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How do children at special schools and their parents perceive their HRQoL compared to children at open schools? Jennifer Jelsma 1 * , Lebogang Ramma 2 Background: There has been some debate in the past as to who should determine values for different health states for economic evaluation. The aim of this study was to compare the Health Related Quality of Life (HRQoL) in children attending open schools (OS) and children with disabilities attending a special school (SS) and their parents in Cape Town South Africa. Methods: The EQ-5D-Y and a proxy version were administered to the children and their parents were requested to fill in the EQ-5D-Y proxy version without consultation with their children on the same day. Results: A response rate of over 20 % resulted in 567 sets of child/adult responses from OS children and 61 responses from SS children. Children with special needs reported more problems in the “Mobility ” and “Looking after myself ” domains but their scores with regard to “Doing usual activities”, “Pain or discomfort ” and “Worried, sad or unhappy ” were similar to their typically developing counterparts. The mean Visual Analogue Scale (VAS) score o

Year: 2013
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