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Consent to ‘personal' genomics and privacy

By Bartha Maria Knoppers

Abstract

Direct-to-consumer genetic testing and population genome research projects challenge traditional notions of privacy and consent that were originally developed for clinical research. Bartha Maria Knoppers analyses the implications and proposes new approaches to govern both population-based genome research and commercial direct-to-consumer genetic tests

Topics: Science and Society
Publisher: Nature Publishing Group
OAI identifier: oai:pubmedcentral.nih.gov:2892328
Provided by: PubMed Central
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