Location of Repository

Appreciation of a Child's Journey: Implementation of a Cardiac Action Research Project

By Kate Alexa Dengler, Valerie Wilson, Sarah Redshaw and Gabrielle Scarfe


The aim of this paper is to provide an overview of the phases of the action research process involved in developing, implementing, and evaluating the Heart Beads program. The aim of the project is to enrich the hospital experience of children with cardiac conditions. Heart Beads involves children receiving unique beads specific to each cardiac treatment, procedure or event in recognition of their experiences, and endurance. An action research approach, involving a partnership between clinicians and researchers and emphasising the involvement of patients and their families, was used to guide the Heart Beads program. The project followed the five phases of action research: identification, investigation, program development, implementation, and evaluation. Heart Beads began as a small project which continues to grow in popularity and significance with children at a tertiary paediatric hospital in Sydney, Australia. The program is now being implemented nationwide with the vision that all Australian children hospitalised with cardiac conditions can benefit from Heart Beads

Topics: Research Article
Publisher: Hindawi Publishing Corporation
OAI identifier: oai:pubmedcentral.nih.gov:3350988
Provided by: PubMed Central
Download PDF:
Sorry, we are unable to provide the full text but you may find it at the following location(s):
  • http://www.pubmedcentral.nih.g... (external link)
  • Suggested articles



    1. (2008). A cardiac rehabilitation program to improve psychosocial outcomes of women with heart disease,”
    2. (2004). A preventative health education programme for osteoporosis,”
    3. (2011). Action research studies in the intensive care setting: a systematic review,”
    4. (2008). Action research: developingapediatriccancerpainprograminJordan,”Journal of
    5. (2009). CATCH: development of a home-based midwifery intervention to support young pregnant smokers to quit,”
    6. (2006). Children as partners with adults in their medical care,”
    7. (2006). Children’s accounts of their preoperative information needs,”
    8. (2000). Creating meaning: a bead program for children with cancer,”
    9. (2000). D o d g s o n ,A .G a r w i c k ,S .A .B l o z i s ,J .M .P a t t e r s o n
    10. (2008). Decreasing psychological distress during the diagnosis and treatment of pediatric leukemia,”
    11. (2006). Developing a care program to better know the chronically critically ill,”
    12. (1998). Facilitating positive changes in community dementia management through participatory action research,”
    13. (2002). Family stress, perceived social support and coping following the diagnosis of a child’s congenital heart disease,”
    14. (2008). Getting research into practice: which strategies work?”NursingforWomen’sHealth,vol.12,no.3,pp.204–207,
    15. (2007). Handbook of Action Research: Participative Inquiry and Practice,
    16. (2001). M c C o r m a c k ,R .C o o p e r ,S .S u t h e r l a n d ,a n dH .S t e w a r t , “The safe use of syringe drivers for palliative care: an action research project,”
    17. (2008). Making something of it: one ward’s application of evidence into practice,”
    18. (2004). Meeting patient and relatives’ information needs upon transfer from an intensive care unit: the development and evaluation of an information booklet,”
    19. Narratives of the heart: telling the story of children with a cardiac condition through a bead program,”
    20. (2006). Negotiation of care by children’s nurses: lessons from research,” Paediatric nursing,
    21. o h e r t y ,C .G .M c C u s k e r ,B .M o l l o ye ta l . ,“ P r e d i c t o r so f psychological functioning in mothers and fathers of infants born with severe congenital heart disease,”
    22. (2005). o r s n e r ,L .J a n s s o n ,a n dV .S o e r l i e ,“ B e i n gi l la sn a rra t e db y children aged 11–18 years,”
    23. (2002). Parental stress in relationtotheseverityofcongenitalheartdiseaseintheoffspring,”
    24. (2003). Parenting stress and children with heart disease,”
    25. (2005). Participatory action research,”
    26. (2008). Pre-school children frequently seen but seldom heard in nursing care,”
    27. (2010). Shaking and rattling: developing a child obesity prevention program using a faith-based community approach,”
    28. (2002). Stress in Children:
    29. (2011). Using action research to plan a violence prevention program for emergency departments,”
    30. (2007). V.Wilson,A.Ho,andR.Walsh,“Participatoryactionresearch: changing clinical practice in nursing handover and
    31. (2007). What did they say? How children, families and nurses experience “care”,”
    32. (2002). When the child’s illness is life threatening: impact on the parents,”
    33. (2003). You and Your Action Research Project, Routledge Falmer,

    To submit an update or takedown request for this paper, please submit an Update/Correction/Removal Request.