First hand accounts of adults with asperger's syndrome: an exploration into their experiences of being parented during childhood and adolescence

Abstract

Background This study retrospectively explores the experiences of individuals with Asperger’s syndrome (AS) of being parented during childhood and adolescence. Although there is extensive research examining experiences of parents in bringing up a child with an autistic spectrum disorder (ASD), there is a paucity of research from the perspective of individuals themselves, particularly those with AS, a form of high functioning autism. Method Semi structured interviews were conducted with seven adults. Interview transcripts were analysed using Interpretative Phenomenological Analysis. Results Four key themes emerged from the analysis: feeling nurtured and supported, feeling restricted/held back, a sense of loss and appreciation of discipline. Findings illustrate the importance of early detection / diagnosis as it appears to facilitate enhanced understanding and support from parents. Conclusion The relevance of the findings is discussed in relation to other research. It is important that professionals focus interventions to support parents in meeting the needs of children and young people with AS in order to facilitate a secure sense of self and psychological well-being in their child