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Community report: a participatory approach to assessing the impact of ICT access on quality of life in KwaZulu-Natal
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My Home Life: promoting quality of life in care homes
A new report from JRF outlines the findings from the My Home Life project. My Home Life is a collaborative initiative between Age UK, City University, the Joseph Rowntree Foundation and Dementia UK promoting quality of life in care homes.
This study found:
- positive relationships in care homes enable staff to listen to older people, gain insights into individual needs and facilitate greater voice, choice and control;
- relationship-centred care is at the heart of many examples of best practice;
- care home managers play a pivotal role in promoting relationships between older people, staff and relatives;
- care home providers and statutory agencies should consider how their attitudes, practices and policies can create pressure and unnecessary paperwork which ultimately reduce the capacity of care homes to respond to the needs of older people; and
- negative stereotypes of care homes have an impact on the confidence of staff and managers
Quality of Life (QoL) in Patients with Traumatic Brain Injury (TBI): a Literature Review
Purpose: To describe the definition of quality of life (QoL) and identify the most appropriate tool for QoL assessment used in patients with TBI.Method: Searching was conducted from PubMed, CINAHL, EBSCO, and ProQuest during 2000-2011. A total of 33 studies were analyzed for this review consisting of 9 review studies, 2 intervention studies, and 22 descriptive studies.Result: Two important definitions of QoL were used in studies related to TBI namely achievement and subjective well-being. Although varieties of generic measurements have been used to measure QoL in TBI patients, there was a lack of TBI-specific Health-related Quality of Life (HRQoL) instrument. Despite the different approach and time measured either short or long outcomes, appropriate domains of QoL tool seem essential particularly among those with moderate and severe TBI.Conclusion: QoL is a wide concept which can be defined in several dimensions. The QOLIBRI as a new disease-specific QoL measurement in TBI seems a feasible and valid approach for the assessment of QoL in TBI. However, the application across cultural remains a challenge and needs a validation
Quality of life in long-term survivors of early stage endometrial cancer
Introduction. Endometrial cancer (EC) is the most common gynaecological malignancy in developed countries. Effective treatment of the early stage of the disease is achieved by surgery alone. An increasing number of patients with EC become long-term survivors; therefore, the purpose of this study was to investigate the quality-of-life (QOL) of EC survivors.
Materials and Method. A total of 328 survivors who had completed cancer treatment more than 3 years ago, and had previously completed questionnaires concerning QOL – European Organization for Research and Treatment of Cancer Quality of Life Questionnaire (EORTC QLQ-C30) and depression – Beck Depression Inventory-II (BDI-II). Patients were grouped into those with surgery alone or surgery with adjuvant radiotherapy. Responses were compared with 284 healthy women who were seen for standard gynaecologic screening examinations.
Results. According to the presented results, the QOL of women with EC after surgical treatment was equal to that of healthy women in the control group. Treatment with adjuvant radiotherapy influenced the QOL, with the exception of emotional functioning (p=0.028). No statistically significant differences were found in scores on the BDI-II between groups for the cognitive-affective factor, the somatic factor, or the total sum score.
Conclusions. The quality of life in EC survivors approximates that of healthy controls after 3 years post-surgical treatment. Patients treated for early stage EC should be informed about the anticipated good prognosis and the low risk of psychosocial and physical long-term effects. Cancer survivors who are treated by surgery and adjuvant radiotherapy may be especially at risk for emotional functioning problems
Evaluation of Quality of Life Using Short Form-36 and Visual Analogue Scale After Posterior Instrumentation and Fusion in Tuberculous Spondylitis Patients at Cipto Mangunkusumo Hospital
Introduction.Tuberculous spondylitis is a devastating health problem in Indonesia. The goal of treatment is to relieve pain, so the patients can do their daily activities. The instrument used to assess quality of life and perceived pain scale is Short Form-36 and visual analogue scale. The objective of this study is to comprehend the changes in quality of life and pain scale in tuberculous spondylitis patients before and after surgery. Materials and methods. Forty five patients with tuberculous spondylitis in Cipto Mangunkusumo Hospital were asked to fill Short Form-36 and visual analog scale before and after surgery. The data was analyzed and compared before and after surgery in 8 aspects, which is physical function, physical health, bodily pain, general health, vitality, social function, emotional problems, and mental health.Results.Surgery significantly improved patients' quality of life in all aspects with average physical component summary from 23 to 70 and mental component summary from 35 to 75 (p < 0.001). There was significant decrease in visual analog scale from seven to one. Significant correlations were seen between American Spinal Injury Association status and physical component summary, between American Spinal Injury Association status and mental component summary after surgery (r = 0.46 and r = 0.48). We categorized the patients into three groups based on duration follow up. There was increased physical component summary and mental component summary for each group. Increased quality of life was shown by improvement of Short Form-36 score. VAS score decreased significantly in post-operative group.Conclusions.Fusion and posterior instrumentation surgery improves patient's quality of life and decrease the perceived pain scale
SC Palliative Care and Quality of Life Study Committee report
In 2018, joint resolution H. 4935 created the South Carolina Palliative Care and Quality of Life Study Committee. The study committee was tasked with creating a report on the state of palliative care in South Carolina with findings and recommendations to submit to the Governor and General Assembly by the end of 2019. This is that report
The Quality of Life of Gay Community in Tulungagung, East Java, and its Associated Biopsychosocial Factors
Background: Little is known about the quality of life of gay men and lesbians living in Indonesia. Recent research has shown that lesbian, gay, and bisexual (LGB) adults have greater psychiatric morbidity and therefore lower quality of life than their heterosexual counterparts. This excess morbidity and lower quality of life are related to exposure to stressors, such as prejudice, discrimination, and violence. Stigma and discrimination that are experienced by gay community have long been documented to occur in Indonesia, including Tulungagung District, East Java. This study aimed to examine the quality of life of gay community in Tulungagung, East Java, and its associated biopsychosocial factors.
Subjects and Method: This was a cross-sectional study conducted in Pelangi Gay Community, Tulungagung District, from October to November 2017. A total sample of 181 gays was selected by stratified random sampling. The exogenous variables were sexual behavior, family income, peer support, stigma, and discrimination. The endogenous variables were family support and quality of life. The data were collected by questionnaire and analyzed by path analysis.
Results: Better quality of life was positively affected by safe sexual behavior (b= 1.32; 95% CI= 0.18 to 2.46; p= 0.023) and strong family support (b= 1.47; 95% CI= 0.42 to 2.51; p= 0.006). Strong family supportwas positively affected by family income (b= 1.62; 95% CI= 0.97 to 2.27; p= 0.001). Better quality of life was positively affected by participation in peer support program (b= 2.84; 95% CI= 1.77 to 3.91; p= 0.001), freedom of stigma (b= 1.11; 95% CI= -0.04 to 2.26; p= 0.060), and freedom of discrimination (b= 1.43; 95% CI= 0.37 to 2.48; p= 0.008).
Conclusion: Safe sexual behavior and strong family support have direct positive effect on the quality of life of gay community. Stigma and discrimination have indirect effect on lower quality of life of gay community
Keywords: quality of life, sexual behavior, family support, stigma, discrimination, ga
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