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Estimated prevalence of people with learning disabilities: template for general practice

By Victoria Allgar, Ghazala Mir, Joyce Evans, Joyce Marshall, David Cottrell, Phil Heywood and Eric Emerson


Background\ud In 2001, a white paper set out a commitment to ensure\ud that people with a learning disability receive equal access\ud to health services, with an expectation that general\ud practices would have identified all people with a learning\ud disability registered with the practice by June 2004.\ud Aim\ud To outline the development of a template to create\ud practice-based registers of people with learning\ud disabilities in general practice.\ud Design of study\ud The study was prospective, employing a template to\ud identify patients in general practice with a learning\ud disability. The study used capture–recapture\ud methodology to estimate the prevalence of learning\ud disability in the population.\ud Setting\ud General practices in Leeds.\ud Method\ud A template was developed that uses Read code\ud searches of practices’ electronic medical records,\ud along with practice knowledge to identify patients who\ud have a learning disability.\ud Results\ud The tool was piloted in 30 general practices in Leeds\ud and validated against a city-wide database of people\ud with learning disability. There was a wide variation\ud between the practices in terms of how many people\ud were identified, with the average being 0.4% of the\ud practice population. Combined with validation from the\ud city-wide database, this increased to 0.7%.\ud Conclusion\ud The template provides a valuable tool for general\ud practices to begin developing a practice-based register\ud of patients with a learning disability. This is particularly\ud timely in view of the revised General Medical Services\ud contract Quality and Outcomes Framework indicator,\ud stimulating practices to produce a register of patients\ud with learning disability. Use of a common definition for\ud learning disability is needed to improve consistency in\ud identification across practices

Topics: RT, R1, HV
Publisher: Royal College of General Practitioners
Year: 2008
OAI identifier: oai:eprints.hud.ac.uk:8205

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  1. (2006). A cascade of disparities: health and health care access for people with intellectual disabilities.Ment Retard Dev Disabil Res Rev doi
  2. (2008). and General Practitioners Committee. Revisions to the NHS contract: 2006/7: delivering investment in general practice. www.nhsemployers.org http://www.bma.org.uk/ap.nsf/Content/revisionnGMSFeb20062 (accessed 27
  3. (2006). Care of patients with intellectual or learning disability.
  4. (2001). Census in England andWales. London: Office for National Statistics,
  5. (2006). Commission. Equal treatment: closing the gap. London: Disability Rights Commission,
  6. (2003). Epidemiology of learning disability and comorbid conditions. Psychiatry doi
  7. (2004). Estimating the current need/demand for supports for people with learning disabilities in England.
  8. (2007). et al.Health facilitation and learning disability. Leeds: Centre for Health and Social Care,
  9. (2006). framework to address the health inequalities of people with learning disabilities inWestminster. London:Westminster PCT,
  10. (2001). Gerrett D.Wilson A. A survey of validity and utility of electronic patient records in a general practice. BMJ doi
  11. (2002). Health issues for adults with developmental disability. Res Dev Disabil doi
  12. (2004). Health.Choosing health. London: The Stationery Office, doi
  13. (2006). Health.Our health, our care, our say. London: The Stationery Office, doi
  14. (2001). Health.Valuing people: a new strategy for learning for the 21st century. London: The Stationery Office,
  15. (2004). Hidden learning disability. doi
  16. (2007). Mir G.Meeting valuing people health targets. doi
  17. (2006). POMONA: health indicators for people with intellectual disability in the member states. doi
  18. (2006). Previously unidentified morbidity in patients with intellectual disability.
  19. (2004). Quality of morbidity coding in general practice computerized medical records: a systematic review. Fam Pract doi
  20. Rutter’s child and adolescent psychiatry. 5th edn. doi
  21. (2005). The role of health checks in improving access to mainstream NHS healthcare services for people with learning disabilities. London: National Primary Care Research and Development Centre,
  22. (2005). Understanding health disparities and inequities faced by individuals with intellectual disabilities. doi
  23. (2008). Valuing People Support Team. Update on Read Codes. UK: Care Services Improvement Partnership. http://valuingpeople.gov.uk/ dynamic/valuingpeople144.jsp (accessed 21

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