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The impact of age-related macular degeneration on quality of life and its association with demographic data. Results from the NEI VFQ-25 questionnaire in a Norwegian population.

By Ana Carla Schippert, Elma Jelin, Morten Carsten Moe, Turid Heiberg and Ellen Karine Grov


Objective: To describe vision-related quality of life (VRQoL) in a Norwegian population of patients with newly diagnosed neovascular age-related macular degeneration (nAMD), and to evaluate the association with demographic data of age, gender, and civil status (married, cohabitants/unmarried, not cohabitants). Method: The Norwegian version of the National Eye Institute Visual Functioning Questionnaire–25 (NEI VFQ-25) questionnaire was administered to 145 patients recently diagnosed with nAMD. We used descriptive statistics and bivariate analysis to determine the distribution of demographic parameters and a possible association between demographic parameters and NEI VFQ-25 scores. Spearman correlation was employed to analyze the NEI VFQ-25 items and subscales scores. Results: Mean (SD) VFQ-25 total score was 78.5 (14.7). The scores per subscales varied from 64.7 to 89.7. No significant difference was revealed between demographic parameters and the NEI VFQ-25 items, except for one item (being with others) when comparing paired and nonpaired participants. Conclusion: In a Norwegian population with newly diagnosed nAMD, VRQoL is reported at a high baseline level. This is an important information for the health care personnel when discussing expectations during treatment with the patient. Age, gender, and civil status did not affect VRQoL

Topics: Age-related macular degenerations, National Eye Institute Visual Functioning Questionnaire–25, Demographics
Publisher: 'SAGE Publications'
Year: 2018
DOI identifier: 10.1177/2333721418801601
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