Article thumbnail

Communication Support for People with ALS

By David Beukelman, Susan Fager and Amy Nordness

Abstract

Almost all people with amyotrophic lateral sclerosis (ALS) experience a motor speech disorder, such as dysarthria, as the disease progresses. At some point, 80 to 95% of people with ALS are unable to meet their daily communication needs using natural speech. Unfortunately, once intelligibility begins to decrease, speech performance often deteriorates so rapidly that there is little time to implement an appropriate augmentative and alternative communication (AAC) intervention; therefore, appropriate timing of referral for AAC assessment and intervention continues to be a most important clinical decision-making issue. AAC acceptance and use have increased considerably during the past decade. Many people use AAC until within a few weeks of their deaths

Topics: Review Article
Publisher: Hindawi Publishing Corporation
OAI identifier: oai:pubmedcentral.nih.gov:3096454
Provided by: PubMed Central

To submit an update or takedown request for this paper, please submit an Update/Correction/Removal Request.

Suggested articles

Citations

  1. (2005). A .H y r s k y k a r i ,P .M a j a r a n t a ,a n dK . - J .R a i h a ,“ F r o mg a z e control to attentive interfaces,”
  2. (1999). A spelling device for the paralysed,”
  3. (2000). AAC for individuals with amyotrophic lateral sclerosis,” in Augmentative and AlternativeCommunicationforAdultswithAcquiredNeurologic Disorders,D .B e u k e l m a n ,K .Y o r k s t o n ,a n dJ .R e i c h l e ,E d s . ,p p
  4. (2007). AAC intervention for ALS,” in Augmentative Communication Strategies for Adults with Acute or Chronic Medical Conditions,D .B e u k e l m a n
  5. (2004). Acceptance of augmentative and alternative communication technology by persons with amyotrophic lateral sclerosis,”
  6. (1998). Alteration of early components of the visual evoked potential in amyotrophic lateral sclerosis,”
  7. (2010). Amyotrophic lateral sclerosis and assisted ventilation: how patients decide,” Palliative and Supportive Care,
  8. (2008). An AAC personnel framework: adults with acquired complex communication needs,”
  9. (2003). Attitudes toward three communication modes used by persons with amyotrophic lateral sclerosis for storytelling to a single listener,”
  10. (2005). Augmentative and Alternative Communication: Supporting Children Adults with Complex Communication Needs,P a u lH .B r o o k e s ,B a l t i m o r e
  11. (2001). B a l l ,A .W i l l i s ,D .R .B e u k e l m a n ,a n dG .L .P a t t e e ,“ A protocolforidentificationofearlybulbarsignsinamyotrophic lateral sclerosis,”
  12. (2001). Brain-computer communication: self-regulation of slow cortical potentials for verbal communication,”
  13. (2007). Brain-computer interfaces: communication and restoration of movement in paralysis,”
  14. (2006). Brain-computer-interface research: coming of age,”
  15. (2008). Braincomputer interface in paralysis,”
  16. (2000). Changes over time in dysarthric patients with amyotrophic lateral sclerosis (ALS): a study of changes in speaking rate and maximum repetition rate
  17. (2004). Communication effectiveness of individuals with amyotrophic lateral sclerosis,”
  18. (1969). D a r l e y ,A .E .A r o n s o n ,a n dJ .R .B r o w n ,“ C l u s t e r so f deviant speech dimensions in the dysarthrias,”
  19. (2001). Don’t give up”: employment experiences of individuals with amyotrophic lateralsclerosiswhouseaugmentativeandalternativecommunication,”
  20. (2007). Duration of AAC technology use by persons with
  21. Dysarthria in amyotrophic lateral sclerosis: a systematicreview of characteristics, speechtreatment,andAACoptions,”JournalofMedicalSpeech Language Pathology.
  22. (2005). Empowering peoplewithmotorneurondiseasetomakeinformeddecisions about life prolonging treatments,”
  23. (2002). Enhancing participation in employment through
  24. Eye tracking impact on quality-of-lifeofALSpatients,”inProceedingsoftheConference on Computers Helping People with
  25. (2010). Eye-gaze access of AAC technology for persons with amyotrophic lateral sclerosis,”
  26. (2010). Functional performance using eye control and single switch scanning by people with
  27. (2004). H a n s o n ,K .M .Y o r k s t o n ,a n dD .R .B e u k e l m a n , “Speech supplementation techniques for dysarthria: a systematic review,”
  28. (2004). J.Murphy,““Iprefercontactthisclose”:perceptionsofAACby people with motor neurone disease and their communication partners,”
  29. (2010). Kinematics of disease progression in bulbar ALS,” J o u r n a lo fC o m m u n i c a t i o nD i s o r d e r s ,
  30. (2002). L.J.Ball,D.R.Beukelman,andG.L.Pattee,“Timingofspeech deterioration in people with amyotrophic lateral sclerosis,”
  31. (2010). LateAACassessmentforindividualswithamyotrophiclateral sclerosis,”
  32. (2010). Malnutrition at the time of diagnosis is associated with a shorter disease duration in
  33. (2005). Monitoring speaking rate by telephone for persons with amyotrophic lateral sclerosis,”
  34. (2005). Motor Speech Disorders: Substrates, Differential Diagnosis, and Management,
  35. (2010). o r k s t o n ,D .B e u k e l m a n ,E .S t ra n d ,a n dM .H a k e l ,ManagementofMotorSpeechDisordersinChildrenandAdults,P r o-Ed,
  36. (2007). o r k s t o n ,D .B e u k e l m a n ,M .H a k e l ,a n dM .D o r s e y , Sentence Intelligibility Test, Speech Intelligibility Test, Madonna Rehabilitation Hospital,
  37. (1994). Ocular abnormalities in amyotrophic lateral sclerosis,”
  38. (2009). Practice parameter update: the care of the patient with amyotrophic lateral sclerosis: drug, nutritional, and respiratory therapies (an evidence-based review): report of the quality standards subcommittee of the American academy of neurology,”
  39. (2009). Practice Parameter update: the care of the patient with amyotrophic lateral sclerosis: multidisciplinary care, symptom management, and cognitive/behavioral impairment (an evidencebased review):
  40. (2005). Primary communication facilitators,”
  41. (2006). Purposes of AAC device use for persons with ALS as reported by caregivers,”
  42. (1993). Speech deterioration in amyotrophic lateral sclerosis: implications for the timing of intervention,”
  43. (2009). The braincomputer interface cycle,”
  44. (2009). The ERICA eye gaze system versus manual letter board to aid communication in
  45. (2001). Trends in augmentative and alternative communication use by individuals with amyotrophic lateral sclerosis,”
  46. (2003). Why are eye mice unpopular? A detailed comparison of head and eye controlled assistive technology pointing devices,”