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Long-term survival for a cohort of adults with cerebral palsy

By Karla Hemming and Jane Hutton


The aim of this study was to investigate long-term survival and examine causes of death in adult patients with cerebral palsy (CP). A 1940–1950 birth cohort based on paediatric case referral allows for long-term survival follow-up. Survival is analyzed by birth characteristics and severity of disability from age 20 years (and age 2y for a subset of the data). Survival outcome compared with that expected in the general population based on English life tables. The main cohort consisted of 341 individuals, with 193 males and 148 females. Conditional on surviving to age 20 years, almost 85% of the cohort survived to age 50 years (a comparable estimate for the general population is 96%). Very few deaths were attributed to CP for those people dying over 20 years of age. Females survived better than males. However, females faced a greater increase in risk relative to the general population than did males. We conclude that survival outlook is good though lower than in the general population. The relative risk of death compared with the UK population decreases with age, although it shows some indication of rising again after age 50 years. Many more deaths were caused by diseases of the respiratory system among those dying in their 20s and 30s than would be expected in the general population. Many fewer deaths than expected in this age group are caused by injuries and accidents. For those people who die in their 40s and 50s, an increase in deaths due to diseases of the circulatory system and neoplasms is observed. More deaths than expected in this age group are due to diseases of the nervous system

Topics: RC0321
Publisher: Cambridge University Press
Year: 2006
OAI identifier:

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  1. (1963). A lowered incidence of infantile cerebral palsy. Dev Med Child Neurol5:449–450. doi
  2. (1984). Analysis of Survival Data.London: Chapman and Hall. doi
  3. (1999). Cause of death in cerebral palsy: a descriptive study. Arch Dis Child81:390–394. doi
  4. (1999). Causes of excess mortality in cerebral palsy. Dev Med Child Neurol41:580–585. doi
  5. (1957). Cerebral Palsy in Childhood: The Aetiology and Clinical Assessment with Particular Reference to the Findings in Bristol.Bristol: John Wright. doi
  6. (1990). Cerebral palsy: why we must plan for survival. Arch Dis Child65:1329–1333. doi
  7. (2004). Decline in function and life expectancy of older persons with cerebral palsy.
  8. (2002). Effect of cognitive, motor and sensory disabilities on survival in cerebral palsy. Arch Dis Child86:84–89.
  9. (2000). Effect of severity of disability on survival in north east England cerebral palsy cohort. Arch Dis Child 83:468–473. doi
  10. (1994). Infantile Cerebral Palsy. Bristol: Clinical Press. p 9.
  11. (2001). Life expectancy among people with cerebral palsy in Western Australia. Dev Med Child Neurol 43:508–515. doi
  12. (1994). Life expectancy in children with cerebral palsy. doi
  13. (1998). Life expectancy of adults with cerebral palsy. doi
  14. (1998). Life expectancy of persons with chronic disabilities. doi
  15. (1985). Prevalence and disabilities in 4 to 8 year olds with cerebral palsy. doi
  16. (2000). Surveillance of Cerebral Palsy in Europe. doi

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