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Involving Patients and the Public in E-Health Research

By John Powell and Natalie Armstrong


This paper was published as Patient-Centered E-Health / ed. E. Vance Wilson; IGI Global, 2009, pp. 115-126. It is available from Doi: 10.4018/978-1-60566-016-5.ch009Metadata only entryThis chapter deals with the principles and practice of patient and public involvement in e-health research, and discusses some of the issues raised. In the first part of this chapter, we discuss the problems of defining an “e-health consumer,” and discuss why, how and when to involve consumers in e-health research. We also set out principles to guide effective consumer involvement, and the benefits that this can bring in the e-health arena. In the second part of this chapter, we describe how consumers were successfully involved, through a variety of methods, in the development and evaluation of an Internet-based intervention to aid diabetes self-management. Patient and public involvement in research is not the same as undertaking research on patients or the public. It is about understanding, incorporating and benefiting from the relevant consumer perspective, at various levels, throughout the stages of a project

Publisher: IGI Global
Year: 2009
DOI identifier: 10.4018/978-1-60566-016-5.ch009
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