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Accounting for Dystonia: Personalising Illness Through Narrative

By Laura Camfield

Abstract

This paper explores how people living with dystonia, a chronic neurological\ud condition involving involuntary muscle spasms in multiple body parts, use\ud narrative to make sense of illness by linking past, present and future, and\ud giving their condition personal meaning (what Early calls the “customisation”\ud of illness) (Early, 1984). It draws on a life-history interview with Sarah, a\ud woman in her thirties living with generalised dystonia to show how people\ud integrate their condition into their lives, and looks more generally at how\ud narratives of causation are used to make sense of illness

Topics: R1, H1
Publisher: University of Huddersfield
Year: 2004
OAI identifier: oai:eprints.hud.ac.uk:5026

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