced the collection, analysis and interpretation of dietary intake data in both contexts. This Special Issue invites submissions on the use of novel technology-based approaches for the assessment of food and/or nutrient intake and for self-monitoring eating behaviours. Submissions may document any part of the development and evaluation of the technology-based approaches. Examples may include: web adaption of existing dietary assessment or self-monitoring tools (e.g., food frequency questionnaires, screeners) image-based or image-assisted methods mobile/smartphone applications for capturing intake for assessment or self-monitoring wearable cameras to record dietary intake or eating behaviours body sensors to measure eating behaviours and/or dietary intake use of technology-based methods to complement aspects of traditional dietary assessment or self-monitoring, such as portion size estimation