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An exploration of an Internet discussion forum for Autism Spectrum Disorders in relation to Self-Help/Mutual Aid groups and helping processes

By Jennifer Jackson

Abstract

The Literature review examines parenting a child with a developmental disorder focusing on what factors may contribute to parental stress and coping strategies employed to manage it. The review examines how three models of coping and adjustment predominately used in this field (Lazuras and Folkman’s (1984) Process Model of Coping, McCubbin and Patterson’s (1983) Double ABC-X model of Adjustment and Adaptation and Antonovsky’s (1987) model of Sense of Coherence) relate to the findings on how these parents cope. Families found numerous styles of coping and varying resources helpful as long as it was responsive to a particular event or crisis. Ultimately, the paper highlights the need for more services that are tailored to individuals and families needs across the whole life-span and further research into how clinicians can assist parents to develop more coping strategies and resources. \ud The research paper explores an Internet discussion Forum for Autism Spectrum Disorders. 135 message threads were downloaded from an online group and analysed using Template Analysis. The first analysis aimed to investigate how the forum was being utilised and the second analysis explored whether helping processes as identified by Finn (1999) were present. Analysis one showed that the site was used to share personal stores, evoke a sense of community, exchange information as well as provides advice on how to manage professional input. Analysis two showed that helping processes were present and that providing support, catharsis, universality and providing information were key processes within the group. The group appeared to provide a service for carers and may be of benefit to others living with a disorder and could be an adjunct to professional services. \ud The critical appraisal explores some of the methodological considerations that arose during the study of the online forum. [Taken from the thesis overview

Publisher: University of Leicester
Year: 2007
OAI identifier: oai:lra.le.ac.uk:2381/9914

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  1. (2003). A review of the effectiveness of self-help mutual aid groups.
  2. (1997). ADHD and Parental Psychological Distress: Role of Demographics, Child Behavioural Characteristics, and Parental Cognitions. doi
  3. (2005). Adjustment in mothers of children with Aspergers syndrome. An application of the ABCX model of the family. doi
  4. (1987). After the tears: Parents talk about raising a child with a disability.
  5. (1988). An analysis of mutual assistance. doi
  6. (1996). An Electronic group is virtually a social network. In
  7. (1999). An exploration of helping processes in an online self-help group focusing on issues of disability. doi
  8. (2006). An Interpretative Phenomenological Analysis of Participation in a Pro-anorexia Internet Site and Its Relationship with Disordered Eating. doi
  9. (1994). Analysis of electronic support groups for recovering addicts.
  10. (1996). Assessment and prediction of stress related growth. doi
  11. (1990). Basics of Qualitative Research. Grounded Theory Procedures and Techniques. Thousand Oaks, doi
  12. (1992). Bereavement support groups. Who joins, who does not, and why.
  13. (1976). Change induction in small groups. doi
  14. (1990). Chronic parenting stress: Moderating versus mediating effects of social support. doi
  15. (1992). Community Psychology: Theory and Practice. doi
  16. (1998). Computer-mediated social support. Single young mothers as a model system. doi
  17. (1995). Computers, networks and work. doi
  18. (1990). Contextual determinants of the perceived supportiveness of helping behaviors. doi
  19. (1992). Controllability of Stressful Events and Satisfaction with Spouse Support Behaviours. doi
  20. (2007). Coping with Food Allergy: Exploring the Role of the Online Support Group. doi
  21. (1993). Coping with stress: the beneficial role of positive illusions.
  22. (1994). Cultural formations in text-based virtual realities. M.A Thesis,
  23. (1996). Do psychiatrically disabled people benefit from participation in self-help/mutual aid organizations? A research review.
  24. (1995). Effects of mood states on social judgements in cyberspace: Self focused sad people as the source of flame wars.
  25. (1994). Electronic support/mutual aid groups for sexual abuse survivors. doi
  26. (1999). Enabled or Disabled? Working Parents of Disabled Children and the Provision of Child-care. doi
  27. (2001). Ethical Issues in qualitative research on internet communities. doi
  28. (1992). Exploring electronic support groups. doi
  29. (1990). Families of autistic children: Psychological functioning of mothers. doi
  30. (1987). Families with disabled children: Stress and social networks in three samples. doi
  31. (1997). Family stress and management as perceived by doi
  32. (2004). Finding meaning in parenting a child with Asperger syndrome: correlates of sense making and benefit finding. doi
  33. (2001). First-hand accounts of emotional experiences in autism: a qualitative analysis, doi
  34. (2000). Framework for the Assessment of Children in Need and their Families, The Stationery Office,
  35. (2003). Gender and Coping. The Parents of Children with High Functioning Autism, doi
  36. (1999). Giving and receiving help. Interpersonal transactions in mutual-help meetings and psychosocial adjustment of members. doi
  37. (1977). Group therapy: A behavioural approach.
  38. (1990). Health and disability self-help organizations. In
  39. (1999). Helping Mechanisms as explained in Finn’s
  40. (1997). High Functioning Autistic Children and the Construction of “Normal Family Life”. doi
  41. (2005). Impact of Adolescents' Filial Self-Efficacy on Quality of Family Functioning and Satisfaction. doi
  42. (1991). Increased access and use of disability related information for consumers.
  43. (1994). Infant Food Refusal and Parental Social Support. Early Development and Parenting, doi
  44. (2004). Initial Template Pg. 154 Appendix B: Finn’s Helping Mechanisms Pg. 156 Appendix C: Example of coding Pg. 158 Appendix D: Ethics Approval Pg. 160 Appendix E: Letter from online Forum moderator Pg. 162 Appendix F: Statement of originality Pg.
  45. (2006). Internet survey of treatments used by parents of children with autism. doi
  46. (1998). Internet therapy and self-help groups – the pros and cons. doi
  47. (2004). Mothers supporting children with autistic spectrum disorders: Social support, mental health status and satisfaction with services. doi
  48. (1997). Mutual help goes on-line. doi
  49. (2004). National Service Framework for Children, Young People & Maternity Services: Autistic Spectrum Disorders, The Stationary Office,
  50. (2000). Objectivity and reliability in qualitative analysis: Realist, contextualist and radical constructionist epistemologies. doi
  51. (2001). Parents of children with autism using an Email group: A grounded theory study. doi
  52. (1996). Personality and coping: a reconceptualization.
  53. (2002). Political Ideology, Helping Mechanisms and Empowerment of Mental Health Self-help/Mutual Aid Groups. doi
  54. (1999). Predicting longitudinal changes in caregiver physical and mental health: a stress process model. doi
  55. (2001). Prevalence of Pervasive Developmental Disorders in the British Nationwide Survey of Child Mental Health. doi
  56. (2005). Privacy Practices of Internet Users: Self-reports verses observed behaviour. doi
  57. (1992). Psycho-Social Well-Being among Parents of Children with Autism. doi
  58. (1994). Qualitative Data Analysis: An Expanded Sourcebook. doi
  59. (2005). Receiving Social Support Online: An Analysis of a ComputerMediated Support Group for Individuals Living with Irritable Bowel Syndrome. doi
  60. (1986). Satisfaction with social support during crisis: Intimacy and self-esteem as critical determinants. doi
  61. (1993). Self-Help or Hype? Comments on Psychology’s Failure to Advance Self-Care. Professional Psychology: Research and Practice, doi
  62. (2005). Self-Help/Mutual Aid as a Psychosocial Phenomenon. In
  63. (2002). Sense of coherence in parents of children with different developmental disabilities. doi
  64. (1989). Stress and coping among parents of handicapped children: a multidimensional approach.
  65. (1990). Stress and social support: In search of optimal matching. doi
  66. (1985). Stress, Social Support, and the Buffering Hypothesis, doi
  67. (1985). Stress, social support: The role of social relationships in adaptation. doi
  68. (1974). Support systems and community mental health. doi
  69. (1998). Template analysis’, In
  70. (2002). Ten years on: a longitudinal study of families and children with autism. doi
  71. (1965). The “helper” therapy principle.
  72. (1997). The Analysis of an Electronic Support Group for Individuals with Eating Disorders. doi
  73. (1998). The influence of parenting stress and socioeconomic disadvantage on therapy attendance among parents and their behaviour disordered pre-school children.
  74. (2001). The life cycle and disability: experiences of discontinuity in child and family development. doi
  75. (1997). The Psychology of Religion and Coping. doi
  76. (1998). The relationship between depression and Internet addiction. doi
  77. (1993). The role of the family meanings in adaptation to chronic illness and disability. In
  78. (2007). The TOBY Study parents’ online message board. doi
  79. (1993). The virtual community: Homesteading on the electronic frontier. doi
  80. (1995). Two worlds: self help groups and professionals. Birmingham: British Association of Social Workers.
  81. (1986). Types and timing of social support. doi
  82. (2000). Using family context to inform prevention planning for the treatment of a child with autism. doi
  83. (2007). Using Template in the Thematic Analysis of Text.
  84. (2000). Victimization Online: The Down Side to Seeking Human Services for Women on the Internet. doi
  85. (1997). Virtual culture: Identity and communication in cybersociety. doi
  86. (1997). Virtual Narratives. Illness Representations in Online Support Groups. In

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