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Parenting a disabled child in South Korea : rewriting disability, parenthood and citizenship

By Bogcheon Choi

Abstract

This thesis is about parental experiences and practices in association with disabled children in South Korea. It is first and foremost about disablement. It aims to expose\ud the inequality and exclusion experienced by disabled children and their families. It was intended to challenge\ud the long-established tradition in Korea of regarding the\ud problem of disability as a personal and family issue, and aims to purposes to enhance the social recognition of the rights of disabled children and their families.\ud \ud This thesis is also about the development of disability-parenthood. It explores the ways in which parents construct and reconstruct their notions of parenthood and disability through their continual experiences of parenting a disabled child. It intends to resituate parents as potentially active social agents who create their own knowledge about disability. It examines how parents are struggling against disabling forces and acting on behalf of their disabled children in their own lives. Another main purpose of this thesis is to explore how parents develop their politics of disability by working together. In order to research parents' group activities, this study engaged the participation of parents involved self-help or advocacy groups. The research employed both in-depth interviews and long-term participant observation

Publisher: School of Sociology and Social Policy (Leeds)
Year: 2008
OAI identifier: oai:etheses.whiterose.ac.uk:196

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Citations

  1. (1985). (2 nd edition) Parents Speak Out: Then and Now (2nd edn. ), Columbus: Charles E.
  2. 1) 'Media: Making Distorted Imagery of. Disabled People',
  3. (1948). A doi
  4. (1997). A Genealogy of "Dependency": Tracing a Keyword of the US Welfare State', in N. Fraser, Justice Interrupts: Critical Reflections on "Postsocialist" Condition, doi
  5. (2003). A Historical and Philosophical Foundation of Special Education, Deagu:
  6. (1997). A History ofDisability,
  7. (1997). A Legacy of Oppression: A History of Disability in Western Culture',
  8. (1995). A Mother's Work is Never Done: Constructing a "Nonnal" Family Life',
  9. (1992). A Review of Father's Accounts of their Experiences of Parenting Children with Disabilities', doi
  10. (2000). A Study of the Development of Employment Policies for Disabled People',
  11. (1986). A Study of the History of Disabled People ý Occupations in Korea, Unpublished PhD thesis,
  12. (1997). A Study on the Historical Development of Disability Movement
  13. (2002). Against All Odds: Family Life on a Low Income in Ireland,
  14. (1995). All in the Family: Siblings and Disability, Londoný National Children's Home/Action for Children.
  15. (2000). An Analysis of the Employment Policies for Disabled People',
  16. (1997). An Introduction to Policiesfor Disabled People. Seoul:
  17. (2001). An Introduction to the Weýlare for Disabled People, Seoul: Ingan-Gwa Bogji.
  18. (1992). An Invitation to Rej7exive Sociology, doi
  19. (2002). Annual Monitoring Report on TV programs, Seoul: Disabled People First.
  20. (1999). At the Double: Supporting Families with Two or More Severely Disabled Children, London: National Children's Bureau / Joseph Rowntree Foundation.
  21. (1992). Becoming Qualitative Researchers: An Introduction,
  22. (2000). Black Feminist Thought: Knowledge, Consciousness, and the Politics ofEmpowennent (2nd edn. ),
  23. (1993). Broken Arts and Cultural Repair: The Role of Culture in the Empowerment of Disabled People',
  24. (2004). Brothers and Sisters ofDisabled Children,
  25. (1997). Care, Communities and Citizens, doi
  26. (1992). Careers in Caring: Mothers of Children with Disabilities', doi
  27. (1994). Carers Perceived. - Policy and Practice in Informal Care, doi
  28. (1951). Carers: Research and Practice, doi
  29. (1992). Changing the Social Relations of Research Production', doi
  30. (1998). Childhood Disability and Disabled Childhoods: Agendas for Research', doi
  31. (1982). Children with Disabilities and their Families: A Review ofResearch, Berkshire:
  32. (1998). Citizenship and the Ethics of Care: Feminist Considerations on Justice, Morality and Politics, doi
  33. (1998). Claiming Disability: Knowledge and Identity, doi
  34. (1997). Colonial Modemity and Body Politics',
  35. (1994). Competing Paradigms in Qualitative Research',
  36. (1998). Complex Numbers: Families with More than One Disabled Child,
  37. (1999). Confucian Body and Embodied Lives',
  38. (2002). Confucianism and Social Wel(are, Seoul:
  39. (1992). Counting Care: Numbers and Types of Informal Carers,
  40. (1994). Cultural Representation of Disabled People: Dustbins for . doi
  41. (1996). Culture and Disability Studies: An Anthropological Perspective',
  42. (1997). Culture and Power. - The Sociology ofPierre Bourdieu, doi
  43. (1997). Defending the Social Model', doi
  44. (1996). Defining and Researching Disability: Challenges and Responses',
  45. (1996). Defining Impairment and Disability: Issues at Stake'
  46. (1987). Destructive Heat and Cooling Prayer: Malay Humoralism in Pregnancy, Childbirth and the Postpartum Period', Social Science and Medicine, doi
  47. (1993). Determinants of Parental Satisfaction with Disclosure of Disability', doi
  48. (1992). Developmental State and Capital Accumulation in South Korea',
  49. (1995). Different Functions of Coding in the Analysis of Textual Data',
  50. (2007). Disability Activism and the Price of Success: A British Experience Disability', Intersticios: Revista Sociol6gica de Pensamiento Critico,
  51. (1995). Disability and Culture, doi
  52. (1989). Disability and Dependency: A Creation of Industrial Societies',
  53. (1994). Disability and Rehabilitation in Cross-cultural Perspective: A View from New Zealand', doi
  54. (1988). Disability as the Basis for a Social Movement: Advocacy and the Politics of Definition', doi
  55. (1999). Disability Politics and Community Care, London and Philadelphia:
  56. (2000). Disability Reform and Women's Caring Work',
  57. (2003). Disability, doi
  58. (2000). Disability, the Family and Society: Listening to Mothers, doi
  59. (2003). Disability: A Life Course Approach, doi
  60. (1997). Disability. The Place of Judgment in a World of Fact', doi
  61. (2001). Disabled Children and the Law. Research and Good Practice, London and Philadelphia: doi
  62. (2000). Disabled Children, Parents and Professionals: Partnership on Whose Terms? ', doi
  63. (1999). Disabled Children: Challenging Social Exclusion, doi
  64. (1998). Disabled Children: Directionsfor their Future Care, London: Department of
  65. (1998). Disabled People and Social Policy: From Exclusion to Inclusion,
  66. (2004). Disabled People in Disabled People's Movement', doi
  67. (1993). Disabled People's Self-organisation: doi
  68. (2001). Disabled Persons in Korea: their Life and the Attitude towards them, Seoul:
  69. (1992). Disabled Women and the Feminist Agenda', doi
  70. (2005). Disabled Women's Movement in Korea',
  71. (1993). Disabling Barriers -Enabling Environments, London: Sage, doi
  72. (1979). Discipline and Punish, doi
  73. (1999). Does God Give Special Kids to Special Parents?: Personhood and the Child with Disabilities as Gift and as Giver',
  74. (1992). Does She Boil Eggs? Towards a Feminist Model of Disability', doi
  75. (2004). Education and Inclusive Policy-making: Implications for Research and Practice', doi
  76. (2003). Emplotting Children's Lives: Developmental Delay vs. doi
  77. (1995). Enforcing Normalcy: Disability, Deafness, and the Body, doi
  78. (1998). Exceptional mothering in a "Normal" World',
  79. (1995). Expert Opinions: A National Survey ofParents Caringfor a Severely Disabled Child,
  80. (1999). Exploring Disability: A Sociological Introduction, doi
  81. (1997). Extraordinary Bodies: Figuring Physical Disability in American Culture and Literature, doi
  82. (1979). Families Against Society, doi
  83. (1993). Feminism and Disability, Norman and London:
  84. (2000). Feminist Perspectives on Disability, doi
  85. (1998). Fighting Words: Black Women and the Searchfor Justice, doi
  86. (2003). Finding a Voice,
  87. (2001). For a New Perception of Disability: The Social and Cultural Critics of Disability',
  88. (1987). Framed: Print Journalism's Treatment of Disability Issues',
  89. (1999). Free Spaces" in Collective Action',
  90. (1996). From Devastation to Transformation: Managing Life "en a Child is Disabled, Unpublished PhD Thesis,
  91. (2003). Gender and Coping: The Parents of Children with High Functioning Autism', doi
  92. (1990). Governing the Market. The Role of Government in East Asian Industrialization, doi
  93. (1994). Grandparents' Support for Families Who Have Children with Disabilities', doi
  94. (1989). Handbook ofDisability Studies, Thousand Oaks:
  95. (1997). High Functioning Autistic Children and the Construction of "Normal Family Lifd"', doi
  96. (1992). Hmong Children and their Families: doi
  97. (1998). Homes Unflitfor Children: Housing, Disabled Children and their Families, The Policy Press/Comrnunity Care.
  98. (2001). Impaired Body as Colonial Trope: Kang Kyong'ae's "Underground Village"', doi
  99. (1988). Impairment as a Human Constant: Cross-cultural and Historical Perspectives on Variation, doi
  100. (2001). In and beyond New Labour: Towards a New Political Ethics of Care', doi
  101. (1996). Including All of Our Lives',
  102. (2005). Inclusion in South Korea: The Current Situation and Future Directions', doi
  103. (1999). Inclusion Needs a Different School Culture', doi
  104. (1999). Inclusion, Curriculum and the Struggle for Space in School', doi
  105. (2007). Incorporating Children with Disabilities into Family Life',
  106. (1999). Independence, Dependence, Interdependence: Some Reflections on the Subject and Personal Autonomy', doi
  107. (1993). Independent Lives? Community Care and Disabled People, doi
  108. (1989). Interpretive Biography, doi
  109. (1990). Justice and the Politics ofDifference,
  110. (2001). Korean Modernization and Discourse of Familism',
  111. (1999). Korean Thoughts on Social Welfare, Seoul: Paeksan Press.
  112. (1996). Let Our Children Be: A Collection ofStories, Shcffield: Parents with Attitude.
  113. (1996). Life as We Know It: A Father, a Family, and an Exceptional Child, doi
  114. (1999). Love's labor: Essays on Women, Equality, and Dependency, doi
  115. (1996). Making a Difference: Social Work with Disabled Children,
  116. (1997). Making Connections: A Narrative Study of Adult Children of Parents with Leaming Difficulties',
  117. (1996). Making Sense of Qualitative Data,
  118. (1992). Managing Threats to Welfare: The Search for a New Paradigm of Welfare', doi
  119. (2007). Mastering the Health Care System for Children with Special Health Care Needs,
  120. (2000). Maternal Employment and Family Responsibilities: The Perspectives of Mothers of Children with Intellectual Disabilities', doi
  121. (2000). Medicine and the Aesthetic Invalidation of Disabled People', doi
  122. (1993). Moral Boundaries: A Political Argumentfor an Ethic of Care, doi
  123. (2004). Mothering Children Who Have Disabilities: A Bourdieusian Interpretation of Matemal Practices', doi
  124. (1998). Mothering in Families with and without a Child with Disability', doi
  125. (2005). Mothers and Models of Disability', doi
  126. (1991). Mothers Who Care: Gender, Disability and Family Life', doi
  127. (1992). Mothers with a Mission',
  128. (1995). Mothers, Citizenship, and Independence: A Critique of Pure Family Values', doi
  129. (1995). Mphp Ya Modimmo -A Gift from God: Perspectives on "Attitudes" toward Disabled People',
  130. (1993). Multiculturalism, Chronic Illness, and Disability',
  131. (2003). Mum's the Word! ": Maternal Accounts of Dealing with the Professional World', doi
  132. (2000). My Journey with Jake: A Memoir ofParenting and Disability, Toronto: Between the Lines.
  133. (1999). Narrating Self and Disability: Latino Mother's Construction of Identities vis-A-vis their Children with Special Needs',
  134. (1993). Offspring ofEmpire,
  135. (1992). On the Road to Damascus: doi
  136. (1997). Ordinary Families, Special Children, doi
  137. (2000). Organizational Characteristics and Issues Affecting the Longevity of Self-help Groups for Parents of Children with Special needs', doi
  138. (1983). Parent to Parent: Working Togetherfor Ourselves and Our Children,
  139. (1988). Parental Entrepreneurship: A Consumerist Response to Professional Dominance', doi
  140. (1997). Parental Work: An Account of the Day to Day Activities of Parents of Adults with Learning Disabilities', doi
  141. (1994). Parenting Under Pressure: Mothers and Fathers with Learning Difficulties, doi
  142. (2007). Parents, Professionals and Disabled Babies: Identifying Enabling Care',
  143. (1999). Parents' Facilitation of Friendships between their Children with a Disability and Friends without a Disability', doi
  144. (1990). Pathwaysfrom the Periphery: Yhe Politics of Growth in the Newly Industrializing Countries, doi
  145. (1998). Paying to Care: The Cost of Childhood Disability,
  146. (2001). Perceptions of the Etiology of Learning Disabilities from Korean General and Special Educators, Unpublished Master's Thesis,
  147. (1992). Personal and Political: A Feminist Perspective on Researching Physical Disability', Disability, Handicap and Society, doi
  148. (1997). Personal Disability, Social Disability and Disability Ideology', (unpublished seminar paper).
  149. (1995). Persons and Nonpersons: Disability and Personhood among the Punan Bah of Central Borno',
  150. (1990). Perspectives on a Parent Movement: The Revolt ofParents of Children with Intellectual Limitations,
  151. (1994). Positively Parents: Caringfor a Severely Disahled Child,
  152. (1996). Power and Prejudices: Issues of Gender, Sexuality and Disability%
  153. (1980). PowerlKnowledge,
  154. (1998). Provisional Normalcy and "Perfect Babies": Pregnant Women's Attitudes towards Disability in the Context of Prenatal Testing',
  155. (1994). Qualitative Data Analysis: An Expanded Source Book,
  156. (1994). Qualitative Data Analysis: An Expanded Sourcebook, doi
  157. (2002). Qualitative Researching, doi
  158. (1998). Questions of Competence: Culture, Classification and Intellectual Disability, Cambridge: doi
  159. (1998). Reconstructing Motherhood in the Age of "Perfect" Babies: Mothers of Infants and Toddlers with Disabilities', Signs: doi
  160. (1997). Reconstruction of School Organization for Inclusion and Problems in Korea',
  161. (1983). Reflections on the Status of Citizen Advocacy, Ontario: National Institute of Mental Retardation.
  162. (1997). Reflexivity- The Dilemmas of Researching from the Inside',
  163. (2000). Refocusing on the Parents: What are the Social Issues of Concern for Parents of Disabled ChildrenT, doi
  164. (1998). Reforming Disability in China: A study in Disability and Development, Unpublished PhD Thesis,
  165. (1998). Reframing the Meaning of Disability to Families: The Embrace of Paradox', doi
  166. (1992). Regulating Bodies: Essays in Medical Sociology, doi
  167. (1998). Researching Disability Issues, Buckinghmn:
  168. (2001). Restructuring Special Classes for Inclusive Education: A
  169. (1993). Reviewing the Literature on Integration', doi
  170. (1996). Rock-a-by Baby: Feminism, Sejr-help, and Postpartum Depression, doi
  171. (1996). Safe Spaces and Social Movements', Perspectives on Social Problems,
  172. (1992). Service Needs of Families of Children with Severe Physical Disability', Child: Care, Health and Development, doi
  173. (1997). Social Attitudes towards Disabled People in Korean Traditional Societies' (unpublished seminar paper).
  174. (1983). Social Mork with Disabled People,
  175. (1994). Social Supportfor Disabled Children and their Families: A Review of the Literature,
  176. (1999). Social Work with Disabled People (2nd edn.
  177. (2005). Special Education Annual Report to Congress, Seoul, Korea: Ministry of Education and Human Resources.
  178. (1998). Special Education Annual Report to Congress, Seoul, Korea: Ministry of Education.
  179. (2002). Special Education in South Korea',
  180. (1999). Talking "Tragedy": Identity Issues in the Parental Story of Disability',
  181. (1989). Talking Back. ý Thinking Feminist, Thinking Black, doi
  182. (1999). Tbe Changes and Prospects of Welfare Policies for Disabled People',
  183. (1994). Telling Parents their Child Has a Disability',
  184. (2000). Testing Women, Testing the Fetus: The Social Impact of Amniocentesis in America, doi
  185. (1995). The Active Interview, Thousand Oaks, doi
  186. (2003). The Analysis and Interpretation of Special Education Promotion Act: Focusing on Contents and Process,
  187. (2003). The Analysis and Interpretation of Special Education Promotion Act: Focusing on Definition',
  188. (2001). The Benefits of Mutual Support Groups for Parents of Children with Disabilities',
  189. (1993). The Body and Social Yheory,
  190. (1984). The Body and Society,
  191. (1987). The Concept of Oppression and the Development of a Social Tbeory of Disability', doi
  192. (1985). The Costs of Caring: Families with Disabled Children, London: Routledge and Kegan Paul. doi
  193. (1992). The Creatures 271me Forgot: Photography and Disability Imagery,
  194. (1967). The Discovery of Grounded Theory: Strategiesfor Qualitative Research, doi
  195. (1995). The Exceptional Family: Walking the Edge of Tragedy and Transformation',
  196. (2000). The Experience of Disability in Families: A Synthesis of Research and Parent Narratives',
  197. (1991). The Family with a Handicapped Child, doi
  198. (2000). The Future ofthe Disabled in Liberal Society: An Ethical Analysis, Notre Dame, IN:
  199. (2001). The Handbook ofSocialWelrareforDisabledPeople, Seoul:
  200. (1996). The Historical Change of Social Welfare Policies for Disabled People',
  201. (1996). The Historical Change of Welfare Thoughts for Disabled People',
  202. (1995). The History ofDisability Movement in Korea, Seoul: Samae Madang.
  203. (1999). The Identity of Korean Special Classes and the Direction of Future Development',
  204. (2001). The Identity of Korean Special Schools and New Choice in their 251 Roles',
  205. (2001). The Impact of Childhood Disability on Family Life,
  206. (1999). The Janja's Critical Serniotics of Body',
  207. (1996). The Korean Middle-Class Women's Culture of Childbirth',
  208. (1997). The Philosophy and Tasks of Policies for Disabled People',
  209. (1990). The Politics ofDisablement,
  210. (1998). The Positive Impact of Children with an Intellectual Disability on the Family', doi
  211. (2002). The Present Situation and Long-term Direction of Welfare Policies for Disabled People,
  212. (1996). The Rejected Body: Feminist Philosophical Reflections on Disability, doi
  213. (2001). The Relationship between Mind and Illness in Korean Medicine', Tradition and Modern,
  214. (1986). The Science Question in Feminism, doi
  215. (2003). The Views and Experiences qfDisabled Children and their Siblings: A Positive Outlook, London and Philadelphia: doi
  216. (1998). Theoretical Perspectives on Research with Disabled Children',
  217. (1996). Theories of Disability and the Origins of the Oppression of Disabled People in Western Society',
  218. (2000). Toward a Cultural Anthropology of Disability and Rehabilitation', doi
  219. (2000). Transformational Outcomes associated with Parenting Children Who Have Disabilities', doi
  220. (1996). Understanding Disability: From Theory to Practice, doi
  221. (1983). Unshared Care: Parents and their Disabled Children, London: Routledge and Kegan Paul. doi
  222. (1999). Users as Citizens: Collective Action and the Local Governance of Welfare', doi
  223. (2003). What Do You Mean "What's Wrong with Her? ": Stigma and the 242 Lives of Families of Children with Disabilities', doi
  224. (1996). What Works in Services for Families with a Disabled Children,
  225. (1995). Why Disabled? The Cultural Understanding of Physical Disability in an African Society',
  226. (1996). Work, Utopia and Impainnent',
  227. (1982). Yhe Experience ofHandicap,
  228. (2000). Your Experience Is Not My Experience: The Concept and Experience of Disability on Chicago's Near West Side', doi

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