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Knowledge and information needs of informal caregivers\ud in palliative care : a qualitative systematic review

By Andrea Docherty, Alastair Owens, Mohsen Asadi-Lari, Roland Petchey, Jacky Williams and Yvonne Carter


Objectives: To review current understanding of the knowledge and information needs\ud of informal caregivers in palliative settings. Data sources: Seven electronic databases\ud were searched for the period January 1994–November 2006: Medline, CINAHL, PsychINFO,\ud Embase, Ovid, Zetoc and Pubmed using a meta-search engine (Metalib®).\ud Key journals and reference lists of selected papers were hand searched. Review methods:\ud Included studies were peer-reviewed journal articles presenting original research.\ud Given a variety of approaches to palliative care research, a validated systematic review\ud methodology for assessing disparate evidence was used in order to assign scores to\ud different aspects of each study (introduction and aims, method and data, sampling,\ud data analysis, ethics and bias, findings/results, transferability/generalizability, implications\ud and usefulness). Analysis was assisted by abstraction of key details of study into\ud a table. Results: Thirty-four studies were included from eight different countries. The\ud evidence was strongest in relation to pain management, where inadequacies in caregiver\ud knowledge and the importance of education were emphasized. The significance\ud of effective communication and information sharing between patient, caregiver and\ud service provider was also emphasized. The evidence for other caregiver knowledge\ud and information needs, for example in relation to welfare and social support was\ud weaker. There was limited literature on non-cancer conditions and the care-giving\ud information needs of black and minority ethnic populations. Overall, the evidence\ud base was predominantly descriptive and dominated by small-scale studies, limiting\ud generalizability. Conclusions: As palliative care shifts into patients’ homes, a more rigorously\ud researched evidence base devoted to understanding caregivers knowledge\ud and information needs is required. Research design needs to move beyond the current\ud focus on dyads to incorporate the complex, three-way interactions between patients,\ud service providers and caregivers in end-of-life care setting

Topics: R1
Publisher: Sage
OAI identifier: oai:wrap.warwick.ac.uk:222

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