Fostering the exchange of real-life data across different countries to answer primary care research questions: a protocol for an UNLOCK study from the IPCRG

Abstract

[Excerpt] This protocol describes a study that will explore the lessons of UNLOCK (Uncovering and Noting Long-term COPD and asthma to enhance Knowledge) over the past 5 years of sharing real-life primary care data from different countries to answer research questions on the diagnosis and management of chronic respiratory diseases. UNLOCK is an international collaboration between primary care researchers and practitioners to coordinate and share data sets of relevant diagnostic and follow-up variables for chronic obstructive pulmonary disease (COPD) and asthma management in primary care. It was set up by members of the International Primary Care Respiratory Group (IPCRG) in response to the identified research need for research in primary care, which recruits patients representative of primary care populations, evaluates interventions realistically delivered within primary care and draws conclusions that will be meaningful to professionals working within primary care.1,2 [...]The IPCRG provided funding for this research project as an UNLOCK Group study for which the funding was obtained through an unrestricted grant by Novartis AG, Basel, Switzerland. Novartis has no role in study design, data collection and analysis, decision to publish or preparation of the manuscript.info:eu-repo/semantics/publishedVersio