Location of Repository

Living in limbo -- patients with cystic fibrosis waiting for transplant

By Kath MacDonald

Abstract

Lung transplant for patients with end-stage cystic fibrosis (CF) in the UK is recognized as the only successful treatment for CF patients with advanced lung disease. This study uses an exploratory approach to examine how patients with CF and their carers cope with the rigours of chronic illness and life on a transplant waiting list. Eight patients with CF, four awaiting transplant and four who had been transplanted within the previous 3years, along with five of their carers, were asked to recount their experiences using a semi-structured interview technique. Four themes emerged from the interview data; displacement, disorder, life in limbo and readjustment to wellness. Support appears to be particularly important to patients and families after false alarms occur, and upon return home after transplant. The small sample size precludes generalization of the results to all patients with CF but gives an in-depth insight into the lived experience of waiting for transplant

Year: 2006
OAI identifier: oai:eresearch.qmu.ac.uk:573

Suggested articles

Preview

Citations

  1. (1996). Health percept i o n s and treatme n t adhere n c e in adults with cystic fibr os i s
  2. (1996). Health perceptions and treatment adherence in adults with cystic fibrosis doi
  3. (1997). Nursing Research Principles, process and Issues MacMill a n London Saxe-B r a i t h w a i t e ME Chapma n JS (
  4. (1997). Nursing Research Principles, process and Issues MacMillan London Saxe-Braithwaite ME Chapman JS

To submit an update or takedown request for this paper, please submit an Update/Correction/Removal Request.