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Concepts of functioning and health important to people with systemic sclerosis: a qualitative study in four European countries

By Tanja A Stamm, Malin Mattsson, Carina Mihai, Juliane Stöcker, Alexa Binder, Bettina Bauernfeind, Georg Stummvoll, Gunvor Gard, Roger Hesselstrand, Gunnel Sandqvist, Oana Draghicescu, Ana Maria Gherghe, Malina Voicu, Klaus P Machold, Oliver Distler, Josef S Smolen and Carina Boström
Topics: Clinical and Epidemiological Research
Publisher: BMJ Group
OAI identifier: oai:pubmedcentral.nih.gov:3086051
Provided by: PubMed Central

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Citations

  1. (2000). A guide to the use of focus groups in health care research: part 1. Contemp Nurse
  2. (2007). Become your own advocate: advice from women living with scleroderma. Disabil Rehabil
  3. (2009). Canadian Scleroderma Research Group . Health-related quality of life in systemic sclerosis: a systematic review. Arthritis Rheum
  4. (2007). Concepts important to patients with psoriatic arthritis are not adequately covered by standard measures of functioning. Arthritis Rheum
  5. (2007). Concepts important to persons with systemic lupus erythematosus and their coverage by standard measures of disease activity and health status. Arthritis Rheum
  6. (2004). Development of ICF Core Sets for patients with chronic conditions.
  7. (2007). Disease and symptom burden in systemic sclerosis: a patient perspective.
  8. (1999). Focus group interviews in health-care research.
  9. (2005). ICF linking rules: an update based on lessons learned.
  10. (1996). Immunopathogenesis of systemic sclerosis. Rheum Dis Clin North Am
  11. (1996). Interviews – An Introduction to Qualitative Research Interviewing . CA : Thousand Oaks,
  12. (2003). Life with a rare chronic disease: the scleroderma experience.
  13. (2001). Organization .
  14. (2009). Patient perspective of hand osteoarthritis in relation to concepts covered by instruments measuring functioning: a qualitative European multicentre study. Ann Rheum Dis
  15. (2003). Patients and clinicians have different perspectives on outcomes in arthritis.
  16. (1980). Preliminary criteria for the classifi cation of systemic sclerosis (scleroderma) . Subcommittee for scleroderma criteria of the American Rheumatism Association Diagnostic and Therapeutic Criteria Committee . Arthritis Rheum
  17. (1995). Psychological Qualitative Research from a Phenomenological Perspective .
  18. (2003). Rheumatology outcomes: the patient’s perspective.
  19. (1988). Scleroderma (systemic sclerosis): classifi cation, subsets and pathogenesis.
  20. (2007). Social policy in Europe: its impact on families and work . In
  21. (1998). South Australian Scleroderma Register: analysis of deceased patients. Pathology
  22. (2007). Systemic sclerosis mortality in the United States: 1999–2002 implications for patient care.
  23. (2002). The Turn to a Narrative Knowing of Persons: One Method Explored. Nursing Times Research,
  24. (2009). Welfare state regimes, unemployment and health: a comparative study of the relationship between unemployment and self-reported health in 23 European countries.