Location of Repository

Quality of Life for Adults with Learning Disabilities in Private Residential Care:\ud Monitoring Aspects of Life Experiences Over Time

By Derek Skea

Abstract

The Quality of Life (QoL) of a sample of 56 adults with Learning Disabilities was studied longitudinally over 18 months while they lived in community-based private residential homes. Six homes participated in the study. The Life Experiences Checklist (L.E.C) Ager, 1990, 1998), which considers a person’s home environment, leisure, freedom, relationships and opportunities, was used as a measure of QoL. The L.E.C was administered to participants on three occasions at approximately six-monthly intervals. Simple feedback reports giving overall results for the L.E.C (and other measures) were produced for each home at the end of each of these three phases.\ud The L.E.C. results showed that overall participants’ QoL changed significantly over the course of the study, with assessed QoL peaking at phase two after homes had received the first feedback report, and decreasing to near phase one levels by the end of the study. People living in one of the homes, however, sustained the observed improvement in QoL over time. Comparisons were drawn between the L.E.C results for the sample and the general population living in the same area. The sample experienced a lower QoL than the general population regarding Relationships, Opportunities and Freedom L.E.C. sub-scales and had a comparable QoL regarding the Home sub scale, and higher scores with respect to the Leisure sub-scale.\ud Results are discussed in terms of subjective and objective QoL measurement as an indicator of quality of service provision and in particular the effects of feedback and monitoring per se. It is apparent that in the absence of intervention no sustained improvements in QoL are seen in this sample

Topics: R1, RC0321, HV
Publisher: University of Huddersfield
Year: 2008
OAI identifier: oai:eprints.hud.ac.uk:5640

Suggested articles

Preview

Citations

  1. (1996). A Conversational Analysis of the ‘Acquiescence’ of People with Learning Disabilities. doi
  2. (2008). A Life Like Any Other? Human Rights of Adults with Learning Disabilities.
  3. (1997). Defining and Applying the Concept of Quality of Life. doi
  4. (1999). Discerning the Appropriate Role and Status of ‘Quality Of Life’ Assessment with Persons with Intellectual Disabilities: A Reply to Cummins. doi
  5. (1987). Ensuring Quality in the Prvate Sector. In:
  6. (1983). Guidelines for Evaluators During a PASS, PASSING or Similar Assessment of Human Service Quality,
  7. (1998). Impact of Age and Transitions Out of Nursing Homes for Adults with Developmental Disabilities. doi
  8. (2001). Is Satisfaction a Valid Concept in the Assessment of Quality of Life of People with Intellectual Disabilities? A Review of the Literature. doi
  9. (2005). Issues in the Systematic Assessment of Quality of Life. doi
  10. (2001). Moving Home: Community Integration Achieved with Varying Forms of Re-Provision for Adults with Learning Disabilities. doi
  11. (1999). Normative life Satisfaction: Measurement Issues and a Homeostatic Model. In
  12. (2000). Objective and Subjective Quality of Life Indicators: An Interactive Model.
  13. (1993). People Living in Community Homes: The Influences on their Activities. doi
  14. (2008). Personal communication. Department of Population and Family Health, Mailman School of Public Health, Columbia University, 60 Haven Avenue.
  15. (2000). Quality of Life for Adults with LD in Private Residential Care: Monitorin Aspects of Life Exp riences Over Tim
  16. (1998). Quality of Life Issues in the Development and Evaluation of Services for People Intellectual Disability. doi
  17. (2002). Quality of Life Measurement and People with Intellectual Disabilities: A Reply to Cummins. doi
  18. (1987). Quality, Costs and ‘An Ordinary Life’.
  19. (1997). Self Rated Quality of Life Scales for People with an Intellectual Disability. doi
  20. (2001). Self-rated Quality of Life scales for people with an Intellectual Disability: A reply to Ager and Hatton. doi
  21. (1996). Services for People with Mild Intellectual Disabilities and Challenging Behaviour: Service Users’ Views. doi
  22. (1993). The Comprehensive Quality of Life Scale: Intellectual Disability, doi
  23. (1990). The Life Experiences Checklist Manual.
  24. (1991). The Use of a Portable Microcomputer in the Functional Analysis of Maladaptive Behaviour. In: b. Remington (ed). The Challenge of Severe Mental Handicap: A Behaviour Analytic Approach.
  25. (2002). The Validity and Utility of Subjective Quality of Life: A Reply to Hatton and Ager. doi
  26. (2001). White Paper. Valuing People: A New Strategy for Learning Disability for the 21st Century. doi
  27. (1998). Whose Quality of Life is it Anyway? Some Problems with the Emerging Quality of Life Consensus. doi
  28. (1988). Working paper 2 (revised): Life Experiences and Quality of Life in The General Population: A Study of Leicester and its Environs Using the Life Experiences Checklist.

To submit an update or takedown request for this paper, please submit an Update/Correction/Removal Request.