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You Need to Know More to Understand My Scoring on the Survey : Free-Text Comments as Part of a PROM-Survey of Men with Prostate Cancer

By Senada Hajdarevic, Birgit H Rasmussen and Per Fransson

Abstract

Prostate cancer and its treatment have long-term implications for men's lives. We aimed to describe the content, extent, and frequency of written comments to the open-ended question, "Further comments?" in the patient-reported outcome measures questionnaire. During the study period, 897 men participated; 372 wrote 747 free-text comments in the questionnaire. These comments were analysed using qualitative content analysis and were grouped into four categories: 1) prostate cancer's influence on health; 2) clarifications of answers to the survey; 3) descriptions of well-being despite the cancer; and 4) experiences of care and the need for contact with health care. The distribution of the comments shifted over time. The open-ended question not only allowed the participants to explain their other responses and describe important aspects of their lives during and after treatment, something not normally covered by a questionnaire, but it also indicated their experiences of health care services along the patients' PC-trajectory. This further raises the issue of including an open-ended item in a forced-choice survey into the ethical realm to ensure that proper care is taken of participants’ answers and thoughts

Topics: Prostate Cancer, Questionnaire, Open-Ended Question, Information, Feedback, Quality of Life, Nursing, Nursing, Omvårdnad
Publisher: 'Scientific Research Publishing, Inc.'
Year: 2016
DOI identifier: 10.4236/ojn.2016.65038
OAI identifier: oai:DiVA.org:umu-121988
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